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Result of endoscopy


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#1 fragiledancer2

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Posted 11 August 2011 - 03:45 PM

Hi Everyone,

I had my endoscopy finally and have not yet spoken to the doctor, but I got a prelim printout.

I have had awful reflux despite meds. So, my esophagus is laden with candida, I have zero motility and mild GAVE or watermelon stomach; no strictures though.

I should have been referred to a gastro long ago. Wondering if anyone else had had the candida, and how it was treated, and whether the mild GAVE can still cause anemia. I would like to hear others experiences.

Thanks,

#2 Joelf

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Posted 12 August 2011 - 01:36 AM

Hi Fragiledancer,

I can't advise you from my own experience as thankfully I haven't had the gut problems that you describe. However, a good friend of mine has had the same symptoms of bacterial overgrowth and was on course after course of antibiotics. She helped the condition a lot though, by cutting down on the amount of fibre, vegetables and fruit (and sadly chocolate! wink.gif ) she was eating and now she's found the amounts her gut can tolerate without setting off her symptoms again.

I've included a link to [url='"http://www.sclero.org/scleroderma/symptoms/gi/watermelon-stomach.html"%5DGAVE aka Watermelon Stomach%5B/url%5D which I do hope will be helpful to you. I know some of our members have had successful %5Burl="http://www.sclero.org/scleroderma/symptoms/gi/watermelon-stomach.html#treatment"%5Dsurgery%5B/url%5D and I'm sure they'll be along to give you some first hand information.

Hopefully, you can now be referred to a gastrointestinal specialist who can advise you and make you feel a lot more comfortable.


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#3 Chopper

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Posted 12 August 2011 - 09:40 AM

Hi! I have GI issues, but I don't have experience with those things. I've read about watermelon stomach and I hope you're able to find treatment to keep it mild. I fear it because of reading it can lead to blood loss and I never want to face a doctor telling me he wants to give me a blood transfusion! He wouldn't be happy with my answer! I have gastritis and I've wondered if it will ever 'lead' into GAVE, or if it's two separate conditions. Since I have gastroparesis I have to avoid the things that Jo mentioned in her post, so I hope that means it will help me avoid the candida issue, and that it can be of help to you too! I blog recipes for that type of diet if you ever need ideas for meals, just message me!

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#4 Shelley Ensz

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Posted 12 August 2011 - 04:17 PM

Hi Fragiledancer,

Oh my, I'm sorry there were so many findings from your endoscopy. That's an awful lot to process at once, isn't it.

Do you have mild anemia already, is that why you're asking? It does cause blood loss, which can lead to anemia, so if you do have both, it would make sense. I'll be curious to hear your doctor's evaluation and treatment plan for it all.

Here are some warm hugs, just for you.
:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 Angie

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Posted 13 August 2011 - 06:30 PM

Hi,

Glad to hear that you were able to have an endoscopy and find out what is going on. During my first two years with scleroderma, I was diagnosed with "watermelon stomach" (GAVE syndrome). Fortunately my GI doctor was treating another scleroderma patient for this and knew about it. Unfortunately at the time, my insurance company would not allow my GI doctor to do a second endoscopy even though my hemoglobin was down to 7! Due to the problem with my insurance, I did have to have a couple of blood transfusions ... and my GI doctor did several endoscopic argon laser treatments over the course of several months. Of and on I have had to have iron shots and infusions due to chronic GI bleeds. I don't want to jinx myself, but right now I am doing okay. In April I had an endoscopy which identified polyps (which were removed/biopsied/and okay) in my esphogus and stomach. My reflux was under controll until Nexium became cost prohibitive with my current insurance (medicare/AARP supplement; my cost for 3 months is $400+, with $1100 going toward the donut hole). Currently I am taking a generic prilosec which is not doing anything to control my reflux. I will be talking to my GI doctor in a couple of weeks about ordering Nexium from Canada online. I'm not sure what else to do. Please keep us posted. Feel free to email me privately if you need more info. Take good care!

