Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Remission


  • Please log in to reply
8 replies to this topic

#1 peanut

peanut

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 27 February 2007 - 02:31 PM

When does remission occur? Is it when a person is stable for a long period of time? Or does it occur when your body returns to normal and is not dependant on drugs, or very few drugs? Can people with scleroderma go back to "normal"?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#2 Clementine

Clementine

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 27 February 2007 - 04:42 PM

Peanut...
Hey girl! I read your message but do not have any answers....but you know when you post a message and a bunch of people read and don't respond....and you're wondering when someone's going to post something...ha ha...well, here's your first post. Sike.

I am so happy for you and hope you and your hubby can move forward with your lives together.

XoOOxx,
Jennifer

#3 ssakar

ssakar

    Senior Bronze Member

  • Members
  • PipPipPip
  • 62 posts
  • Location:Shamrock, Texas

Posted 27 February 2007 - 04:59 PM

Very good question/questions!! I have been wondering the same thing!!

I would love to hear from anyone that has actually gone into remission too.

Sakar

#4 peanut

peanut

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 738 posts

Posted 27 February 2007 - 06:37 PM

I was just thinking... that we are all trying to get our bodies to stabilize preventing further progression and eventually leading to remission, but how will I know when I’m there?

sometimes I think too hard

Jen - thanks for the email!!!

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#5 ssakar

ssakar

    Senior Bronze Member

  • Members
  • PipPipPip
  • 62 posts
  • Location:Shamrock, Texas

Posted 27 February 2007 - 08:05 PM

Now that I think back.......I remember at my last rheumatologist visit she said 'since there is no CURE for Scleroderma....our main goal is to get me into remission'.

So next time I have my appointment - I will most definately ask her if she could explain a little more in detail what that entails.

Sakar

#6 Claudia-DR

Claudia-DR

    Senior Bronze Member

  • Members
  • PipPipPip
  • 78 posts
  • Location:The Caribbean

Posted 28 February 2007 - 03:56 AM

Hi girls!

I was diagnosed with CReST almost 4 years ago, but the disease was activated 6 years ago, when my son was born.

I'm currently in remission, meaning that my disease is not active at the moment. My skin is not getting any harder and I don't have aches and pains.

Unfortunately, I'm not back "to where I started". The skin that was already hard is not getting any softer (sp. my fingers) , as too much collagen has been deposited there already.

But the fact that things are not progressing is quite relieving.

Healing wishes everyones way,

Claudia

#7 americanmike

americanmike

    Senior Bronze Member

  • Members
  • PipPipPip
  • 72 posts

Posted 04 March 2007 - 05:42 PM

Hi Peanut--

Read sclero.org info on stem cell transplants. Some patients actually get better. Many cases of "remission" included a return to normal of their skin etc. So some people experience a healing of things that were damaged.

I have heard that lungs are really hard to heal after fibrosis damage, and tend to stay damaged even if there is no sign of sclero in the blood or clinically.

Michael in Florida

#8 Jordan's Mommy

Jordan's Mommy

    Senior Bronze Member

  • Members
  • PipPipPip
  • 70 posts

Posted 04 March 2007 - 07:11 PM

See how many responses Jennifer initiated???? My daughter's dermatologist has suggested that her course of illness *tends* to burn itself out in 3 to 5 years. So far, she is on that track, as it has not spread, and all tests are normal. He has suggested that we consider UVA/light therapy and muscle stimulation when she is older and the disease is "gone." I think this disease can stop its progression--maybe that's what is meant by remission. Her rheumatologist is more conservative, but does agree that it can burn itself out over time.

Take care,

Jennifer (Jordan's Mommy)

#9 TJ903

TJ903

    Silver Member

  • Members
  • PipPipPipPip
  • 109 posts
  • Location:Merritt Island, Florida

Posted 05 March 2007 - 01:29 AM

WOW, I hope that it is true that it will go into remission. Guess I have a long way to go. Just diagnosed in Jan. 07 and last week got the news that my diffuse sclero is in my lungs and kidneys now. It's all I can do to stay off of the couch. Good Lunck to you!!!