Jump to content


Do visit our News Forum for the latest, up to date, stellar information on Scleroderma! We also have the Medical News on our sidebar on the right of the Forums' topic thread lists.

Photo

Can chronic burping not be GI related?


  • Please log in to reply
24 replies to this topic

#1 Chopper

Chopper

    Silver Member

  • Members
  • PipPipPipPip
  • 129 posts

Posted 27 September 2011 - 09:43 AM

Here's why I ask. I've had chronic burping for about 14 months now. The GI has performed 2 endoscopies, saw no hiatal hernia, just gastritis, gastroparesis and celiac. A barium swallow looked normal. We tried antibiotic for SIBO. We tried increasing the omeprazole. For a few months I took erythromycin for the gastroparesis, but it didn't stop the burping. Further dietary changes helped end the painful attacks so I was able to quit that medicine. I strictly avoid gluten. I'm on a very low fat, low fiber, low residue, diary free diet. I take probiotics, magnesium, and even tried papaya enzyme last week. I tinkered with a grain-free diet. NONE of those have helped with the chronic burping, even when there isn't food in my belly, that I know of.

Which leads me to mention my neighbor, who was a chronic burper as well. He assumed it was a hiatal hernia. He had a heart attack last week, got a stint put in, and NO more burping! His blood pressure and EKG were normal after the attack. They told him he burped so much because his body wasn't getting enough blood.

Hopefully you can understand why I'm once again pushing for a reason for my chronic burping. I am asking myself: what if I have sine scleroderma and I'm getting heart or lung involvement that I haven't been screened for?

Has anyone here ever found themselves in a similar situation?

Thanks,
Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,128 posts
  • Location:Minnesota

Posted 27 September 2011 - 05:14 PM

Hi Chopper,

Well, this is a new one to me. I've never heard of burping being a symptom of heart or lung disease, especially not as the only symptom. (I'm not saying that didn't happen, only that it is new to me.)

I'm not a doctor, I have no medical training at all, but it seems to me they would be different organ systems entirely. Even if you have G.I. problems mostly under control, you can still get symptoms of them, especially heartburn and Celiac disease. I'd actually be more worried about anxiety complicating the picture because it can cause burping as well. Okay, being more worried was probably not the best terminology there! :emoticon-dont-know:

Let me put it this way. I'd be more worried about actual classic symptoms of heart or lung disease (if I had them); and I wouldn't worry about those if I managed to pass my usual annual physical and had no really overt signs of trouble.

You can talk it over with your general practitioner, though, see what they have to say, in light of your overall symptoms. It's just that, by itself, I would think they would be very unlikely to consider burping as a symptom of serious heart or lung problems.

I would think/wonder/hope that your neighbor also had some other symptoms of heart disease that they were just ignoring or that the conclusion of burping was just a coincidence, perhaps due to a change in diet or medication. But, without that medical degree and the total inability to even pronounce medical words, well, please take my input with a grain of salt and a full glass of water.

It's not in the least bit easy to keep things in perspective when going through a difficult diagnosis. It's hard to figure out what is serious, what is not, and it is a continual learning process, trying to sort out all the symptoms and assess their severity or importance. So I understand what the questioning is like. Just hang in there, okay?

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Chopper

Chopper

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 129 posts

Posted 27 September 2011 - 06:11 PM

Thank you for the reply, Shelley. I have emailed the same question to my sclero doctor. When I hear back, I was thinking about going to my new internal medicine doctor with the same concern. It just seems so weird to have chronic burping with no known cause. It's just not encouraging to have a doctor shrug his shoulders at you and say we've tried everything. I often wonder what makes me different from the average Joe when I'm already so restricted in diet anyways. Ugh. At times it drives me nuts!

Thanks,
Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#4 babytumbleweede

babytumbleweede

    Newbie

  • Members
  • Pip
  • 1 posts

Posted 28 September 2011 - 05:08 PM

Chopper,

Sadly, I've had chronic burping for at least 10 years. No doctor has ever found a specific cause. But I have been told that it may be the result of swallowing or gulping air. I've noticed that I "sigh" or seem to take deep breaths often - so, it makes sense to me. Anyway, I hope that you find a cause for yours... and that it is nothing serious.

If you receive any helpful info from your doctor, please share. I really wish I could better control my condition.

#5 Chopper

Chopper

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 129 posts

Posted 29 September 2011 - 02:52 PM

I have an update, yay!

