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Parents' perception of self-advocacy of children with myositis: an anonymous online survey.


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#1 CraigR

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Posted 23 June 2011 - 10:19 PM

Parents' perception of self-advocacy of children with myositis: an anonymous online survey. We identified deficiencies in the health care experiences of families as pertain to knowledge, self-advocacy, policy, and vocational readiness. Moreover, as children with complex medical issues grow up, parents attribute less self-advocacy to their children's level of independence. James D Katz. Pediatric Rheumatology 2011, 9:10. (Also see: Myositis)

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