Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Legs/feet swelling


  • Please log in to reply
12 replies to this topic

#1 TamaraB

TamaraB

    Bronze Member

  • Members
  • PipPip
  • 21 posts

Posted 22 May 2011 - 10:11 PM

Hello everyone! I'm not new to this site but it has been so long since I actually logged in that I had forgotten ALL of my old info and started a new account. I have a diagnosis of limited systemic scleroderma and I will be the first to admitt that I don't stay up on it nearly as well as I should and there is A LOT of it that I still find very confusing! So to get to this new problem... For the last few weeks I have noticed that my lower legs and feet are swelling, the muscles are achy in my upper and lower legs. My feet almost look like they are made of wax and sting when I stand. They are also streaked blue and red and when I squat down my legs itch like the skin is being pulled tight. I stand on my feet over 8 hours a day and am overweight (thanks to hypopituitarism). Anyone have any insight on this or recommendations? Thank you for any help you can give!

#2 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 23 May 2011 - 01:25 AM

Hi Tamara,

Welcome back to these forums!

I'm sorry to hear that you're suffering with swollen legs and feet; it sounds very unpleasant and uncomfortable.

I'm no doctor and my only claim to medical knowledge is a first aid certificate, but I wonder whether standing on your feet for 8 hours a day could be contributing to the problem. Possibly the hypopituitarism could be a factor as well?

I've found a thread regarding swollen legs and ankles which I'm hoping might be of help to you. It does seem to be a symptom of this bizarre disease, Scleroderma and I'm sure that some of our other members who have experienced this will be able to give you more advice.

Now that you've found us again, please don't be a stranger and keep posting to let us know how you're getting on. Here's a welcoming :emoticons-group-hug: (I'm the red one!!)

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 23 May 2011 - 03:18 AM

Hello Tamara

I had a lot of pain in my feet and calves and swelling during my first year with scleroderma. Now I only have pain in my feet which I put into 5 categories, one of which is skin pain and it stings.

Pain can be part of scleroderma so it's a case of learning how to manage it and we have some resources about pain management that you may find helpful. You will also want to discuss the pain issue with your rheumatologist/doctor, don't just suffer and muddle on.

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 23 May 2011 - 09:00 AM

Tamara,

Welcome back Darlin! I'm sorry it is because of a new symptom. From the description you provided, you really need to see your doctor as soon as possible. Swelling to that extent and the development of streaks of blue and red is not something to take lightly, nor to wait and hope it goes away. There are many things that could cause this, some very minor, but others could be problems that need to be addressed immediately. So please make an appointment with your rheumatologist or primary care so they can see what is going on and direct you to the right place.

Please let us know what you find out.
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 miocean

miocean

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 23 May 2011 - 09:28 AM

Tamara,
I am going to add my concern about the swelling in your legs. Please do not ignore it. That was one of my first symptoms and I ended up with kidney failure. I don't want to alarm you, there could be many other reasons for this, but get to a doctor and have him do blood work and a urinalysis. It is so much better to be safe than sorry.

Please let us know how you are doing.

miocean
ISN Artist

#6 kris52770

kris52770

    Senior Bronze Member

  • Members
  • PipPipPip
  • 35 posts
  • Location:Massachusetts

Posted 23 May 2011 - 03:59 PM

Welcome back, So sorry you are having these issues. I can totally relate I have swelling in both legs and my feet are very waxy as well. I also have to do alot of walking and standing during my 9 hours shifts at work. One of my biggest complaints is the stinging in my feet. Some days they hurt so bad I can barely walk at the end of the day. My rheumatologist told me that she doesn't feel it is related at all. I do not believe her to be correct. She is sending me off to yet another doctor...boy this gets old quick. Hope you get some much needed relief and we are all glad you are back :emoticons-line-dance: All the best Christine

#7 TamaraB

TamaraB

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 21 posts

Posted 23 May 2011 - 06:00 PM

Thank you all for the input and advice, I will call my primary care physician in the morning!! I knew you guys would have the best advice!! :thank-you:

#8 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 24 May 2011 - 02:15 PM

Hi Tamara,

I am hoping that by now, you have been able to get in to see a dr and get to the bottom of the swelling of your lower legs and feet.

Please keep us posted?
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#9 TamaraB

TamaraB

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 21 posts

Posted 25 May 2011 - 09:31 PM

I was able to get in to see my primary care physician today, she wants me to cut back on sodium intake (no brainer) to see if that will help the issue some. Unfortunately the leg problem kinda took a back seat in this office visit as I had a more severe issue, another flare up of MRSA! One good thing about it... my fiance' did LAUNDRY!! YAY! :emoticons-line-dance: I will be sure to check back in after the follow up. Thanks again everyone!! :thank-you-2:

#10 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 26 May 2011 - 01:19 AM

Hi Tamara,

Sorry to hear that you've had a flare up of MRSA; how horrible for you! :(

Good for your fiance though, there's always a bright side!! ;) :lol: :woohoo:

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#11 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 29 May 2011 - 01:43 PM

Another flare of MRSA?? YIKES!!! I'm keeping my fingers crossed it leaves in a hurry, Tamara! You surely don't need MORE going on :sorry:

Is there any chance the MRSA may have something to do with the swelling that is also going on with you?

Please please PLEASE keep us posted, won't you?
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#12 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 29 May 2011 - 02:10 PM

Hello Tamara

MRSA?! Now that must be rather unpleasant to say the least! What symptoms does it cause you and how on earth do they treat it?

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#13 TamaraB

TamaraB

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 21 posts

Posted 04 June 2011 - 03:08 AM

Hello again all!! First of all, thank you for all the well wishes!! I do believe they helped! :thank-you-2: I got MRSA for the first time almost a year ago and on my face of all places, stayed in the hospital for a few days for IV antibiotics. Unfortunately from what I understand about it, once you have MRSA you will always have it, I guess it just flares from time to time when conditions are right. The good news this time was that a strong round of oral antibiotics has been enough to get it healing, HOORAY!!! I am a pharmacy technician and I have now learned that if someone hands me a prescription for Bactrim, Keflex, and Bactroban...immediatly use the Hibiclens and Lysol!! :blink:

Still having problems with the swelling and tightness, going to call the doctor back if it isn't improved by the end of next week.

Thanks again for all the well wishes!!!!