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Esophageal Manometry

esophageal manometry difficulty swallowing scleroderma

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#1 Jalee85

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Posted 15 September 2011 - 01:00 PM

Has anyone else had an Esophageal Manometry? If you have, what did your results show?

The nurse practitioner who did the test said that a few of my swallows showed a scleroderma type of pattern but then the others were all normal.

I'm just trying to think of what would make it not allow me to swallow at some points and yet be fine with the next swallow. She thought maybe my muscle in the esophagus was getting used to the tube; however there were times when there was a normal swallow and then an abnormal one.

Jalee

#2 Joelf

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Posted 15 September 2011 - 03:11 PM

Hi Jalee,

I've included a link here about the abnormal propulsion of food and also a thread here on Esophegeal Manometry where some of our members' detail their results which I hope you'll find interesting and informative.

Thankfully, I haven't experienced either the procedure or the swallowing problem that you describe, but it sounds very uncomfortable and unpleasant and I'm sorry that you've been suffering from it. I expect some of the other members will be along to give you some more personal advice. Perhaps you could to go back to your nurse practitioner or your doctor and ask them to explain the results of your test to you in a little more detail.

:emoticons-group-hug:

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#3 Jalee85

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Posted 15 September 2011 - 03:22 PM

Thanks, I will check these out!

It was very uncomfortable but if helps me find answers I will be happy to know for sure what is wrong. I looked online at mine and when it was
abnormal it was definitely a scleroderma pattern. But the rest of the times it was normal. Weird?

Jalee

#4 Jalee85

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Posted 16 September 2011 - 01:53 PM

I was hoping I could get the test result today but the nurse didn't send the doctor the report until she finishes up the 24hr PH so I probably can't get a copy until Monday.

Jalee

#5 Jalee85

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Posted 18 September 2011 - 10:03 AM

Anybody else have Esophageal Manometry test? I'm slightly surprised that no one else has come and commented on it. Although the test was quite unpleasant so I hope not too many of you had to go through it.

Jalee

#6 Shelley Ensz

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Posted 18 September 2011 - 11:39 AM

Hi Jalee,

I think there would be more responses, except that it's the weekend and everyone is still trying to figure out which buttons to press since the forums upgrade.

You've seem to have taken to it all like a duck to the water, though! :yes:

I've sure had esophageal manometry and I'd bet most of us around here have. I'm just stumped on the part of trying to explain any your results. It drives me somewhat batty when I get enough results to know there's a problem but not enough results to know exactly what's what. So I do know what you are going through! It's just that your doctor is the only one who can explain the results when it comes to your own particular circumstances.

There are many different types of esophageal patterns; it's not an either-or situation, so the results really need to be interpreted by a professional. Sometimes the results can go a long ways toward helping to diagnose scleroderma, and other times they only seem to confuse the issue.

Hopefully in your case it will help provide some clarity. It is so hard not to get our hopes up, one way or another, regarding test results, isn't it?

I'm sending a ton of good wishes your way in hopes things turn out okay or at least the way you'd like.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#7 judyt

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Posted 20 September 2011 - 04:12 PM

Hi Jalee,

I have had both oesophageal and rectal manometry. I can't remember the oesophageal being distressing at all. As far as the mechanics of the procedure go, I have to think they used a nasal tube, because I have such a finely tuned gag reflux that I can't imagine forgetting the whole thing!

I can't remember how the results were listed but I do know that the doctor who did the measurements just chatted away to me saying things like "no response there" and "still no response" etc.

The rectal manometry was done by the same doctor and this time I have a fairly comprehensive rundown of figures and volumes etc. The upshot of that one is that my rectal storage volume is about 2 tablespoons! No wonder I am forever at the toilet!

I should look up in my files and see what my results are but we are staying at our daughter's this week while I recover from 9 days of on and off diarrhea and a hospital visit. Will try to remember to look things up when I get home again.

Judy T

P.S. This post got lost in the upgrade process a few days ago. Jo has just helped me to re-post it. Woohoo I did it. Thanks, Jo!)