I went my internal medicine doctor today because for the last few weeks my chest has felt heavy, and then today it hurt to breathe. I have noticed an increase in reflux in the last couple of weeks. It doesn't burn, probably because I take prilosec, but fluid coming up. I told her I'm a chronic burper. (I then told her about my neighbor's heart attack and how he no longer burps, to which she said is possible.) She assured me that it is reflux that was causing the heavy chest and breathing pain. Just to be sure she did an EKG and said my heart is working beautifully. I asked if we need to increase the prilosec, and without hesitation she said NO. She said that I'm also having trouble digesting protein and told me I need a broad spectrum enzyme to help me digest proteins as well as licorice root to help with gastritis. She reminded me, though she didn't need to, to stay away from fats, fiber, gluten, dairy, and be careful with amount of proteins. She said to give it a couple weeks and that she can't guarantee that it will help, especially if it's scleroderma related, sometimes nothing medicinally helps. But I was comforted going to her today so I'm doing a happy dance!

:emoticons-line-dance:
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#6 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,128 posts
  • Location:Minnesota

Posted 29 September 2011 - 03:30 PM

Hi Chopper,

I'm delighted that you have an answer (and a very sensible one, at that) to your question about burping.

Personally, I would have been more worried about the heavy chest and breathing pain, than about the burping; even without any burping those symptoms would need evaluation. I can't tell you how many people I've heard of who went to the E.R. with chest pressure and breathing pain (or similar stuff) out of concern for heart attack, who it turned out actually had reflux (or, costochondritis or other stuff). But equally, people have gone in thinking they only had horrible heartburn, but were having a heart attack.

In fact, my husband and I had a friend who passed away nearly 30 years ago. He was under 40, perfect weight, a daily swimmer, and had a lovely family. However, he did have a bad habit of fast food for lunch every day but that was it. He thought he was having a bad attack of heartburn and that prevented him calling for help in time, and thus his first heart attack (first health problem of any kind, in fact) was fatal.

It's true stories like that which scare the liver out of us, and the reason why only doctors can make the distinction when it comes to things like that. Good on you for getting it checked out. (That blurb is intended for people who are reading this thread because they are experiencing similar symptoms and they may feel falsely reassured with the idea it might only be heartburn. Such symptoms always require evaluation by a medical professional, not a friend or forum, no matter how fabulous they might be.)

Some people tend to assume that anything natural like licorice is also inherently harmless. Therefore we require a warning with any mention of licorice on this forum, so here is one: Licorice: Safety Concerns which includes dangers, medication interactions and warnings for high blood pressure, heart disease, and low potassium, by Medline Plus.

Thank you for sharing your update on this. I'll join your Sclero Happy Dance and add some warm hugs to it.

:emoticons-line-dance:

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#7 Joelf

Joelf

    Diamond Member

  • ISN Administrators
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,487 posts
  • Location:West Sussex

Posted 29 September 2011 - 03:40 PM

Hi Chopper,

That's very good news about your update!!

I shall join you and Shelley in the Happy Sclero Dance!! :emoticons-line-dance:

Jo Frowde
ISN Sclero Forums Manager
ISN News Manager

ISN Chat Host
International Scleroderma Network (ISN)


#8 mews

mews

    Bronze Member

  • Members
  • PipPip
  • 16 posts

Posted 29 September 2011 - 07:15 PM

Dear Chopper,

I am so sorry about your burping, I have it also and it makes me and my family nuts!

Have a better day and stay well,

Mary

#9 Chopper

Chopper

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 129 posts

Posted 30 September 2011 - 07:32 AM

Shelley,

Thank you for posting that link to licorice - I was astounded at the possible side effects! I definitely will proceed with caution on that.

Chopper
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#10 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,810 posts
  • Location:(United States)

Posted 01 October 2011 - 09:49 AM

Hi Chopper,

Because you have eliminated everything from your diet that would/could cause problems with regard to burping, I'm sure this has been an exasperating road for you to walk.

However, my mom also had that going on, as long as I can remember; in HER case, I would bet it was her air swallowing, same as babytumbleweede.

