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How Ironic That I'm Too Sick To Get To My rheumatologist doctor!


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#1 docmartenmom

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Posted 07 June 2011 - 08:15 AM

Hi Everyone,

I had to cancel my appointment with my rheumatologist doctor in Manhattan this morning, and it is important I see her :(

For the past couple of weeks, I have been dealing with tendonitis in both elbows, but my left elbow is far worse. I cannot rest it against anything it's so sensitive. This morning, my stomach was (and is) too upset to leave home just yet, so here I sit, needing to see my doctor. Yikes.

I was given an prescription for Lyrica but have not started taking it yet - mainly because I am on so many meds at this point. I worry that adding another one, particularly THAT one, could throw me more off balance. So far I am on 80 mgs/Nexium daily for Barrett's Esophagus, 1500 mgs/Nabumetone for inflammation, 400 mgs/Plaquenil. I also take a slew of vitamins, supplements, weekly B-12 shots for pernicious anemia and weekly Vitamin D. Any advice? I'm thinking Lyrica may help this all over pain, but are any of you on all of these meds particularly?

Thanks ~ Lori

#2 Shelley Ensz

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Posted 07 June 2011 - 09:47 AM

Hi Lori,

I'm sorry you couldn't make it to the rheumatologist today, because you're sick. Here are some get well flowers:

:flowers:
My advice would be to stock up on a first aid kit, including anti-nausea and anti-diarrhea meds (like PeptoBismol, for example), plus find someone who is willing to drive you in an emergency because you probably don't want to be driving under those conditions. If you don't have a driver, also save up an emergency taxi stash to include in your first aid kit, and remember to bring a plastic bag too, in case the meds don't kick in properly. Then next time, you might be able to drag yourself in there no matter how you feel. Many clinics have limitations on the number of last-minute cancellations or no-shows that they allow. They actually track a no-show score and boot patients who have too many infractions (a popular number is 3, grand total.)

I once had a migraine aura start when I was in the waiting room, after I had checked in but before I was seen. The aura gives me about 15 minutes or so to get to a safe, quiet and dark place (like, bedroom) -- and I knew that much even though I didn't know that these attacks were migraines. (See I am very serious about the line that I have no medical training at all!) So I told the receptionist I was too sick and had to leave and bolted out the door. Big mistake, as then it took much longer for me to be diagnosed with migraines plus I got one black mark on my no-show score, on top of it all. So I learned the hard way, show up no matter what, and don't bolt from the doctors office due to any sickness, either.

Still and all, I don't think I could have managed that appointment with that particular migraine unless the doctor promised to keep the lights off and not say a word. :o

Here's hoping that with your emergency preparedness kit, you'll be able to make it to your next doctor's visit, even if it's just barely, so you don't accrue too many black marks on your attendance chart.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 docmartenmom

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Posted 07 June 2011 - 09:56 AM

Thanks Shelley - great advice!

I will definitely make a kit LOL Luckily for me my doctor knows I have an hour and a half drive to get to her (I am in Upstate NY) so she is forgiving. My goal is to get to her tomorrow - just waiting for the office to call back. When I go, I've decided I will take the train and subways in rather than drive. Too time consuming! Lori P.S. Thanks for the flowers :)

#4 Joelf

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Posted 07 June 2011 - 10:30 AM

Hi Lori,

Oh, what a shame you've had to miss your appointment and that you're feeling so ill; I am sorry. :(

Shelley has given you loads of helpful advice, to which I can't really add anything. It's a similar situation for missed appointments with consultants in the UK; they tell you on your appointment letter that basically if you don't show you'll be referred back to your general practitioner. Not a lot can be done about missed doctor's appointments; they tend to put up a notice in the waiting room saying "X number of patients didn't show up for their appointments last week", presumably hoping to shame people into making sure they do turn up? :emoticon-dont-know: Not a lot of good if you're so ill you can't leave your sick bed! ;)

I'm not taking any of the meds you mention so can't advise from my own experience but I've included links to Nexium, Nabumetone, Plaquenil and Lyrica to give you a little light reading ;) and hopefully some information. :)

Here's some more flowers :flowers: to cheer you up and keep company with the ones Shelley's given you.

Jo Frowde
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#5 debonair susie

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Posted 07 June 2011 - 03:19 PM

Hi Lori,

We must be "sisters", because I've been "under-the-weather" for 2 weeks on Thursday :sick2:; same case scenario...too sick to go to my appointment Thursday, yet when I called (this am) to cancel and see if I could reschedule, she said the soonest I would be able to get in would be the middle of September and the appointment time:7:45am! YIKES!!!

The irony of this is that I didn't want to drag my contagious "viral stuff" in to the rheumatologist's office :blink:, but she doesn't want me ot wait that long, so off I'll GO!

I just wanted to say that I sure hope you start feeling better soon, Lori.
Special Hugs,

Susie Kraft
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#6 Amanda Thorpe

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Posted 07 June 2011 - 04:22 PM

I have missed a rheumatology appointment before due to being too ill to travel, it's over a 2 hour journey. Thankfully they were fine about it and re-booked it for the following week.

First aid kit...I hear that...I have plastic bags that travel with me everytime I am in the car these days! Someone tell me why it is that when you puke in a bag in the car there's always someone staring at you? Even going around a round about. What's with that?

Take care.
Amanda Thorpe
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#7 judyt

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Posted 07 June 2011 - 10:59 PM

Hi Amanda,

It's "Murphy's Law".

If you ever figure out how to beat it - let me know.

Hugs

JudyT

#8 Shelley Ensz

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Posted 08 June 2011 - 05:42 PM

Hi Lori,

Did you get in today? How did it go?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.