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Anyone have Cervical Stenosis and Scleroderma?


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#1 JBG

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Posted 20 August 2011 - 06:05 PM

I have CREST, Lupus and asthma. This past week I was diagnosed with Cervical Stenosis. The neurologist said that it can be from an old injury, I'll be 50 in a couple of weeks, as well as from the scleroderma and Lupus. He is sending me to a neurosurgeon. I have an appointment with one this coming week. The neurologist said the stenosis is severe. I had MRIs taken of my spine. He and the radiologist both said it's not good.

Any advice is welcome.

Thanks.

#2 Joelf

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Posted 21 August 2011 - 06:08 AM

Hi JBG,

I'm very sorry to hear that you've been diagnosed with Cervical Stenosis on top of the other health problems that you're suffering with.

I'm afraid I can't offer you any first hand advice as I've never heard of Spinal Stenosis and it does sound very painful and unpleasant. I do hope the link I've included and also this other link to Cervical Stenosis will give you some information and help.

It's possible that we may have other members who have experienced this debilitating condition and if that's the case, I'm sure they'll be along with some helpful advice.

In the meantime, I do hope that you're able to get some relief and that your neurosurgeon can suggest a satisfactory course of treatment.

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#3 Jeannie McClelland

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Posted 21 August 2011 - 07:08 AM

Well, the another member would be me. :(

This past month or so I have been sent to two specialists. The first one ordered x-rays and then an MRI, which I have had, but not the follow-up appointment. The second one has ordered another MRI (tomorrow), a special CT with contrast, and venography (both Tuesday). After his follow-up, I go back to the first fellow. You and I can compare notes as we go on. Here's wishing us both luck!

Pain in the neck, isn't it? :P
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#4 Amanda Thorpe

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Posted 21 August 2011 - 08:04 AM

JBG and Jeannie, sorry that you have this to contend with in addition to...everything else! Sometimes you must feel like dart boards...here comes another dart no disease! :lol:

Take care.
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#5 Buttons

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Posted 21 August 2011 - 10:45 AM

I had surgery on my neck last December due to disc degeneration putting pressure on my spinal column along with the growth of bony spurs into to the spinal canal. I had a CT mylogram to help with diagnosis because I couldn't have an MRI scan. Things have improved somewhat since the operation which has relieved pressure on my spinal cord & root nerves, I still get some issues but the neurosurgeon said it was a matter of stopping things from getting worse - worst case scenario would me ending up paralysed due to the pressure. It was all very scary at the time but glad I had it done because of the relief of some of the numbness & tingling / electric shock type pain I used to get from it.

I hope things go well for you both. Yet another thing to deal with.

Take Care Buttons

#6 debonair susie

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Posted 21 August 2011 - 11:29 AM

Hi JBG,

Not a nice way to start out your 5th decade of life, to be sure :o

However, it sounds as though the doctors are on task and I'll sure keep you in my thoughts, with the hope of the pain being alleviated.

Jeannie, I think you've had QUITE enough to deal with, as well. Please keep us posted on the findings?

Buttons, I'm so happy to read that your procedure turned out as well as it did. I can appreciate how you must have felt prior, though.
Thank you for posting this on this particular thread.
Special Hugs,

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#7 JBG

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Posted 21 August 2011 - 04:22 PM

Thanks so much for your replies. I really do appreciate it.

Buttons - I was told the same thing as you. If I don't have the surgery, I can become paralyzed from the neck down. I also have the same symptoms, eg. numbness, tingling, etc.

What a year it has been for me. I also contracted Valley Fever. What's next?

#8 JBG

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Posted 22 August 2011 - 11:07 AM

Jeannie - Please let us know how you make out with your tests. I see the neurosurgeon on Thursday. All the best to you.

#9 Buttons

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Posted 23 August 2011 - 05:01 AM

Hi JBG,do let us know how you get on with the neurosurgeon.

#10 Jeannie McClelland

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Posted 23 August 2011 - 05:48 AM

Thanks, JGB. I'll keep you in my thoughts today. I should have the first of the 2 follow-ups on 01SEP, so I won't have to wait too long for those results, a good thing 'cause I am not a patient person.
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#11 Jeannie McClelland

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Posted 23 August 2011 - 09:42 PM

Interesting day, not all of it fun. The bilateral venography requires IV contrast material to be given in each arm simultaneously. Fine except one vein after another blew out and each time that happened they had to start the two different position series all over again. You ought to see my arms. The radiologist said the veins looked good, no clots, and, I think no compression. Then off for the CT and more contrast medium. The fellow doing that one asked when I was having the surgery. Huh? Say what?

Next fun thing was finding my car in the huge parking facility. (Credit given for exercise today :lol:)

Last but not least, after a nap, I woke up with a bright red lumpy rash on my face. Boy am I glad they they pre-medicate me before giving me any contrast medium, could have been nasty.

Oh yeah, one more thing - no caffeine till tomorrow. No cuppas is hard to take...
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#12 Joelf

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Posted 24 August 2011 - 01:07 AM

Oh Jeannie!