Take care and hope you have the best weekend possible!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#11 Chopper

Chopper

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 129 posts

Posted 29 October 2011 - 08:30 PM

I just wanted to give a little update about the burping. My doctor said it might take a couple weeks to notice if the digestive enzyme helps, well, it took about 3 weeks, and I have to say I've noticed significant improvement! After reading the info on black licorice I have chosen to only take one a day, rather than 3 times a day. I wish my GI doctor had known to suggest this. At least in my case it has helped.
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#12 Joelf

Joelf

    Diamond Member

  • ISN Administrators
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,487 posts
  • Location:West Sussex

Posted 30 October 2011 - 12:15 AM

Hi Chopper,

I'm so pleased to hear that you've had a significent improvement on the burping front; that is good news!! :emoticons-yes:

Long may it continue! :emoticons-line-dance:

Jo Frowde
ISN Sclero Forums Manager
ISN News Manager

ISN Chat Host
International Scleroderma Network (ISN)


#13 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 521 posts
  • Location:Auckland, New Zealand

Posted 30 October 2011 - 03:46 PM

Hello Chopper,
I am happy to hear you are getting on top of your burping problem. I seem to have the opposite difficulty - I can't burp :emoticon-dont-know: I struggle away with a bubble behind my sternum and just have to wait until gravity gives up and lets it go.

The main problems I am having right now though are a sudden dairy intolerance and constant gastritis. I have just read your post about the foods you have to avoid and had a sudden feeling of great empathy for you.

I am still at the experimental stage. I avoid lactose for 2 weeks, have a few days of being able to eat cheese and yoghurt then back come the cramps and diarrhea. I have trouble maintaining my weight anyway and without my favourite icecream and cheese etc. it is harder still. Yesterday I was wandering around the house hungry and wondering what I could eat. In the end I found a packet of chocolate and cream bikkies :emoticons-yes: and scoffed one of those in spite of the fact that I am not supposed to eat chocolate. Probably why I am very aware of my sore tummy today.

Ian has just gone off to town to do the shopping and I have ordered my favourite WHITE :rolleyes: bread buns in a pack of 6 and real ham off the bone for lunch . I usually avoid preserved meats because of the sulphites which make me itch, but I have to eat something.

I decided post to here because I have an appointment to see my General Practitioner tomorrow afternoon and I am looking for as much information as I can before I go so I can have a proper discussion with her. I know all about gluten free because our daughter and granddaughters are GF and anyway that doesn't seem to affect me, I can get lactose free fresh milk thank goodness but so far haven't found anything else tempting in the supermarket.

Does anybody know anything about Buffalo milk? Buffalo Yoghurt is available and I have read that it is low lactose like goat milk but the yoghurt is expensive and if I buy a 500g pottle and don't like it my Scots ancestors will turn in their collective graves and cause an earthquake somewhere I am sure.

I think I could probably rattle on here all day but had better go and do something important like laundry or sweeping the floor and let mu brain mulll over my options.

Best wishes to you and hope you keep feeling better.

JudyT

#14 Chopper

Chopper

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 129 posts

Posted 30 October 2011 - 09:46 PM

Judy,

I do not avoid dairy 100%, but probably 95%. I rarely eat it, but when I do, I choose things like hard cheeses (because they don't have lactose in them), or more seldomly sour cream for a baked potato when I can't resist! It's really becoming a way of life. Cooking and baking are my new hobby. I tell myself I'm eating the foods that most people don't and that I'm really not lacking variety (with the exception of 'fresh' fruits and veggies, thus the need for the full spectrum enzyme). If you decide to go more drastic with how much dairy you cut out, I hope it goes well for you and you quickly adjust. It'll take time. We certainly live in a society that relies heavily on wheat and dairy!
Limited Scleroderma, Hashimotos Thyroiditis, Celiac, Gastroparesis, GERD, and Gastritis.

#15 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 521 posts
  • Location:Auckland, New Zealand

Posted 31 October 2011 - 02:34 AM

Hi Chopper,

Well, thanks for the bit about hard cheese not having lactose - I didn't know that. If there was any in the fridge. right now I would be off to get some. Actually, because in the past I haven't really enjpyed hard cheese I don't think I even know which ones I should choose. Mr Google will oblige I am sure.

I remembered this afternoon (after the local shop was closed) that I used to make "icecream" with a jelly and frozen berries and milk substitute. Looks like I might be doing that tomorrow. Our son was lactose intolerant as an infant and I am struggling to remember what I used to give him. At first it was OK because he had Soy Milk but later on when he realised other kids had different treats I had to get more creative.

