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Calcification-update-Telangiectasias


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#1 kacklebird

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Posted 25 May 2011 - 05:06 PM

Hi Everyone,

I had posted a while back about calcifications. I wanted to know if anyone had them without skin involvement. I saw a dermatologist autoimmune specialist and he said that's what they are. I had an x-ray done to confirm the diagnosis too as I wanted to really make sure and it is soft tissue calcifications. I now have a new issue and was wondering if anyone has this. I know telangiectasias are found in Scleroderma, but does anyone have them on their earlobes, near that area or heard of them developing on the ears too? I have a few of them there now and this is new. They're very small. At least I think it's telangiectasias as they blanch. Anyway, I didn't want to tell my rheumatologist about them and seem like some hypochondriac. It just seems like out of no where they've popped up on my face and now my earlobes and near the earlobes. The ones on my face are very small and some are round and some are the red spider vein type. Any opinion is greatly appreciated. May not even be related to the disease, but I don't know what else to think. I don't see my doctor for 2 more months so was curious to know if anyone else has noticed them on their ears.
Thanks

:emoticon-dont-know:

#2 Joelf

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Posted 26 May 2011 - 01:38 AM

Hi Kacklebird,

Thankfully I haven't had any telangiectasia so can't advise you from my own experience; however, I do have a friend who has quite a few of them on her face. I must admit that I've never noticed them on her earlobes? :emoticon-dont-know: I will certainly ask her when I next see her.

I wouldn't worry about asking any questions of your rheumatologist; it's his job to answer them and I don't suppose he would consider you to be a hypochondriac (most of us with Sclero tend to be a bit paranoid...I know I am!! ;) :lol: )

I know quite a few of our members have telangiectasia and I expect that they will be able to give you some more information.

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#3 marsha

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Posted 26 May 2011 - 08:25 AM

Kacklebird,
I have many telangiectasia's they were mostly limited to my hands and I had one on my upperlip but over the past few months they have been spreading to my forehead and chin and neck.. I am beside myself.. I hate looking in the mirror and seeing them, my Dr. said she can hardly notice them.. I was thinking why does my face look red and blotchy...I don't know if I have them on my ears. as far as the califications goes. I noticed the other day 2 round white bumps almost like a "white head" on the back of my hand,I also have throughout the years on my face.. I thought it was a pimplish type thing I am wondering now if it is calcification. Can you tell me what yours look like.. Keep us posted, look forward to hearing from you soon
Marsha

#4 kacklebird

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Posted 26 May 2011 - 10:38 AM

Hi,

Thanks for offering to check with your friend. I know every case is different with these diseases, but was wondering why they are on my ears. Maybe it's uncommon or not even related. I need to see the dermatologist doctor so I could ask him and I se my Gi doctor this coming week so I may show him.
:emoticons-yes:

#5 Amanda Thorpe

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Posted 26 May 2011 - 01:22 PM

Hello Kacklebird

If you think you have another scleroderma symptom, of which telangiectasia is one, you need to tell your doctor. It is a valid symptom however small.

Take care.
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#6 kacklebird

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Posted 26 May 2011 - 08:40 PM

Hi Amanda,
I know you're right about showing or telling my rheumatologist about the possible telangiectasias. I waited months before I pointed out the calcifications as I thought if they weren't she would think I was being some type of hypochondriac. She's never made me feel this way, but my disease has been totally out of the norm so I figured that maybe the calcinosis were something else and I just thought that they were. My gut feeling was right though so maybe these are telangiectaias that I now have. They seemed to creep up right around the same time that the calcifications appeared. I see my GI doctor this Tuesday so I may show them to him.

Take care :D

#7 enjoytheride

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Posted 27 May 2011 - 12:36 PM

I had been told that I had them but had never worried about them until someone mentioned out of the blue that I had a "rash" on my face.
Surprisingly I don't worry about them. I worry over every ache, pain and irregularity- but not that.

#8 kacklebird

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Posted 27 May 2011 - 02:53 PM

Hi Marsha,
My calcifications were/are white. I say were because one broke through the skin since I originally posted when I first was suspicious about them. I still have one on a finger joint. It is near the surface and can be seen. The one that broke through the skin got bigger all of a sudden, tender and red around the calcinosis prior to breaking through. If you want to send me your email via a private message I can email you pictures of what mine look like.
Take care

#9 kacklebird

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Posted 27 May 2011 - 03:07 PM

The actual telangiectasias don't really concern me in terms of what they look like, etc as they certainly don't make me sick or make me have pain. I'm just trying to piece together this broken puzzle. I too have plenty of pain, aching, fevers, etc that make these little red veins miniscule, but being told you have Scleroderma, then Lupus, then Overlap, then Lupus and now have calcifications, esophageal involvement, Raynaud's and now possible telangiectasias makes me even more mixed up. I think it's now evolving into possible limited Scleroderma, but I could be wrong. I see the rheumatologist in 2 months and see my G I doctor this week. Sooner or later I think this will all become clear as to what is going on. To me it's pretty obvious now in my eyes. I'm not a doctor though so I'll just see what happens.
:emoticon-congratulations:

#10 marsha

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Posted 28 May 2011 - 09:51 AM

Kacklebird,

Yes I would love to see a photo.. mine are/is a very small white dot that is right under my middle finger center joint.. I also have had them on my face before.. as I said I thought that they were "white" heads...