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Does Heat Affect Your Scleroderma?


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#1 kramer57

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Posted 28 February 2007 - 01:21 AM

Good morning everyone! I was wondering if the heat of summer bothers you?Funny to be asking about summer, when there is a foot of snow on the ground here!

Last summer, when the temps got to the 80's, I felt very heavy and tired, like there was a huge weight pressing on me and it's hard to move. Also some trouble breathing and dizziness. Do you feel like that when it gets hot?

Thanks!
Karen

#2 Sam

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Posted 28 February 2007 - 01:30 AM

Karen I had found it to be hard just a little bit, like breathing was my main thing. Especially if I was doing something. We do use our central air in the summer time. I just dont over exert myself in the summer time, but other than that I liove when it is warm. I feel so much better. Hope this helps and Im glad to see you on this board. Sam
Sam

#3 Sue

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Posted 28 February 2007 - 01:33 AM

I know the feeling. The heat does bother me and so does the sun. It is almost like my cooling system does not work right or is very slow. I am not sure why and when I asked my Dr. she did not offer any information. I guess it is one of those symptoms that bother some and not others. I guess we will have to find a place to live with spring and fall only!!!

Best wishes,

Sue :)

#4 CFMBabs

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Posted 28 February 2007 - 02:46 AM

I've wondered about this for years Y'know! I know that heat affects me whenever I go to hot climates. I'm sluggish, feel very tight all over and extremely tired all the time -- great excuse for lying on a sunlounger!
We went to Santorini a few years ago and we took a trip around the island. I drew the line at a very steep climb up a volcano -- goodness knows why we'd want to do that anyway! But we did. I got to the base of the climb then refused to carry on. The heat was intense and I was sweating far too much. My legs were like jelly and I felt as though I couldn't breathe. The trip was insipired by the Greeks theory that part of Santorini is in fact Atlantis -- The volcano blew out the middle of the island 4,000 years ago and it sank below the sea. It caused a tsunami which totally wiped out the minoan civilisation on Crete - Here endeth the history lesson but I'm full of useless info like that!
So Yes! heat does affect sclero I think. And by the way Scleroderma is Greek for hard skin, but I think you probably already knew that?
Give me a chance to talk about Greece and I can be very boring!
Best wishes
Barbs xxx

#5 Claudia-DR

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Posted 28 February 2007 - 03:44 AM

Hi Karen!

Yes, the heat affects me like you and the other replies. My hands swell up and I feel more tired. The heat also makes me dizzy, specially when I forget to drink plenty of fluids. But I'll take the heat anytime over the freezing cold and the Raynauds that comes along with it. So keep warm!

Best,

Claudia

#6 nan

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Posted 28 February 2007 - 04:01 AM

Karen,
Heat affects me. I get very tired and nauseated. Then when I come in from the heat to central air I get a great Raynaud's flare. Take care!
Nan

#7 Sweet

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Posted 28 February 2007 - 05:49 AM

Hi,

The cold affects me much more than the heat, but I do know that I can't take the heat like I used to. I also have signs of Lupus and have had several sun exposure rashes that accompany that.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 Bird Lady

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Posted 28 February 2007 - 06:49 AM

Karen The heat did effect Birdman it was harder for him to catch his breath when it was hot. He just wanted to stay inside. But he still likes summer time more than winter !!!
Birdmans wife
Hugs for All,

Julie (Bird Lady)

#9 kelowna52

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Posted 28 February 2007 - 09:09 AM

Good morning everyone. Yes Karen the heat affects me big time. We moved from the Mojave Desert to Wa. State. The heat in the Desert is extreme, to say the least. I would feel very puffy and bloated, dizzy and zero energy. My hands, legs and feet would swell up and I just feel basically really useless. I just couldn't do anything. But, I must admit I do like the summer versus the winter, just not the Desert heat. Have a great day everybody.

Jackie S.

#10 peanut

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Posted 28 February 2007 - 11:42 AM

I live in Arizona. This coming summer will be my first with my diagnosis and I don't look forward to 120+ heat. This may explain why I also felt like a wilted flower in the summer.

We can't live in the cold, we can't live in the hot... where can we live?

peanut

You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...

#11 barefut

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Posted 28 February 2007 - 01:47 PM

I've never been able to stand too much heat. I'm most comfortable at 75 degrees with a nice breeze. Otherwise I become wiped out and sluggish very easily.

Thankfully I don't have to worry too much living in the Great Northwet.

#12 ssakar

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Posted 28 February 2007 - 06:05 PM

Yes the heat affects me. I don't know which is worse......the summer or the winter :-) The heat makes my hands really swell up and the cold makes them sorta shrivel/shrink and turn colors.

Sakar

#13 Sydney

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Posted 05 March 2007 - 02:21 PM

I absolutely love the heat .... good thing I live in Florida! My Raynauds is very bad so the heat is great for that & helps keep ulcerations on my fingers down. My fingers swell as does everybody in the heat vs. the cold but I did notice when I was is a remissed state my fingers were alot smaller than when the disease is more active. (I actually have wedding bands for both occasions; a size 5 3/4 for the remisssion and a 7- 7 1/2 for the active state).
Sydney

#14 kramer57

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Posted 11 March 2007 - 01:16 AM

Thanks for all the replies! Last summer I was wondering why I felt so bad, now I don't have to wonder anymore - I can blame it on Scleroderma. This summer I will just have to do errands in the morning, and stay in the air conditioning when it gets too hot. I'm so happy Spring is almost here, I love Spring and Fall!

Karen