Thanks for your reply


JudyT

#16 sloanw

sloanw

    Newbie

  • Members
  • Pip
  • 2 posts

Posted 02 June 2012 - 05:52 PM

Can you please tell me what digest enzyme you take. I suffer from severe burping. I still have tragic heartburn. I recently had my gallbladder removed because I had gallstones.

Sadly I still suffer from heartburn and severe burping. I currently take 2 prilosic pills a day, gas pills, slippery elm, I've tried every over the counter medication there is, every prescription there is. What meds are you on? I've had heartburn and severe burping for so long I have literally contemplated suicide. I go back to the specialist this Thursday.

#17 judyt

judyt

    Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPip
  • 521 posts
  • Location:Auckland, New Zealand

Posted 02 June 2012 - 06:12 PM

Hello Sloanw,

Welcome to the forums, I hope you find help here. You don't say if you have been diagnosed with Scleroderma, but I am assuming because you have posted on this site that you have. Oesophageal dismotility causes all sorts of problems like heartburn and trouble swallowing, but so do other conditions. You say you are going to the specialist again this week and I think that it is important to discuss all the options with that person. If it is as bad as you say to put up with you must let your Doctor know.

Best wishes,
JudyT

#18 sloanw

sloanw

    Newbie

  • Members
  • Pip
  • 2 posts

Posted 02 June 2012 - 06:27 PM

Both my brothers had their hair fall out because of an immune disorder. I have psoriasis which I guess is an immune disorder... could my stomach problems and this immune disorder be related? I never thought of that? What specialist do I need to go to? A stomach specialist or a skin specialist?

#19 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Administrators
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,719 posts
  • Location:U.K.

Posted 03 June 2012 - 12:35 PM

Hello Sloanw

Welcome to the forums and I am so sorry you feel so desperate because of your symptoms. It's not unheard of unfortunately to be pushed to the point where we start considering the unthinkable because of symptoms. It's at this point where we have to engage in treatment and by that I mean counselling, therapy, whatever you want to call it, something designed to focus on how we feel emotionally, to help us cope with the pain, both physical and emotional, the disappointments, the loss and I could go on and on here but I won't.

I am having counselling myself and I confess to having contemplated the universe from your perspective and I know that's not the place I want to be and it's not a place for you to be either. It's a long process for sure and some days I feel great and others, well best not said. What I do know is that it can get better and indeed it does. Although scleroderma has devastated my life it has, in turn, introduced me to the most wonderful people here on these forums. I always say the best thing about scleroderma is the people you meet so there is always an up side.

You don't say whether you have scleroderma or not, if you do you want immediate referral to a scleroderma expert as reflux etc is something they see everyday as part of scleroderma. Alternatively with your gastric issues what about referral to a gastroenterologist? There are many treatments for reflux including surgical ones such as a Nissen Fundoplication. Now I am not recommending any treatment for anything I am just directing you to our resources.

You mention that you have psoriasis and it is indeed an autoimmune disorder. You say you are seeing a specialist on Thursday, what is their specialty?

Please let us know how you get on and bear in mind it can get better however dsperate we feel.

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Assistant Manager
ISN Video Presentations Manager
ISN Email Support Specialist
ISN Blogger
ISN Sclero Forums Support Specialist for UK Scleroderma

International Scleroderma Network (ISN)

#20 Joelf

Joelf

    Diamond Member

  • ISN Administrators
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,487 posts
  • Location:West Sussex

Posted 03 June 2012 - 01:13 PM

Hi Sloanw,

Welcome to these forums!

I'm so sorry to hear how desperate you're feeling and can only reiterate Amanda's wise words. It must be dreadful to be feeling so wretched and I know that it can seem that the health problems you're facing are insurmountable. I've included our link on emotional adjustment which includes one of Amanda's interesting and informative videos and even if you haven't been diagnosed with Scleroderma, I'm hoping it will be helpful to you.

I have Scleroderma and although thankfully it hasn't affected me as much as many of our other members (for which I'm eternally grateful!) it still has impacted on my life, particularly as I have lung involvement. I agree with Amanda; things do improve and I can still have a very good quality of life (one good thing is that through being involved with ISN it's caused me to use my idle brain again, which must be an advantage! ;))

Now that you've found our forums and joined our community you will find a wealth of help and support. Please keep posting and let us know how you get on with your appointment with your specialist on Thursday.

:emoticons-group-hug:

Kind regards,

Jo Frowde
ISN Sclero Forums Manager
ISN News Manager

ISN Chat Host
International Scleroderma Network (ISN)