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Hearing Loss and Tinnitus


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#21 Amanda Thorpe

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Posted 22 August 2011 - 01:37 PM

Hello "G"

Yes it is possible to embrace the madness! :lol:

I thought your comment "...it is extra hard when the problem is actually in the 'engine room' !! " very interesting. I was a migraine sufferer for years, particularly badly for the first two years that I had scleroderma, and the fact that the pain was "in the engine room" made it harder to try and content with. In those first two years I would actually have elected to be rid of the migraines in preference to the scleroderma if I could have chosen to be rid of only one ailment. Yep, they really were that bad.

Be encouraged that we can learn how to function with anything, not just despite but with delight. I reckon that if we can live well with scleroderma we can live well with anything. Maybe finding a tinnitus forum might be helpful, I assume there are some and they may have insider tips on how to deal with it.

Take care.
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#22 georgie1111

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Posted 22 August 2011 - 02:26 PM

Hi Amanda,

Yes I have no problems imagining why you would choose to be free of migraines over sclero!! I'm sure anyone who has had a migraine would say the same.

I manage all aches and pains caused by sclero not with pain meds but with visulisations (could almost say self hypnosis) and I get great results, but I have never been able to master self help via visualisations when the symptoms are in the head area, so my tinnitus has always won the battle between me coping and not coping and unfortunately there is no magic pill you can take to manage it so I have been a 'victim of tinnitus' (physically, mentally and emotionally) since it started a year ago. But after talking with folks here it truly has empowered me to try harder with the 'mind power' as it really hit home that with tinnitus there are only two choices; allow it to wear you down and drown in the emotional cess pool of agitation and frustration or mentally rise up to the challange, acknowledge it, accept it won't go away, embrace it , then let it go , learning that and knowing others have done it has truly changed my attitude and that change of attitude is, as I see it, the first step to managing tinnitus; for the first time I feel like I am now in control of it not the other way around. What a great idea to look for a tinnitus forum!! I've learned some more valuable info; thanks Amanda. "G"

#23 georgie1111

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Posted 30 August 2011 - 02:54 PM

Just thought I would tell you how the story of hearing aides /tinnitus unravelled ....

I picked up my hearing aids from the technician who fixed them I noticed he put new pods on them eeeeeek ! I told him I didn't want the pods on that they are intolerable and he just said not a problem we can put mini pods on them; he came back with these tiny little pods soooo small but are pod shaped (by the way they are referred to as domes ) and they are terrific, small enough not to give you that 'plugged up' feeling but enough to keep em still; I was so thrilled. So I am now a permanent wearer of hearing aids, I forgot how noisy the world can be, I can now even hear the clocks ticking lol everything I hear sounds so crisp and clear it's wonderful. The best news is it did drop the tinnitus levels to a much more tolerable level; where it's at now I can live with it; can't tell you what a relief it has been. I did go to a tinnitus forum and learned a great deal from that site, all the do's and all the dont's and yes all the dont's I was doing !!! ..... I only have one struggle now ,as a renal patient when my urine output drops under 500 mils for 24 hours I start to get very symptomatic and I have to take lasix and unfortunatly even with hearing aids the buzzzzzzzzzzzzzzzzzzz sound in both ears cranks up a couple notches. My pc nurse said lasix are notorious for causing or aggravating tinnitus but I have to take them every now and then, but at least in between the times where I don't have to take the lasix I do have respite which is heavenly, so I am most grateful .... thanks ladies for guiding me thru that dark passage, I am just so thrilled and relieved to get some relief from the 24/7 sound of buzzzzzzzzzzzzzzzzzzzzzzzzz... "G" :thank-you:

#24 Amanda Thorpe

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Posted 30 August 2011 - 04:09 PM

Hello "G"

I am glad you have been able to sort out the hearing aid and as a bonus the tinnitus is better, long may it continue!

Take care.
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#25 Joelf

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Posted 31 August 2011 - 12:45 AM

Hi "G",

I'm so pleased that you've been able to have your hearing aid problems sorted out and you're getting some relief from the tinnitus. :emoticons-yes:

The difference must have opened up a whole new world for you! ;)

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#26 Shelley Ensz

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Posted 03 September 2011 - 09:25 AM

Georgie, I'm delighted that you have your hearing aids working again, at long last, and that it is all working out good for you!

:emoticon-congratulations:
I'd say it calls for a Sclero Happy Dance, and invite anyone and everyone to dance along with me!

:emoticons-line-dance:
Warm Hugs,

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The most important thing in the world to know about scleroderma is sclero.org.

#27 Joelf

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Posted 03 September 2011 - 10:13 AM

Indeed, Shelley.......I'm dancing The Sclero Happy Dance for you, Georgie!!

:emoticons-line-dance:

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#28 Jeannie McClelland

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Posted 03 September 2011 - 12:52 PM

Me too! :emoticons-line-dance: :emoticons-line-dance:
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#29 georgie1111

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Posted 03 September 2011 - 02:58 PM

Sclero Happy Dance!!

That !was just soooo cute, soooo funny. It sure put a smile on my dial! :VeryHappy:

Got an appointment next Wednesday to have the hearing aides tuned up, then after that I will tape them to my glasses and then I'm all done.
The thing that has astonished me most is that since being diagnosed with scleroderma , and as all the symptoms escalated and my health deteriorated, I just took all the changes in my stride.

Some ruffled my feathers more than others, but none of the health issues ever reduced me to tears, but that tinnitus did!

At the moment the high pitched buzz (on a scale from 1 to 10) would only rank as a 4 maybe. I can tolerate that but when I had that high pitched buzz at 8 or 9 level, and oh my 24/7, with no respite, I really was struggling. I was a mess!

So now with tinnitus under control I am one very happy and contented vegemite. My PC nurse also told me that the naprosyn I was taking was also know to aggravate tinnitus, so that has been ditched. Now all is well in OZ Land and I am happy to announce that I am in a much better frame of mind, so good in fact that I too can mentally join in the Happy Scleroderma Dance!

:emoticons-line-dance: :thank-you-2: :terrific: THANKS LADIES "g"

#30 Robyn Sims

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Posted 03 September 2011 - 06:14 PM

Hi Georgie

So pleased that you are now in a much better frame of mind, and doing the Happy Dance!!

We are so fortunate to have such wonderful friends posting with heaps of experience.

:emoticons-group-hug:

#31 debonair susie

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Posted 04 September 2011 - 08:27 AM

Woo Hoo!!! I LOVE to dance with all of you for Happy Reasons like this especially! :emoticons-line-dance:
Special Hugs,

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#32 Amanda Thorpe

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Posted 04 September 2011 - 01:43 PM

Happy dance...oh yeah!! :emoticons-line-dance: :emoticons-line-dance:
Amanda Thorpe
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#33 georgie1111

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Posted 04 September 2011 - 02:32 PM

You girls are just sooooo funny .... I love that sclero happy dance ! It just makes me smile ..... :emoticons-line-dance: You have all been so great, so supportive and so informative; what you have all taught me has LITERALLY been "life changing" :happy-day: ..... you're like medical dictionaries on legs !!! :lol:

I must admit I don't always understand the 'medical pages' as they're too technical for me to absorb; I learn more from reading all your posts where you translate everything in simple terms, so yes, Robyn was right in saying we are very lucky to have you girls in our corner ..... hugs "G"