#8 marsha

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Posted 20 September 2011 - 08:00 PM

Are you wide awake for this test?? I think I saw it on Dr. Oz this morning?

#9 czecher

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Posted 23 September 2011 - 09:09 AM

Good morning. I'm a new member here and first time poster. I live in Nova Scotia, Canada.

I've had two esophageal manometries. The first was in 1999, when I developed severe swallowing problems and pain. I had a lot of discomfort and couldn't finish the test, but enough data was recorded to diagnose me with achalasia. In hindsight, this was my first definitive sign of systemic sclerosis.

The second time I had an esophageal manometry was in 2006, just before I had a Hellers myotomy to help with my swallowing, because the previous dilations were unsuccessful.That one was not painful, just a bit uncomfortable. (A Hellers myotomy is a surgery to cut the muscles of the lower esophageal sphincter.)

The difference is that in '99, I was having esophageal spasms while having the manometry. By the time 2006 rolled around, I'd had two dilations, and I think my nerve integrity in my esophagus was compromised.

My food moves through my esophagus mostly by gravity. The peristaltic waves are weak and don't move my food with a wave-like action.The waves my esophagus produce are all of the same intensity and move without any coordination.

Hope this helps.

#10 Shelley Ensz

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Posted 23 September 2011 - 09:38 AM

Hello Czecher,

Welcome to Sclero Forums, it's nice to meet you. Here's a warm, welcoming hug.

:emoticons-group-hug:
Your explanation about esophageal manometry are very helpful, as well as your description of your esophageal surgery and issues. Thank you!
:thank-you:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#11 Joelf

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Posted 23 September 2011 - 10:47 AM

Hi Czecher,

Welcome to these forums!

I'm very sorry to hear that you've been plagued by so many unpleasant symptoms and are still suffering with Gastrointestinal problems. I've included a link to Heller Myotomy Versus Heller Myotomy With Dor Fundoplication for Achalasia which I hope you'll find interesting and informative.

I'm very pleased that you've found our forums and I'm looking forward to reading your posts.

:emoticons-group-hug:

Kind regards,

Jo Frowde
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#12 Amanda Thorpe

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Posted 23 September 2011 - 12:54 PM

Hello Czecher

Welcome to the forums! So I guessing that you have had scleroderma since around 1999 so well done for hanging in there all this time. Is it mainly gastro issues that you have?

Take care and keep posting.
Amanda Thorpe
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#13 czecher

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Posted 23 September 2011 - 06:10 PM

Hi all. Thanks for the warm welcome; and thanks to Joelf for the link to the myotomy article. I've had a Heller's with a Dor wrap. The reflux has been slowly worsening, so I'm back to having scopes and barium swallows done again. The scope I had done in April 2011 showed esophageal erosion, so I'm waiting to hear what the gastro doctor recommends.He's waiting until I have some other testing done before he makes his decision.

In hindsight, I'd say 'yes', I've have scleroderma since 1999, but my family doctor kept telling me that all of my problems were caused by depression. It was only since May 2011, when my rheumatoid factor, ESR and CK came back positive that she believed me when I said that it had to be more than depression.

My main issues are gastro related, along with muscle pain and severe fatigue. Like so many of you, I've been denied long term disability (LTD) twice and I'm in the process of appealing that decision.

#14 mando621

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Posted 28 September 2011 - 09:53 AM

Hi Jalee,

I've had the manometry test. It sounds like I had some similar results. I had a few good "swallows" but most showed low pressure. I had a consultation with a gastro specializing in dysmotility. He labeled my issues as connective tissue disorder, without the sclero label. Yet, it definitely fits the sclero pattern of esophageal dysmotility.

I'm having another swallow study, barrium meal, tomorrow because I think I'm having more trouble and I might have food going into the airway. I wouldn't jump into another manometry because of the discomfort, but if they ordered it I would do it.

My swallowing trouble is getting progressively worse. There isn't much that can be done for it, so I'm trying to be more careful when I eat. I have an UCTD label at this time for my troubles.

Hopefully you get your swallowing figured out.

Mando.





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