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Raynauds Question


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#1 CFMBabs

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Posted 28 February 2007 - 07:22 AM

I'm very interested to know how many of you know someone -- and I don't mean on this site, who have Raynauds. It seems that wherever I go these days I meet someone who says " Ooh, look at your fingers -- do you have Raynauds because I have it too" That happened to me today when I was paying for my fuel after filling up at the station. The lady behind the cash desk imediately saw my fingers and yes! I was having a really bad spasm! She announced rather loudly that she had it too and thereto began a lengthy conversation to match the lengthy queue behind.
I'm extremely curious since this happens quite a lot, as to how many of you have come across this on your travels. I know Raynauds on the whole is quite common but it seems to be becoming a plague!
Just interested!!

Love to all
Barbs xxx

#2 Heidi

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Posted 28 February 2007 - 07:49 AM

Hi Barbs,

I know when I was first diagnosed, I had a girlfriend who had just been diagnosed with primary Raynaud's and a wife of one of my husband's business associates told me she has terrible Raynaud's (primary) and just the other day one of my husband's clients told him she has Raynaud's (primary). So, I think you are quite right in that there are quite a lot of people out there with primary Raynauds.

Warm wishes,
Heidi

#3 Patty1

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Posted 28 February 2007 - 08:22 AM

Hi Barbs,
I have only come across a few people, one was a nurse and two doctors I have met in my journey thru the health care industry...(allthough all were quick to tell me that their's is mild compared to what I experience) and two other fellow scleroderma patients..maybe I am living a sheltered life!
Patty

#4 nan

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Posted 28 February 2007 - 08:30 AM

Barbs,
The daughter of a friend of mine has Primary Raynaud's and the anesthesiologist that was at my surgery has Primary Raynaud's.
Nan

#5 Clementine

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Posted 28 February 2007 - 08:42 AM

My bestfriend and my brother have Raynauds. They have not been diagnosed. I've also ran across random people that have it.
Jennifer

#6 Margaret

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Posted 28 February 2007 - 09:21 AM

Hi Barbs ,

We were at a funeral last month for my dear husband's aunt (90+years old) when he struck up a conversation with his cousin. Her husband has Raynauds and I spoke with him after the service. It was very interesting watching him during the service as he was one of the poll bearers and when he came in from the cold, he was holding and rubbing his hands. He showed me later how they had turned colors and hurt so bad. He was very helpful in giving info for Gareth.
Take care, Everyone.
Margaret

#7 Sweet

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Posted 28 February 2007 - 11:37 AM

I have a close friend that has it. She does not have an autoimmune diagnosis however.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 barefut

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Posted 28 February 2007 - 12:44 PM

Hi Barbs,

I have only run across one other person claiming to know someone else with Raynaud's.

Keep in mind I live in a small town and I don't get out much :P

Barefut

#9 memeto2

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Posted 28 February 2007 - 12:47 PM

i have a friend at work that has it,she has had it about 2 years now.memeto2

#10 LisaBulman

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Posted 28 February 2007 - 01:37 PM

Hi Barbs,
One of my sister in laws has primary raynauds.

I have met a few others in my travels....

Hugs,
Lisa
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#11 ssakar

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Posted 28 February 2007 - 05:51 PM

When I moved back to my hometown a few years ago, I saw an old highschool girlfriend wearing gloves at a basketball game.....She showed me her hands and they were totally white at that point. She told me she has Raynaud's - but that's all.

Then just yesterday I emailed a buddy telling him of my diseases and he said he knows a girl with Raynauds AND also knows of a woman with Scleroderma too.

And finally, I know of a 3rd person (through my cousin) that has Raynaud's and Scleroderma.......but I was told she only takes natural herbs etc.....no RX meds.

So yes - it truly is amazing how many people have this disease.....

Sakar

#12 emmie

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Posted 28 February 2007 - 06:12 PM

one person I worked with who had primary Raynauds.

emmie

#13 CFMBabs

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Posted 28 February 2007 - 10:57 PM

The press release from The Raynauds and Scleroderma Association states that there are indeed over 10 million people in the UK at present with the condition.
So you are quite right Shelley, and I think the thread about Raynauds Awareness is also the same press release that I recieved for the campaign.
If there are over 10 million people in the UK goodness knows how many there are in the US. My rheumatologist has a theory of area cluster groups and also those of Scottish decent which I actually am. Such things as working with certain chemicals and environmental issues are all areas being investigated at the moment. And I have a friend who I met through having this condition is now pursuing legal talks because she worked in an environment of asbestos. I'll certainly update you on that one if anything interesting evolves.
I really don't think that there is any one cause and it's just something that we have to put up with albeit distressing.
It's not that uncommon after all!

Love Barbs xxx

#14 Elehos

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Posted 02 March 2007 - 03:00 AM

Hi Barbara,

My younger son has had the raynaud's since he was little just like I did, my older son has milder problems with it, and my neighbor has pretty much everything you can imagine too.

Best wishes to you,
Elehos

#15 kramer57

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Posted 02 March 2007 - 08:11 AM

One of my mom's friends had Raynauds and a girl I was in college with had it. I'm sure my Aunt who had Scleroderma had Raynauds - today my mom was talking about her (my aunt's) blue fingertips.