Still at least that part of the examination is over; perhaps you could start a new fashion with purple (bruised) arms and a bright red lumpy face to match!! :emoticon-dont-know: :lol:

I'm glad I'm not the only one who scours the entire car park for my car thinking it's been stolen ("I'm sure I left it here somewhere!") only to remember I'm about two levels out! :rolleyes: :lol:

Hopefully you'll soon be able to drown your sorrows with a cup of tea! ;)

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#13 Deb1million

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Posted 24 August 2011 - 02:32 PM

Hi All,

I'd never heard if this until three weeks ago, too! I've also just been told I have cervical stenosis which is causing my arms to go so numb I can't drive more than a few minutes before my arms are totally numb. My neck is so painful all the time it gives me a headache.

I've been getting strange wet leg sensations when my leg is dry. It has also affecting my balance and other things.

I've been seeing my neurologist for monitoring of a syrinx (hernia/cyst) inside my spinal cord. This is separate from the stenosis. (Just my luck!)

He thinks surgery on the syrinx is only an option if I get much worse, as the scar tissue could make the cord compression worse, and I'm high risk for non critical surgery due to other overlapping bits and bobs such as diffuse systemic scleroderma, lupus, sarcoidosis, autoimmune hepatitis and type 1 diabetes (among other stuff).


I love the way everyone on here is so cheerful and can look on the bright side. :emoticons-group-hug: Thank you guys! :VeryHappy:

Good luck to everyone else dealing with this pain in the neck we could do without!

Deb

#14 Jeannie McClelland

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Posted 24 August 2011 - 02:33 PM

Hi Zeny,

I'm sorry you've been having more problems. It seems like it is always something, doesn't it?

To answer your question, cervical spondylosis is where there is more than normal wear and tear on the disks of cartilage and the vertebrae in your neck. Cervical stenosis is where either the canal for the spinal cord itself or an opening for a nerve to pass through is narrowed. (It's usually described as cervical spinal stenosis in order to differentiate between it and stenosis of the cervix in women.) It's my understanding that cervical sponylosis can be the cause of cervical stenosis because the disks act as a pad and a spacer between the vertebrae. When they have degenerated past a certain point, the space is narrowed and hey presto! you have a stenosis.

Hope you soon feel a lot better!
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#15 Jeannie McClelland

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Posted 24 August 2011 - 02:42 PM

Hi Deb,

It sounds like you are having way too much fun! :lol: I think having the syrinx would probably frighten me the most. It sounds dreadful.

It's funny how when a person gets something nobody has ever heard of, there is suddenly hordes of people who either have it or know someone who does. Kind of like scleroderma, eh?

Will you keep us all up to date with what you and your doctors decide to do? :emoticons-i-care: Well, you know, we all care!

Warm hugs and best wishes,
Jeannie McClelland
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#16 Amanda Thorpe

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Posted 24 August 2011 - 03:00 PM

Hello JBG

Don't ask "what next" as the question always gets answered and the answer is never nothing!! Speaking here from experience...

Hello Zeny

Sorry you have been having multiple health issues, it's no fun with one let alone more that one!

Hello Deb

Long time no hear! Sorry you have yet another health issue as well, I think it's fair to say you had enough already. I certainly hope that you are now taking it more easy and not caring for everybody else? The Scleroderma Society Essex group meets again on Saturday September 17th and it would be great to see you and hubby again.

Hello Jeannie

Oh my, I am sorry, I am sure "bruised and lumpy" weren't know side effects of your procedure! Hmm they are now!

Take care one and all.
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#17 Joelf

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Posted 24 August 2011 - 03:21 PM

Hi Zeny,

Oh, I am sorry to hear that you've been having so many health problems over the last few months. It does sound as if if you've really been suffering. :(

Perhaps now that you've found the cause you'll be able to have some effective treatment and start to feel better; I do hope so.

:emoticons-group-hug:

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#18 Joelf

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Posted 24 August 2011 - 03:27 PM

Hi Deb,

Sorry to hear you've been in the wars as well.

I'm intending to go to The Essex Group's meet so hopefully I might be able to see you and commiserate! :)

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#19 Amanda Thorpe

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Posted 25 August 2011 - 02:54 PM

Just give us some time to get used to this and then we will be back on our own two feet. Aren't we the tough ones?


I've been saying it for years! We sclerodermians are an exquisite bunch of people, up for anything with the ability to thrive, not just despite but with delight, whatever comes are way.

Many moons ago a doctor who ran a support group for people with rheumatoid arthritis wanted to join up with my scleroderma group because of our upbeat, determined attitude, because when together we laughed rather than complained. Isn't it amazing that we still have so much to offer to others?

Take care.
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#20 JBG

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Posted 26 August 2011 - 01:35 PM

An update from me... I went to the neurosurgeon yesterday. He said that I definitely need to have surgery. The cervical stenosis is very bad. Due to the swallowing problems that I have, I'm not a candidate for them to get to the spine from the front. Therefore, I need to have open back surgery. The surgeon said this type of surgery is more painful than if they went in through the front.

The surgery is scheduled for October 24th.

Thanks for all the replies.