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Biomarker for Diffuse Scleroderma skin has been discovered!


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#1 docmartenmom

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Posted 26 May 2011 - 09:42 AM

Hi Everyone,

Last December, I woke up and discovered my left middle finger was misshapen and the top knuckle bent down. My local rheumatologist doctor diagnosed it as Swan Neck Finger - said the other ones may do the same over time. Yesterday I noticed my right index finger is bent and looks as if the top and bottom are veering off in opposite directions. Also troubling is my thumbnail on my right hand - there is a perfectly vertical, raised ridge line going the entire length of the fingernail. I went for my weekly B-12 shot this morning and my primary doctor said it looks like the ridge has a darkened edge and could mean vitamin deficiency. That makes sense because I am deficient in B-12 and Vitamin D. I notice every one of my fingernails looks lined and a couple look like they could be forming a ridge like my thumb nail. Is this another way of systemic sclerosis looming its ugly head at me? My nails have always been brittle, since I was little.

#2 Amanda Thorpe

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Posted 26 May 2011 - 02:26 PM

Hello

I'd not heard of swan neck finger before. I have sclerodactyly hands myself so can sympathise with having hands that look far from normal and have impaired function. Mine is a direct result of scleroderma.

We have information about fingernail changes in scleroderma that may be of interest to you.

Take care and keep posting.
Amanda Thorpe
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#3 JudithL

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Posted 26 May 2011 - 03:50 PM

I have swan neck deformity in two of my fingers. My rheumatologist told me it's a normal result of aging and not related to scleroderma. Whether or not that's true, I agree it's not pretty but at least it hasn't affected my manual dexterity.

Most of my fingernails (and probably my toenails as well, but I haven't examined them as closely) are a mess (with ridges, cracks, valleys, odd curvature, etc.). They get worse in the winter, which doesn't make a lot of sense. But, with this disease, what does?

Judith

#4 Sweet

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Posted 26 May 2011 - 04:40 PM

swan neck fingerI have heard of swan neck finger, and I'm sorry you have it. I hope this information helps.
Warm and gentle hugs,

Pamela
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#5 docmartenmom

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Posted 28 May 2011 - 10:05 PM

Thanks girls, I appreciate your warmth :)