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Biomarker for Diffuse Scleroderma skin has been discovered!


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In Memory of Mary Dell Martin ("Bookworm")


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#1 Joelf

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Posted 25 August 2011 - 12:16 PM

We heartily thank the Family of Mary Dell Martin ("Bookworm" on Sclero Forums) and Robin Harper for their donation to tackle scleroderma, in loving memory of her. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. Please help us tackle scleroderma by donating now! 08/24/11. (Also see: Sclero Shop/Donate)

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
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ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#2 Sweet

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Posted 26 August 2011 - 02:23 PM

....OK I have tears. When did Bookworm pass away?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#3 Robin E

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Posted 29 August 2011 - 09:01 PM

On behalf of my mother, Mary Dell, also known as "Bookworm", and my family, I want to thank you for being such a fantastic source of support and information. Mom had scleroderma for so long, and yet she kept going, kept giving, exhibiting a special kind of bravery. Although we miss her terribly, we are so proud of her and her legacy of caring and compassion, integrity and courage. Mom was a published author, and an avid reader. She was a passionate defender of the underdog, and was known for her love of animals. She was beautiful, generous and kind. Mom was the best cook I know and was a food editor and caterer for many years. She was a night owl and the only one I could call at midnight or later! Some of our best talks were in the wee hours of the morning. She loved to sew and crochet and even when her hands were stiff she continued to crochet for all of us that she loved. She made cornbags that could be heated in the microwave and used to help relieve the stiffness of arthritis as well as the cold and numbness of Raynaud's. She was dedicated and devoted to her family and unselfishly gave her all to so many of our elderly family members. She was only 68 when she died, and there is no replacing her, but she lives on forever in our hearts and minds. She leaves behind her husband, 4 children and 16 grandchildren.

We are grateful she had the International Scleroderma Network and all of you to help her cope with and live with her disease.

#4 Jeannie McClelland

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Posted 29 August 2011 - 09:38 PM

Sweet, she died on June 11, 2011. She was one very special lady.
Jeannie McClelland
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#5 Shelley Ensz

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Posted 30 August 2011 - 08:42 AM

Hi Robin,

It was only a few days ago that we put it all together that Mary Dell Martin (your mom) was known and well loved as Bookworm on our forums. I had even hand painted a custom avatar just for her a few years ago. We kept on asking her to be an ISN Support Specialist and it was a great disappointment to her that her health took such a turn for the worse that she was unable to do that.

We are very honored to have you with us, and greatly appreciate your donation in her memory, as well. Here are many warm hugs, for you and your family alike.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 debonair susie

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Posted 30 August 2011 - 12:49 PM

I am saddened by this news as well, having not been aware.

Yes Robin, it is apparent she was a wonderful lady in all circles of her life, touching many with her kindnesses.

By your post, she left behind a very special and loving family, as well. Her time on earth was obviously well spent. May ALL of you (her family) know how much she impacted those of us who knew her through this forum, through her support, as she dealt with her own health.

With the peace she now must have, may you also feel the comfort and peace of knowing that.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#7 Sweet

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Posted 30 August 2011 - 03:09 PM

:( Special loves and hugs to her family.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#8 miocean

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Posted 30 August 2011 - 05:28 PM

To "Bookworms" family,

"Mary from Texas" and I joined the forum within a few days of each other. She was an inspiration to me and to many others. I am so saddened to hear of her passing. We were all very fortunate to have her contributions and insight into the issues that plague us. May you have special memories to treasure forever.

miocean

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#9 Robin E

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Posted 31 August 2011 - 07:34 PM

Dear Shelley, I wasn't sure how she signed in, but it is so nice to know because I can now enjoy reading some of her posts. The Avatar that you painted is so special! Mom was honored that she was asked to be a Support Specialist, but she had a cascade of health issues and hospitalizations in that same time frame The comments from friends here have touched my heart and given me great comfort. Mom also headed up a smoking cessation group and there has been a real outpouring of caring emails. I wish Mom was here to read them with me and see how special she was to so many.

Love, Robin

#10 Robin E

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Posted 31 August 2011 - 08:20 PM

Dear Pamela,

Thank you so much for caring and for the hugs :)

Love, Robin

#11 Robin E

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Posted 31 August 2011 - 08:23 PM

Yes, she was ~ thank you Jeannie.

#12 Robin E

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Posted 31 August 2011 - 08:27 PM

Dear Susie,

Thanks so much for this kind post. It is hard to be without Mom right now, but reading these words is comforting and Mom would be honored.

Love,

Robin

#13 Robin E

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Posted 31 August 2011 - 08:32 PM

Dear Miocean,

Thank you for your kind words about my mom. In some ways I am still in shock ~ it is still so hard to believe she is gone. She would feel so happy to know that she helped make such a positive difference.

Love,

Robin

#14 barefut

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Posted 03 September 2011 - 10:31 AM

Robin,

I remember your mom and the warm support she gave. I am so sorry for your loss.

Peace be with you and your family

#15 Robin E

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Posted 03 September 2011 - 08:29 PM

Dear Barefut,
Thank you for remembering Mom and for caring enough to write. :)

Love,

Robin

#16 Joelf

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Posted 08 September 2011 - 01:16 AM

We thank Janet Paulmenn for her donation to tackle scleroderma, in loving memory of Mary Dell Martin ("Bookworm" on Sclero Forums). The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We all desperately need more research, support, education and awareness for scleroderma and related illnesses. Please help us tackle scleroderma by donating now! 09/06/11. (Also see: Sclero Shop/Donate)

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)