Angie

#6 fragiledancer2

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Posted 14 August 2011 - 10:57 AM

Thanks all! I will be seeing my gastroenterologist to talk all this over. If it turns out I have Celiac disease (he biopsied for that), what will I eat, between Celiac, reflux, and not breaking down fibrous foods?! I already am quite thin and I also am chemically sensitive with tons of allergies. If I get put on long term antibiotics I probably won't be able to tolerate them. Hopefully the gastro will be smart enough to find a reasonable treatment plan.

#7 debonair susie

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Posted 15 August 2011 - 10:56 AM

Hi fragile,

I just wanted to let you know you are in my thoughts as you await more information to help you with
your issues at hand.

:emoticon-hug:
Special Hugs,

Susie Kraft
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#8 Chopper

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Posted 15 August 2011 - 11:13 AM

Lean meats (fishes chicken beef pork crabmeat turkey), rices, grits, any potatoes (peeled and cooked), root veggies (peeled and cooked), canned fruits like peaches and pears and mangoes, applesauce, bananas, fruit smoothies, gluten free pasta, bake gluten free muffins and rolls and freeze them, rice crackers with almond butter, low-fat chicken - tuna - ham - or egg salads with gluten-free bread or crackers. I follow this diet. Message me for recipes.

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#9 debonair susie

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Posted 15 August 2011 - 11:22 AM

Yum, Chopper! :emoticons-thankyou: for the recipes; I'm sure these will be helpful
for many of us with issues such as yours.

You're a peach ;)
Special Hugs,

Susie Kraft
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#10 Sweet

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Posted 15 August 2011 - 02:17 PM

Hello Fragiledancer.

I'm sorry to hear about your results. One day at a time, and you're in my thoughts. :flowers:
Warm and gentle hugs,

Pamela
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#11 fragiledancer2

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Posted 15 August 2011 - 02:26 PM

Hi All,

Thanks for your support!

So, no celiac disease -- hurrah! -- I can sleep in a bed of whole wheat bread! A slightly inflamed esophaugus, Candida in esophagus -- Diflucan for that. NO bacterial overgrowth -- I wonder if my acidopholous helped that. He told me because I was on immunosuppressants and a small dose of prednisone I should not take it, so I have stopped. Any of you heard that before? Off to the bread shop!

Shirl

#12 Shelley Ensz

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Posted 15 August 2011 - 03:04 PM

Hi Shirl,

Thanks for letting us know the results of your endoscopy.

I hadn't heard of issues with acidophilus and immunosuppression before, but I found this on About.com, "People who are immunosuppressed should seek medical advice before using probiotics. It is possible that the probiotic itself may cause a serious infection. One death was reportedly linked to probiotic use in a person taking immunosuppressant medication."

So, you sought medical advice, and you received the answer that applies to you. For others, I just want to mention that we can't take one person's doctor's advice for their particular combination of illness and circumstances, and automatically apply it to our own case. We also need to consult our own doctors about the same issue.

For example, my husband is very immunosuppressed and takes prednisone daily plus several antibiotics for life (because he had a lung transplant), and he eats some yogurt with live cultures every day to help prevent bacterial overgrowth. But he does this under his doctor's care and supervision; and that doesn't mean it is right for all transplant patients, either. It just goes to show that there are exceptions to every rule.

Enjoy your trip to the bread shop, Shirl. It's always a happy day to not have Celiac Disease -- especially if you aren't gluten sensitive, as well. I'll do the Sclero Happy Dance for you!
:emoticon-congratulations:

:emoticons-line-dance:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#13 Chopper

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Posted 15 August 2011 - 08:15 PM

Yay, no celiac! How fortunate! Glad you're on top of things and getting answers! :emoticons-line-dance:

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#14 debonair susie

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Posted 19 August 2011 - 11:06 AM

Hi Shirl!

I'm really happy for you, on the Celiac front! There are just some things in life a Gal just doesn't like to give up :emoticons-line-dance:

Keep on Keepin' On! ;)
Special Hugs,

Susie Kraft
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