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Scleroderma


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10 replies to this topic

#1 Drew

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Posted 28 June 2011 - 09:05 PM

Has anyone ever had or still has numbness in their face as a result of scleroderma?

It's been with me for 8 months now. Will it ever go away?

#2 Jeannie McClelland

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Posted 29 June 2011 - 09:10 AM

Hi Drew,

Welcome to the Forum!

You don't say whether or not you have skin tightening on your face in the area where you are experiencing the numbness. If that's the case, I'm guessing (bear in mind I'm not a doctor and am not even currently certified in First Aid/CPR) that if/when the skin softens in that area, the numbness would ease off too. Are you sure it is due to scleroderma? There are a lot of things that can cause numbness in areas on the face. It might be worth investigating further.

I hope we'll see you around the Forum often, it's always nice to see another new member from Australia.

Best wishes,
Jeannie McClelland
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#3 Sweet

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Posted 29 June 2011 - 09:34 AM

Hi Drew!

Just wanted to add my warm welcome. I'm unsure as to the answer for your question, sorry.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#4 debonair susie

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Posted 29 June 2011 - 10:15 AM

Hi Drew,

It's nice to meet you! So glad you have joined us in order to gain information, empower yourself, as well as become your own advocate.

I have a numbness on the right side of my face, due to the preparation for a dental procedure, not as a result of Scleroderma.

I am guessing that the dentist inadvertently injected novacaine into a facial nerve that he intended for the area he was going to work on in my mouth. This particular numbness has never gone away and that was 10 years ago.

In your case, however, I'm unable to tell you the reason for its origin. Your doctor may be able to answer your question or refer you to someone, should it be in a troublesome location of your face.

At any rate, please keep us posted?
Special Hugs,

Susie Kraft
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#5 Shelley Ensz

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Posted 29 June 2011 - 10:26 AM

Hi Drew,

Welcome to Sclero Forums! I'm very glad you joined and hope we get to know you better, too.

What does your scleroderma expert say about your facial numbness? Do they attribute it to skin tightening, TMJ, a stroke, (etc.)?

Here are some welcoming hugs for you.
:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#6 Joelf

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Posted 29 June 2011 - 11:57 AM

Hi Drew,

Welcome to these friendly and helpful forums!

Sorry to hear that you're experiencing numbness in your face; it must be very distressing. Like Jeannie, I'm not a doctor either although I do have a current first aid certificate (that's really more use for things like broken legs and heart attacks though!! ;) :lol: ) so I can't really advise you about the reason for the numbness in your face. I've included a link here for you on Facial Involvement which I hope will be interesting to you.

In view of the fact that the numbness has persisted for such a long time I think it would be worth discussing it with your doctor/rheumatologist to see if he can suggest anything to alleviate the problem.

Do keep posting and let us get to know you. :emoticons-group-hug:

Jo Frowde
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#7 Amanda Thorpe

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Posted 29 June 2011 - 03:22 PM

Hello Drew

Welcome to the forums! Can't help with the facial numbness :emoticon-dont-know: but wanted to give you a welcome and hope that you post often.

Take care.
Amanda Thorpe
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#8 Drew

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Posted 30 July 2011 - 07:48 PM

Hi Jeannie. Thanks for your reply. I have no skin tightening at all. The numbness started before my digital ulcers . My doctor (rheumatologist) says he has had one patient with this before.My tongue and teeth are numb as well. Makes shaving, brushing teeth and eating hard as well.He has me on prednisone as a trial,but its not helping at all with either the numbness or joint pain. Look forward to hearing back from you , cheers ..

#9 Jeannie McClelland

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Posted 30 July 2011 - 08:02 PM

Hi Drew,

I can just bet shaving, brushing your teeth and eating are difficult with the numbness. When ever I have had novacaine at the dentist, I usually manage to chew the inside of my cheeks to ribbons before it wears off. :(

Has anybody suggested you have a neurological consult? Sounds like something might be going on with a nerve or two. It might be worth asking your doctor about.

I hope you're having a mild winter and keeping well otherwise.

Cheery Bye!
Jeannie McClelland
(Retired) ISN Director of Support Services
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#10 debonair susie

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Posted 31 July 2011 - 03:35 PM

Hi Drew,

I'm in agreement with Jeannie, in that a visit with a neurologist might be something you may want to consider.

As I mentioned earlier, I can truly empathize with your circumstances.

Please keep us posted!
Special Hugs,

Susie Kraft
ISN Support Specialist
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International Scleroderma Network (ISN)

#11 Sweet

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Posted 01 August 2011 - 11:58 AM

Hi Drew!

Let me add my warm welcome to you! :flowers:
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)