Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Intravenous Steroids

  • Please log in to reply
3 replies to this topic

#1 scampie5


    Silver Member

  • Members
  • PipPipPipPip
  • 157 posts

Posted 11 July 2011 - 01:24 PM

Hi Everyone,

I had my second steroid I.V. today and have to say they are working. After the first one I had lots of energy and felt well. My breathing was better I'm awake longer. They are slow release but work straight away. The last time my sats were 94 then went to 96; this time my sats went to 97 so very good and hopefully will continue to climb. I have one more on 25th of July. Then I will go and see specalist. I now see a lung specalist as well as a sclero one. It takes about two hours in a recliner chair, with tea and food given free of charge. Very friendly nurses and other patients having blood transfusions and chemo. It's such a nice atmosphere. I'm looking forward to being able to do things this week but I do still rest and not overdo it.



#2 Buttons


    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 606 posts
  • Location:UK

Posted 12 July 2011 - 06:54 AM

Lynn, it's good to hear that the steroids are making such a difference to you.


#3 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,909 posts
  • Location:West Sussex

Posted 12 July 2011 - 08:51 AM

Hi Lynn,

I'm very pleased to hear that you're feeling so much better after the infusion of IV steroids.

May the improvement continue indefinately!! :emoticons-line-dance:
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#4 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,283 posts
  • Location:Minnesota

Posted 12 July 2011 - 08:54 AM

Hi Lynn,

I'm happy that you are feeling better with your I.V. steroid treatment, and send lots of warm hugs and get well wishes to you.

As it happens, every time the topic of steroids is brought up, we need to try to remember to post warnings about their use in scleroderma patients. I am sure your doctors are most likely aware of this and have discussed all these issues with you prior to your treatment, so this is just for other readers who may get the great idea to push hard for steroids in hopes they will feel better.

Here is our standard warning on prednisone for scleroderma patients --

Corticosteroids strongly increase the short-term risk of developing scleroderma renal crisis!

Glucocorticoids are any of a group of steroid hormones, such as cortisone, that are produced by the adrenal cortex and are involved in carbohydrate, protein, and fat metabolism. Glucocorticoids have anti-inflammatory properties. They can be prescribed to dampen or stop the chronic inflammatory chain of events. Depending on the particular glucocorticoid that is used, inflammation can be affected at different points in the inflammatory pathway.

Glucocorticoids and steroids should never be stopped suddenly. Drug dosage must be tapered over time in order to allow the adrenal cortex to start producing the hormones that have been replaced by the drug. Always follow your doctor's tapering schedule when coming off these drugs.

Corticosteroids (such as prednisone) strongly increase the short-term risk of developing scleroderma renal crisis (kidney failure). It also causes a 70 percent increased risk of developing pneumonia. It is crucial to avoid corticosteroids in patients with systemic scleroderma.

Read more on additional warnings on sclero.org at Glucocorticoids, Steroids (Prednisone) and Scleroderma
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.