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Did you know that exercise increases inflammation in systemic sclerosis?


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How I Got Over


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#1 Beanpole

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Posted 21 October 2006 - 09:22 AM

I've realized that SS isn't an enemy fighting against me. It is a privilege for us to hold onto our being, our mind and live to survive. It isn't promised to us how long we are blessed to stay in this world. We may have the opportunity of seeing another sunrise, another sunset, or another rainbow. We may have the opportunity of seeing a caterpillar break out of its cacoon and turn into a butterfly. Some of us will have the opportunity to experience marriage life and having a child or children. We see them grow up in stages.

Unfortunately, some of us will only have another second, another minute, another hour, another day, or another year to live with our disease. One thing we must remember is the fight that we gave to live in order to die. We are now been given the opportunity to give back and fight to be heard, because our next generation will struggle with the same battle and it will only get worse before it gets better.

I behoove all of you to speak out about what's going on with you instead of being silent. We must be there for each other and provide encouragement to press on.

We have a lot to be thankful for. Say hello to one another when you sign on and never goodbye...A very close friend of mine viewed my bio on ISN and commented saying, "I think this is good. This means you are taking a proactive roll in your fight with your disease. This makes all the difference in the world." I was delighted to have received that comment from him. Yes, I have decided to take a proactive roll with fighting my disease. We all should continue to do the same. There are more people like us out here in this world that we need to find a way to reach out to. If anyone has any ideas, I'm more the welcome to hearing them. I'm taking some time to write my personal story and will post it soon.

Thanks for listening. Looking to hearing from all of you soon. :)
Michelle C. Hunter
ISN Book P.R. Coordinator for the U.S.
International Scleroderma Network

#2 Steve

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Posted 21 October 2006 - 09:00 PM

Hi Michelle, it's great to hear from you and look forward to reading your personal story, especially if it is as positive as your opening message.
I see you have had 50 people view your message, but no replies, so just thought I'd pipe in and say Hi, and look forward to more uplifting posts.
Take Care,

Steve Dickson
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International Scleroderma Network (ISN)

#3 Lori-Scleroderma Spouse

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Posted 22 October 2006 - 12:29 PM

Michelle that was beautiful. Keep up the positive attitude.
Lori
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#4 debonair susie

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Posted 24 October 2006 - 10:29 AM

Hi Michelle,
I agree completely!... Reaching out is something I love to do, but to help others... if I possibly can. I know I can't "make better" another's physical pain, but I'll do what I can to help another feel better... emotionally. Helping others comes full circle...
Oh yeah... I can share some of what I've tried that has helped me with my ailments... maybe it might help...or maybe not. The important thing is being concerned and caring for others.
(BTW... since I've been a member, many of my Sclero cyber family have extended a hand to help me and boy oh boy... is that comforting :)

Big Hugs, Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#5 Beanpole

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Posted 24 October 2006 - 03:10 PM

Hi Steve, Lori and Susie!

Thanks for the warm welcome...I'm glad that I have been given another extended family in all of you. I hope that everyone is doing as well as to be expected, if not, feel better soon. Stay positive and look on the bright side, we're still alive! ;)

Lv,
Michelle
Michelle C. Hunter
ISN Book P.R. Coordinator for the U.S.
International Scleroderma Network