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What Do You Take For Pain


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#1 Patty

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Posted 28 February 2007 - 02:27 AM

I have been in lots of pain lately and I can't seem to find anything that helps. I was taking a strong painkiller and to be honest that was not really helping. My Dr increased my gabapentin (neurontin) to 600 mg a day and still nothing. I fell a couple weeks ago and hurt my hip and leg and that's the pain I am feeling. I also am in a dermatomyositis flare or what ever its called because even though I am taking my meds, I am getting weaker in my legs now. I go to bed at night and can not sleep due to the pain in my leg. I think its nerve pain because it starts in my right bum area and goes down my leg. I had x-rays taken but they only showed my already known disk trouble. I swear the Dr's think I am just looking for drugs.. Boy are they wrong! I have a 2 year old I have to care for, the last thing I like is meds that bother my thinking! I called my Dr yesterday and begged for something to help. I also told them I do not want narcotic meds. I just want something to get me out of this pain! Any help on this would be wonderful. I need to get a good nights sleep! I am so tired.

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#2 kramer57

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Posted 28 February 2007 - 02:57 AM

Hi Patty,

I recently asked my Rheumatologist about non-narcotic pain relief because I had been on one for a while, but it was making me very sleepy and not helping the pain much anymore. I was interested in some antianxiety or antidepression type med (I've heard of people using BuSpar or Effexor) but he said that is for Fibromyalgia type pain. He said I can't take NSAIDS because of my esophagus / reflux problems (no motility). So he gave me Tylenol#3 and recommended an over the counter cream for arthritis pain. I've been using those and it helps, as long as I don't do too much.

I have arthritis in my lower back, and some new pains that I assume are Sclero: horrible pain and stiffness in my neck and back in rib cage area. I have hip pain too, it sounds like you describe - starts in the butt cheek & goes down the leg.

**if you try the cream be careful, read the directions - it's made from hot peppers!**

Hope you feel better soon!

Karen

#3 barefut

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Posted 28 February 2007 - 01:09 PM

Oh how I feel for you in your time of pain, especially having to care for a 2 year old.

I don't have much good advice today, only sympathy and a cyber hug for you.

Take care, take it easy and do something nice just for yourself today.

Some things you've probably already tried....

Lots of long hot showers or baths
Moist heat - microwaved towels
Alternating ice and heat
Topical relievers
Tylenol PM for at night

Good luck to you.

Barefut

#4 Patty

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Posted 28 February 2007 - 11:48 PM

HI Karen,
I too suffer from esophagus / reflux problems but I have slow motility and my Dr's keeps giving me NSAIDS for my pain. It so strange how every Dr is so different from the next. I swear there should be rules that all Dr's need to treat us the same. Maybe then all would get the proper treatment. Did you Dr say that the NSAIDS would make things slower for you? My Dr said that Narc med would slow me down so that's one reason they don't like giving them out. Well that and the fact I go to a free clinic and my Dr deals with all the drug addicts in my area. I swear, he needs to treat me as a person not as someone who could get addicted. Gee we all could if not taken right but because I could get hooked does not mean I should suffer in pain this long. Oh gee sorry didn't mean to rant in here just gets me so mad that he does not treat case by case but but med it seems. Oh well I don't like not having a good thinking mind anyway but at night a nice pain pill would be wonderful so I could at least sleep. Last night I only slept from 2 till 4:40. I am going to the store today to pick up some cream and hope that helps me. Thanks for the ideas!
Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#5 Patty

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Posted 28 February 2007 - 11:59 PM

Hi Barefut,

Thanks for the hug I needed it!

I am going to my local medical supply store today to get a shower chair and then I can try the nice long showers even during the night. Right now I can't stand well enough in the shower to try a hot shower at night . I am so frightened I will fall so I only shower when Tom is home and or awake and listening for me.

Last night I took my sleeping pill,I could not sleep so about midnight I took another but still could not sleep so I then took my last med and still had pain but was able to get a couple hours of sleep.

I will let you all know if I get some help here soon.

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#6 kramer57

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Posted 01 March 2007 - 02:34 AM

Hi Patty,

My doctor didn't say why I can't take NSAIDS, but I believe it's because they can really irritate the stomach and I have a lot of reflux already. The Tyl3 is constipating me a little so I had to take laxatives one night but other than that I've been okay on it. I don't get entire, complete pain relief but it dulls it and I really think the OTC arthritis cream is helping too, and the neck stretches I've been doing. My neck feels pretty good this morning.

Do you have a Rheumatologist you can talk to about pain? Mine was a lot more helpful and understanding about it than my family doctor was, so I'm just getting pain med. from him now instead of the family doctor and Im going to try to switch him to my Primary Care doctor. since the only reason I go to the doctor is for meds for my chronic conditions, or new things related to Sclero., and my old family doctor doesn't know much about that. Hopefully my insurance will let me switch to a specialist.

I hope your new shower chair helps make it easier and less scary for you to take showers!

Hugs,
Karen

#7 susie54

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Posted 01 March 2007 - 02:49 AM

Hi Patty,

Sorry to hear of your pain. I was just asking my rheumatologist for pain relief in legs and muscles the other day. I told him NSAIDs did not even touch it. It is a relentless pain that just goes deep. My best solution is HEAT, HEAT PADS everywhere on the legs. I have neurontin yet so I don't know. Darvaset was given to me once and that was not any relief. Aleve seems to help the most. Sleep is so precious and when I get a good nights sleep , I feel so much better. Hope you can get relief. Also, if I overdo, I have a terrible night. Hard to find that right place,uMMM, I think they call it feeling like you are in heaven!!!!!!!!!!!!!!!!!!!!!!!!! Susie54

#8 Heidi

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Posted 01 March 2007 - 03:15 AM

Hi Patty,

I am sorry to hear that you are in so much pain. Is it possible for you to get a referral to a pain management clinic/specilaist? It might be worth it as I have seen others post on here how helpful that was for them.

I hope the shower chair works great for you....let us know!

Warm wishes,
Heidi

#9 TJ903

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Posted 01 March 2007 - 08:49 AM

Patty - hope I'm answering you. I'm still fairly new to this posting thing. I have a pain management doctor who filled me with drugs and now wants to put an internal pump in. Problem is my rheumatologist says that the pump is designed to help back pain which is why I went in to see the pain doctor in the first place.

I'm waiting for a call from the doctor on how to wean me off of these pain meds so that I can start the Lyrica for nerve pain that my rheumatologist gave me. We'll have to wait and see on this approach.

I can only sleep for about two hours at a time, because of the pain and cold/night sweats.

I have diffuse scleroderma, lung and kidney involvement. I can still bath myself, but just barely.