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What Should I Be Asking about Interstitial Lung Disease

Interstitial Lung Disease

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23 replies to this topic

#21 Amanda Thorpe

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Posted 11 November 2011 - 06:11 PM

Hello Bleev

I hope the cyclophosphamide works well for your lung fibrosis and that you can soon share your good news with us.

Take care.

Amanda Thorpe
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#22 Bleev


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Posted 12 November 2011 - 10:06 AM

Thank you so much Jo and Amanda for the encouragement and support.

Continued good wishes to each of you as well :)

Walking by faith and not by sight :)

#23 barefut


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Posted 14 November 2011 - 03:09 AM

Hi Bleev ~ I was diagnosed with ILD in 2006 at the same time as my diffuse systemic scleroderma diagnosis. My pulmonary doctor prescribed Cellcept (Mycophenolate), an immunosuppressant. My lung function has gone up and down over the years but has remained generally stable with my oxygen diffusion hanging around 60%. I have never had to be on oxygen and my pulmonary doctor told me he has even seen slight improvement in his patients taking Cellcept. Best wishes to you with your treatment.

#24 Bleev


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Posted 19 November 2011 - 11:11 AM

Barefut, Many, many thanks for sharing your story! It is very encouraging and I am glad that you are doing so well smile.png I've been reading many good things about Cellcept and had asked my rheumatologist about it. He said that after the cyclophosphamide he would look at Cellcept to maintain. Continued good wishes to you smile.png