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Restless Legs


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#1 barefut

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Posted 28 February 2007 - 06:48 PM

How many out there experience restless legs?

Do you take a medication for it? If so is it something you have to take all the time or as needed?

I get restless legs but only occasionally (yes, tonight :angry: ) so I don't want to have to add another daily med if I don't have to.

Is there anything else you can do for restless legs?

Is it pretty prevalent amongst scleroderma sufferers?

Thanks to anyone in the know.

Barefut

#2 Patty

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Posted 28 February 2007 - 11:34 PM

I also suffer from RLS and the Dr put me on a Parkinson's med. It did work good for me but now I just use a bar of soap under my bottom sheet at the foot of my bed and no more RLS! I tell you I was the first person who said no way will this work but it works for me ( also my sister does this and an elderly woman I know)so that's one more med I am now off of thanks to the soap. I can't say what brand of soap I use but you can MSG me and I will fill you in on what brands I know work and what ones don't.

Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#3 Sam

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Posted 01 March 2007 - 01:37 AM

i get it every now and then but I like to rub my feet together to fall alseep its relaxes me. but on the nights my legs are restless I get up and stretch them out for a bit and walk around then I go back to bed. I dont take anything for it yet, haven't mention it to the doctor's yet.

Patty what is the bar of soap at the bottom of the bed for? What does it do ? Sam
Sam

#4 nan

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Posted 01 March 2007 - 03:03 AM

Barefut,
The only time I had restless legs was when I was anemic. It drove me nuts!
There is a medication I was given before we knew what was causing it. I can't remember the name of it. I think go with the soap idea. No more medicine. Take Care!
Nan

#5 Sweet

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Posted 01 March 2007 - 07:14 AM

I do suffer with it from time to time. It comes in spurts. Just about the time I think I'm going to ask the doctor for meds it goes away and I don't have any problem with it for months.

Hope you find some relief!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#6 Heidi

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Posted 01 March 2007 - 07:26 AM

Hi,

I too suffer from this off and on. Last week was miserable. I would try to relax in my big chair and I just couldn't get comfortable because of my legs. But, now this week is much better and I haven't experienced it at all....go figure!

Warm wishes,
Heidi

#7 Patty

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Posted 01 March 2007 - 07:33 AM

Hi Sam,

I have no idea how it works but it does. My elderly friend told me they saw it in a newspaper article one day and everyone tried it to find it works. The only thing I can say is not to use the soap with the cream in them. I use a antibacterial soap in my bed and like I said so far so good. One less med I need to take.

Let me know if you try this.
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#8 TJ903

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Posted 01 March 2007 - 08:38 AM

I've just started having this restless leg thing and would also like to know more about it.

Diffuse sclero, ILD, kidney involvement, diagnosed 1/4/07. My disease is fast tracking.

#9 Heidi

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Posted 01 March 2007 - 09:44 AM

Hi TJ,

I did a little searching for you to see what I could find on restless legs syndrome. Here is an article that talks about the connection between restless legs syndrome and scleroderma found on our Sclero main website. Here is another article from PubMed that talks about what Restless Legs Syndrome is.

I hope you find this information helpful.

Warm wishes,
Heidi

#10 barefut

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Posted 01 March 2007 - 11:22 AM

Thanks for the link Heidi.

I sure would like to know the science behind the bar of soap remedy! :blink:

Anybody have any ideas?

I guess I'll try it next time. Seems harmless enough and if it gets me to sleep well then I'll be singing the praises too.

Barefut

#11 TJ903

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Posted 02 March 2007 - 04:56 AM

I'm going to try the soap thing, just need to get the energy to get to the store. These forums are so helpful, I just can't seem to figure out how to follow a thread. Can someone tell me how?

Many thanks!

#12 whirlway

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Posted 02 March 2007 - 03:51 PM

OK, so I tried the soap thing last night and slept all night. Still had a lot of leg pain today, but I slept last night, so that was great. I do have meds for RLS and am scared not to take it, but think I will try not taking it over the week-end, it would be great to eliminate one of my meds. Thanks for the advice.
~whirlway


#13 marsha

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Posted 23 April 2011 - 10:08 AM

My Mother swears by the soap!!! I can't believe how all the pieces of the puzzle are coming together.. I also find a brisk walk if you can helps me with kind of "wearing" my legs out, if you will... Again thanks for all the support and kind wishes

#14 Jeannie McClelland

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Posted 23 April 2011 - 10:22 AM

My PT told me just Thursday that she had 2 separate patients swear by the soap thing too! I might give that a try (got leg pain, but they aren't restless), especially since the under-the-bed dog has outgrown eating soap. :lol:
Jeannie McClelland
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