Jump to content

Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Full Bladder

  • Please log in to reply
7 replies to this topic

#1 miocean


    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 16 September 2011 - 10:52 AM

Lately I've been waking up early with a full bladder. I DON'T WANT TO GET UP! Then I remember to be so grateful for a full bladder and think of my donor and his family who gave me a kidney.

How easy it is to forget NEVER having a full bladder, sitting for hours in a dialysis chair to remove the fluids, having a highly restrictive diet and fluid restriction, being depressed, feeling terrible and immediately after kidney transplant getting up every 15 minutes with a full bladder!

Just a reminder to me to remember to be grateful to what I do have, rather than do bemoan the things I've lost.

ISN Artist

#2 Chopper


    Silver Member

  • Members
  • PipPipPipPip
  • 124 posts

Posted 16 September 2011 - 06:38 PM

I didn't realize this subforum was here until I just watched Amanda Thorpe's nice video! You certainly have things in perspective! I don't seem to drink enough during the day so I drink in the evening, and I too wake with a full bladder during the night. But now that the seasons are changing, I'm going to dread getting out of bed during the cold nights! I'm glad you have a full bladder, LOL!!!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#3 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,558 posts
  • Location:West Sussex

Posted 16 September 2011 - 11:50 PM

Hi Miocean,

Just a reminder to me to remember to be grateful to what I do have, rather than to bemoan the things I've lost.

How true your words are! Funnily enough, an aquaintance of mine said almost exactly the same to me when I was first diagnosed and was bemoaning the fact that I was not as fit as I had been. I realise how wise his words were and how jolly grateful I am that my quality of life is so good. ;)

I wake up in the night with a full bladder too, but I think in my case it's a middle age thing, sadly!!

Glad you've found this sub forum, Chopper!

Jo Frowde
ISN Assistant Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#4 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,921 posts
  • Location:U.K.

Posted 17 September 2011 - 01:51 PM

Truer words were never spoken! I have just spent the day with a number of sclerodermians, my hubby with their husbands, and we came to the same conclusion, we still have a lot to be grateful for...and will continue to have!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#5 Sheryl


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 18 September 2011 - 04:49 PM

Miocean, I too am happy you wake with a full bladder. Your kidney must be working fabulously. I wake several times a night with a full bladder. It is not because of getting a new kidney. It is because of diabetes or having a bladder suspension about 7 years back. Anyways, once is good, 3 or 4 times is hard on proper sleep patterns. Hey! We are alive and enjoying life. Be thankful.
Strength and Warmth,

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#6 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,263 posts
  • Location:Minnesota

Posted 20 September 2011 - 08:20 AM

Hi Miocean,

What a lovely post/thread.

Actually, I think being able to complain about normal things is a sure sign of recovery in general and this means you have turned another corner in recuperating from the transplant.

I've found that it can be burdensome to feel an obligation to be grateful every minute of the day. Sure, you are very blessed. We all are, for millions of things. But regardless most of us feel a bit put out having to get up in the middle of the night sometimes, especially if it disrupts our sleep.

You have every right to join the normal group now, just as though your kidneys never gave out in the first place. Hardly any of us ever go around eternally grateful for our bladder or for anything else for that matter.

Sometimes there is a special burden of gratitude expected from transplant patients, but if you think of it, maintaining that gratitude can become a chore. Letting yourself return to normal sometimes means forgetting; which is not the same as being ungrateful.

In fact, the biggest gift of all from your transplant -- or from any medical treatment that improves any of us, in any way -- could be the right to return to normal. And normal doesn't carry a constant, eternal, unbending, never-ending price of gratitude for its existence; normal is much more flexible than that and allows lots of leeway for being just plain human.

So I'm actually quite proud of you for forgetting for a moment. I think it is a real sign of a return to normalcy and you are just as entitled to middle-of-the-night-trips-the-bathroom grumpiness as any of us -- with or without remembering to be thankful for it afterward.

You (and all of us) have a lot more than just a bladder to be grateful for. The return to a bit of normalcy, which isn't always on guard for the best possible attitude every second of the day or night, is the most truly delightful one of all.

Good for you!

Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#7 miocean


    Senior Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 29 September 2011 - 09:35 PM

:you-rock: How did you get to be so smart? :you-rock:

ISN Artist

#8 judyt


    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 638 posts
  • Location:Auckland, New Zealand

Posted 30 September 2011 - 03:37 AM

I agree with Miocean, I read things like what Shelley just wrote, and I think "why can't I think like that".

Ah well, I guess there is probably something else I can do as well as the rest of you.

Judy T