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Happy! Going to see new rheumatologist!

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#1 amberjolie


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Posted 10 August 2011 - 08:41 PM

I'm happy today. My current rheumatologist originally said I had CREST (finger ulcers and positive ANA with nucleolar pattern), and then when I tested positive for Sjogren's (lip biopsy), he changed his diagnosis to Primary Sjogren's. Since then I've had some other symptoms going on that to me sounded more like CREST-type stuff, but the last time I saw him, he didn't change his tune, and really didn't have much for me to do/take/whatever (I've got massively painful joints right now).

Anyways, my hubby has a different rheumatologist for a different condition, and he had mentioned that I think it's very possible I have scleroderma (I have a shiny patch on my chest, my face and mouth are feeling tight and in fact my mouth seems to have some membranes or something at the back which to me looks like the skin is stretching, the tips of my fingers are pitted and my fingernail beds look really "weird"). Anyways, his rheumatologist said that he specializes in scleroderma, and if I send him my bloodwork which showed the positive ANA (which I can get my general practitioner to do), he'll have the receptionist book me in.

So I'm happy, because finally a scleroderma specialist can look at my symptoms and tell me if I'm just imagining things, or if it is scleroderma, and then can maybe help me better than the help I've been getting so far.


#2 Joelf


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Posted 11 August 2011 - 01:02 AM

Hi Amberjolie,

That's very good news that you're going to see a Scleroderma specialist! :emoticons-yes: It's much better to be treated by someone who knows thoroughly the ins and outs of this bizarre disease and hopefully can help you to feel better and give you some relief for your painful joints.

I'm doing the Sclero Happy Dance for you! :emoticons-line-dance:
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