Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Surgery Date


  • Please log in to reply
11 replies to this topic

#1 Sandy B

Sandy B

    Silver Member

  • Members
  • PipPipPipPip
  • 113 posts
  • Location:Abingdon, Oxfordshire, UK

Posted 03 August 2011 - 11:54 AM

Hi All,

Haven't been around for a few weeks, had my first lot of chemo on 30th June and ended up in hospital a week later for ten days having had a severe reaction to the chemotherapy. I'm fine now, but was really poorly at the time. The swelling in my legs and feet which I experienced while I was in hospital has aggravated the scleroderma which is now active in my feet and ankles, which are quite tight and painful. I have lost most of my hair, so have shaved it off, which is no great deal to me, saves on washing, drying and straightening all the time!!! Still feel quite fatigued so have to try hard not to over do it which is very difficult at the moment as I have just bought a mobile home and it needs decorating and I just want to get stuck in.

Because of the adverse reaction, the oncologist has decided that the second course of chemo at the same dose would be inappropriate and if she reduced it to 50% she couldn't guarantee it would be of any benefit to me or that I wouldn't react to the lower dose in the same way, so the second cycle has been abandoned and surgery has been brought forward to the 18th August.
I always had it in mind that the surgery would take place mid September, so being brought forward has thrown me in a bit of a tail spin.

I still feel very positive about the surgery and the outcome, but have to admit now it is not so far away I am a bit scared as it is major surgery and I will be out of action for quite a while. I don't do being out of action, it does not come easy to me, so not terribly happy about that, so will have to make do with supervising the decorating etc from my sick bed!!!

I hope you are all keeping as happy and healthy as you can and enjoying the lovely summer weather.

Sandy B

#2 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 03 August 2011 - 01:48 PM

Hello Sandy

Are you kidding? A woman who can shave their hair off and think it a good thing is a woman who can cope with anything...that's straight from where I live...at Vanity Lane! :lol: Think of it this way, it will be over sooner and you can get back home to life in Fast Lane! :lol:

Seriously though it must be hard being in hospital that long and having to have such radical procedures. I do hope you recover quickly.

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#3 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,616 posts
  • Location:West Sussex

Posted 03 August 2011 - 01:58 PM

Hi Sandy,

Thanks for updating us. I'm very sorry to hear what a rotten time you've had with the chemotherapy; but filled with admiration for your courage particularly over your shaven head!:bravo:

I shall be thinking of you on 18th August and hoping that you have a very successful outcome and recovery from your surgery. You'll have keep an eye on your family to make sure they do all the bits and bobs for you on your mobile home (from a purely supervisory capacity, of course! ;) :lol: )

:emoticons-group-hug:

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#4 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 03 August 2011 - 08:42 PM

I'll be thinking about you on the 18th too. It would be great if somebody could drop us a line to let us know how you are doing. Hopefully it will all go as smooth as silk!

I've had a couple friends who lost their hair to chemo. One of them always wore hers quite long - definitely in the 'big hair' category. We didn't realize just how pretty her face is and what knock-em-dead eyes she has until the hair was gone. She got so many compliments she's kept it pretty short ever since. Another one had been coloring hers for years and to be honest, the color didn't really suit her very well. Her silver lining was, well, silver! Her hair grew back the most gorgeous silver you'd ever want to see. I bet you are pretty too. You are pretty special to all of your sclero friends here in the forums.

Warm hugs and all good wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#5 Lynnie

Lynnie

    Silver Member

  • Members
  • PipPipPipPip
  • 173 posts
  • Location:UK HULL EAST YORKSHIRE

Posted 14 August 2011 - 05:22 PM

Hi Sandy,
:emoticons-group-hug:

I would like to wish along with everyone else that everything goes well with your surgery and a speedy recovery, we all may be in cyberland but my thoughts will be with you and your family on the 18th, and when you are back on your feet again please update us all, okay?

Until then warm and loving thoughts as you face the next stage
. :emoticon-hug:
Lynn

#6 miocean

miocean

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 14 August 2011 - 08:51 PM

Hi Sandy,
I understand your apprehension about surgery but your positive attitude will carry you through. Best of luck on the 18th!

:flowers: :flowers: :flowers: :flowers:

miocean

ISN Artist

#7 Deb1million

Deb1million

    Silver Member

  • Members
  • PipPipPipPip
  • 108 posts
  • Location:Maldon, Essex, UK

Posted 18 August 2011 - 05:03 PM

hi Sandy

Just wanted to add my good wishes for a speedy recovery from surgery and a great outcome.

We are all in there with you!
Your hair may even grow back straight - so you can ditch the straighteners!

tlc Debs

#8 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,616 posts
  • Location:West Sussex

Posted 19 August 2011 - 12:59 AM

Hi Sandy,

I was thinking of you yesterday and do hope that your surgery and everything went well. :flowers:

Do please let us know as soon as you feel able. :emoticons-group-hug:

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#9 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 19 August 2011 - 07:01 AM

Bundles of blossoms,
Heaps of warm hugs,
Wishing good wishes,
Sending you love!

:happy-dance:

Oh dear, I hope that didn't make you feel worse~ We're all thinking of you and hoping everything went well.
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#10 sherrytrifle

sherrytrifle

    Bronze Member

  • Members
  • PipPip
  • 21 posts
  • Location:UK

Posted 19 August 2011 - 10:49 AM

Sandy All the best. Your'e on the road to recovery :emoticon-congratulations:

#11 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 19 August 2011 - 10:57 AM

Holding you in my thoughts as well Sandy :emoticons-group-hug:

May your recovery be swift and your new home be decorated with love :)
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#12 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 20 August 2011 - 08:56 AM

Hello Sandy

I hope your operation went well and that you recover quickly. :flowers:

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)