Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Gareth update

  • Please log in to reply
27 replies to this topic

#21 Margaret


    Platinum Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,014 posts
  • Location:Pennsylvania

Posted 06 September 2011 - 06:38 PM

Hi Everyone,

It's been 3 weeks since Gareth's gallbladder was removed and the pain is gone. The stitches came out last week by the RN and we will finally talk to the surgeon the end of the month. I guess that's the way he does his post ops....one month later. In the meantime, I have the biopsy report that shows the serosa of the gallbladder had a spot that was hemorrhagic and showing non-specific chronic inflammation. The serosa is the outside of the gallbladder!

Also, for 2 months I was told that all his blood work was normal but finally recieved all those copies. His sed rate was up to 20 (4-10 is normal) and his C-Reactive protein was 8 (normal is 0 - 1.0). Both indicate inflammation.

I'm happy he's getting back to normal. Now we just have to get him in to the Immunologist and find out about these deficiencies.

Thank you all for your thoughts and advice. It's so much appreciated!

Take care, Everyone.


#22 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 920 posts
  • Location:NJ

Posted 06 September 2011 - 07:03 PM

I'm glad Gareth is pain free


ISN Artist

#23 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 06 September 2011 - 07:42 PM

Well "Mom" you are really on top of things! So glad to hear Gareth is on the "feel better" side of all of this, considering everything.

Keeping good thoughts for you both as you continue with getting him on the complete mend, Margaret.

Thank you for the update! :emoticons-group-hug:
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#24 judyt


    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 653 posts
  • Location:Auckland, New Zealand

Posted 06 September 2011 - 08:45 PM

Hi Margaret,
So pleased to hear Gareth is on the mend so to speak.

You have just backed up my theory that we should always remember to get a copy of test results to read at our leisure. Some practitioners say that they can interpret things better than we lay people can, but it doesn't hurt to be able to point out something we think is out of the normal range and ask questions.

When my Dad was my age!! (scary eh!) he started feeling unwell and it took about 2 years of him hounding his doctors for answers before they finally decided he had a cancer which by then was terminal. He got all his bloodwork results and kept pointing out that his ESR was abnormal but nobody could decide why. I know this sounds like a back to front argument because in the end the disease beat him, but he kept telling the family to always keep your own records of what is happening. I do that now, and as well, the opinion of medical people, here in NZ at least, is that the results are your property and you are entitled to them.

Good on you Mum for keeping on Gareth's case.

Best wishes from
Judy T

#25 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,910 posts
  • Location:West Sussex

Posted 07 September 2011 - 06:09 AM

Hi Margaret,

I'm so pleased that Gareth is feeling much better and not having the horrible pain.

It just shows that your instincts were right about the inflammation and hopefully you'll get a satisfactory outcome from his immunologist.

Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#26 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 07 September 2011 - 11:53 AM

Hello Margaret

I am glad Gareth's pain has gone! Funny thing to say about the blood test results when they weren't normal, your instincts were certainly right.

Take care and I'm glad Gareth has gone from :sickly: to :woohoo: !
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#27 Sweet


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,895 posts

Posted 07 September 2011 - 05:42 PM

This is good to hear!
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#28 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,283 posts
  • Location:Minnesota

Posted 08 September 2011 - 09:00 AM

Hi Margaret,

I'm delighted that Gareth is doing so much better and that the issue is finally solved. He sure suffered a long time over it.

Is he good enough that we can do a Sclero Happy Dance over it? Well sure any improvement calls for a dance, right?

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.