Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


My Temperature was 35

  • Please log in to reply
5 replies to this topic

#1 chockers


    Silver Member

  • Members
  • PipPipPipPip
  • 133 posts

Posted 13 June 2011 - 04:27 PM

Hi Folks

I have rheumatoid arthritis with overlap scleroderma and Raynaunds. Just lateley if I have got cold my temperature has gone down to 35. Also I have been like this when I have had a fever. Last time I had a fever I had trouble it got to 40 and the lowest was 35.

I also traveled home on a cold bus and my feet got cold and walked home half a mile with feet very cold and numb pulling a bag behind me which would had thought would had warmed me up.

Do I need to speak to the R.A. nurse next time I see her? Does anyone else have this. I take nifedipine in winter wonder if I should take it in summer?

I am also still wearing winter clothes as can't keep warm sometimes.


#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,901 posts
  • Location:West Sussex

Posted 14 June 2011 - 08:39 AM

Hi Christine,

I'm also a member of the chattering teeth brigade; I think like most Sclero sufferers I feel the cold, even on a very warm day. I've never actually taken my temperature on the occasions when I've been very cold and I must admit (unless I've actually got a fever) my temperature is usually around the 37 mark (normal range).

I'm no medical expert, but I think 35 can be within the normal range as well; as far as I know "normal" varies from person to person and can fluctuate throughout the day. I think that if you're concerned it would certainly be worth mentioning it to your R.A. nurse at your next appointment. She could then investigate it if she thinks there may be a problem or reassure you if there isn't. I've never taken Nifedipine so can't advise you from my own experience.

I'm afraid I still tend keep my thermal vest around even this time of the year! ;) :lol:
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 14 June 2011 - 09:46 AM

Hello Christine

Definitely check it out with a medical professional if you're worried about it and also discuss the increase in your nifedipine in view of the increase in your Raynaud's attacks.

I am one of the rare slcerodermians in that I don't suffer with being cold but being too hot!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 lizzie


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 497 posts
  • Location: UK

Posted 14 June 2011 - 03:25 PM

Hi Christine, 35 degrees is borderline normal temperature. Having said that 35-35.5 is a pretty normal temperature for me even in summer. On a recent week of daily admissions as a daycase for Iloprost , my temperture was taken every couple of hours throughout the day and varied between 35 most mornings to 36 later in the day. I think some of us just have a low core temperature . I am pretty healthy (despite the scleroderma). I think it is probably worth asking whether you should take the calcium channel blockers (Nifedipine) all year though.


#5 chockers


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 15 June 2011 - 02:44 AM

Thank you. I am a lot colder this year .

I wonder if I should take Nifedipine all year round? I have had changes (slight) since I have been on reduced Methotrexate(liver).

I shall see someone; the nurse in July and R.A man in August.

love Christine

#6 chockers


    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 133 posts

Posted 17 July 2011 - 01:22 PM

Nurse has told me to ask the RA man about low dose all year round, as she was looking at my BP.

I have an appointment in August.