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Anyone have Cervical Stenosis and Scleroderma?


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30 replies to this topic

#21 Sweet

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Posted 26 August 2011 - 02:21 PM

Wow, this is a heavy duty thread. I just want to pass out the biggest hugs to all of you, and let you know you're in my thoughts. :emoticons-group-hug:
Warm and gentle hugs,

Pamela
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#22 Buttons

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Posted 27 August 2011 - 10:10 AM

JBG,

I hope all goes well with the operation. My neurosurgeon said it would be more painful to go through the back of the neck rather than the front & he did say I may need further surgery which would have to be done that way (there was a small section he couldn't get to from the front), but I'm leaving that until it really needs doing.

Take Care

Buttons

#23 Joelf

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Posted 27 August 2011 - 10:20 AM

Hi JBG,

Sorry to hear that you are going to need surgery to sort out the problem with your neck.

Hopefully this will resolve the problem and you will then start to feel much better and more comfortable.

:emoticons-group-hug:

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#24 Jeannie McClelland

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Posted 27 August 2011 - 03:23 PM

Hi JGB,

I'm so sorry the neurology appointment turned out that way. Has the doctor given you any idea how long you will need to be in the hospital and what your recuperation period is likely to be? You know that we will all be cheering you on and holding you in our thoughts.

Warm hugs and my very best wishes,
Jeannie McClelland
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#25 JBG

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Posted 27 August 2011 - 06:02 PM

Buttons - My neurosurgeon told me the same thing. He said in my case I have no choice because of my swallowing problems.

Jeannie - Thanks so much!!
>> Has the doctor given you any idea how long you will need to be in the hospital
Up to 4 days.

>> what your recuperation period is likely to be?
Bad pain for 2 weeks and 6 weeks to feel decent.

#26 Amanda Thorpe

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Posted 27 August 2011 - 10:21 PM

Oh I am sorry JBG, that type of surgery sounds very daunting as does the recovery period. I hope you eventually get some relief as a result.

Take care and keep us informed please.
Amanda Thorpe
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#27 Shelley Ensz

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Posted 29 August 2011 - 12:33 PM

Hi JBG,

I'm sorry your surgery will be more involved but I'm glad they are taking your swallowing issues seriously, too, or else it would have made a bad situation even worse. I hope all goes well for your surgery, and am sending some warm hugs your way.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#28 JBG

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Posted 29 August 2011 - 06:26 PM

Thank you all so very much!!!

#29 Jeannie McClelland

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Posted 01 September 2011 - 01:09 PM

My word, we do collect doctor's, don't we? :P In August I got to add an orthopedic surgeon (shoulder), vascular surgeon, and today (not admitting it is already the first of September), orthopedic surgeon (cervical spine). Thoracic Outlet Syndrome has been confirmed, problems with the disks C4 to C7 confirmed and although the results from the special CT aren't in (only one doctor in the regions 'reads' those), the vascular guy wants to see me again in about 10 days. Still have to have the follow-up with the shoulder guy.

I think my husband may suspect I am seeing another man. Honey, says I, it's men, plural. :blush:
Jeannie McClelland
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#30 Shelley Ensz

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Posted 03 September 2011 - 08:11 AM

My goodness, Jeannie. You are collecting doctors at a rapid pace! I sure hope they come up with something helpful. Here's lots of warm hugs to tide you over.
:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#31 Jeannie McClelland

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Posted 03 September 2011 - 08:30 AM

Thanks Shelley, me too. Actually what I am hoping is that what ever they do will make me taller! :lol:

After having the doctor that was present for the venogram say the veins were okay, I was really disappointed that was only the case on one side. I guess that's why they usually don't give you any results on the day of the test. Oh well, could be a lot worse!
Jeannie McClelland
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