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Lung Nodules

lung nodules CT scans

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#41 debonair susie

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Posted 08 November 2011 - 12:13 PM

I agree with what's been said so far; I'm joining in, sending you ongoing Hugs of the very best variety, my friend. :emoticons-group-hug:
Holding you close in thought until you have heard results of all your testings.
Special Hugs,

Susie Kraft
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#42 Sweet

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Posted 09 November 2011 - 11:29 AM

Thanks everyone! My heart is getting lighter all the time.

I got my VQ scan results that would show if I had any blood clots in my lungs that could contribute to my shortness of breath, and that was clear, so that's good. Still awaiting results on my chest Xray, and Echo. I had my liver U.S. done yesterday to better evaluate the lesion on it, to determine what that is, no results yet.

Thanks again for all of your concern, love you guys.
Warm and gentle hugs,

Pamela
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#43 Shelley Ensz

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Posted 10 November 2011 - 07:51 AM

Hi Sweet,

One by one, bit by bit, the bad news seems to be turning into good news! I sure do hope it continues along the same path, so I'm still sending lots of good thoughts your way, Pam.
Warm Hugs,

Shelley Ensz
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#44 Sweet

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Posted 11 November 2011 - 05:36 PM

I know Shelley isn't it great! Thank you.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#45 Amanda Thorpe

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Posted 11 November 2011 - 06:13 PM

Another piece of good news Sweet...way to go! Please keep up the good work! :yes:
Amanda Thorpe
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#46 miocean

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Posted 11 November 2011 - 08:33 PM

Sweet,
I am happy that you feel relieved and that things aren't are serious as originally presented.

It made me think, though...we sclerodermians who deal with so much can say that they are "super happy with this" when someone who hasn't experienced a chronic disease like ours would be freaking out! :temper-tantrum: We are The Best, aren't we?

Looking forward to continued good news,
miocean
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#47 barefut

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Posted 14 November 2011 - 02:48 AM

You have been in my thoughts everyday.
I wish I could make it all go away.

For you do not deserve all of that stuff
Enough is enough is enough is enough!

I am wishing you good news and peace of mind
That you can leave all of this testing behind

And look to a future healthy and bright
Where you can shine your virulent light



#48 Sweet

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Posted 17 November 2011 - 06:23 PM

Awwwwwwwwwwwwwwwww Barefut, thank you!!! How so, very sweet of YOU.

Final results are in - good grief, finally. Liver U.S. show a simple hepatic cyst, nothing to worry about. The Echo was another story. Two of my valves are not working properly. They are not closing all the way, causing leakage. It's fairly minor right now. Also it appears I'm at the beginning of PAH. So another doctor visit soon, to go over medication treatments.

So finally, ON with life! Will have all of this rechecked I guess in about 6 months, along with another CT of my chest to re-evaluate the lung lesions and hoping they are the same size. OR GONE would be good with me. :)
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#49 Snowbird

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Posted 17 November 2011 - 08:05 PM

Ah Sweet

Finally, some answers for you. Sorry to hear your echo was not great news but it is likely good news that you caught it early and hopefully they will get you on the right medication/treatments to keep it that way (minor) for a very, very, very long time. Fingers and toes crossed for the lung lesions to disappear too.
Sending good wishes your way!

#50 barefut

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Posted 17 November 2011 - 08:18 PM

Well yes, finally! You were kept waiting too long. I am so relieved that none of it is anything urgent. The beginning of PAH does worry me a bit though. How do you feel about it? What did the doctor say about it?

Love and hugs Missy!


#51 judyt

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Posted 18 November 2011 - 02:13 AM

Hello Sweet,

So pleased to hear that things are not as bad as they might be. Onwards and upwards - more or less.

I had Mitral Stenosis until May last year when it was repaired by Balloon Valvuloplasty. An absolute piece of cake. I was in the cardiac ward for about 2 nights then home again and greatly improved.

I guess it will depend which valves are involved and what sort of damage they have whether you will benefit in the same way in the future. The damage to my valve was calcification from rheumatic fever, I don't know what other sort of damage causes the leaves of the valves not to close properly.

Let's hope you can get some help before too long. Actually, I know they don't usually do anything when it is only minor but I was lucky enough to get my treatment when the damage was only moderate because the cardiologist needed to be sure it wasn't PAH as well.

Warm hugs from your favorite little country!

Judyt

#52 Joelf

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Posted 18 November 2011 - 02:26 AM

Hi Sweet,

I am so pleased that things are much better than you feared, although the results from your ECHO are a bit disappointing. However, hopefully your doctor will be able to revise your medication to help everything to run along smoothly and you'll be able to enjoy life again with your family without such an awful worry hanging over you.

:emoticons-group-hug:

Best wishes to you,

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#53 Amanda Thorpe

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Posted 18 November 2011 - 02:04 PM

Sweet, in scleroderma mild to moderate PAH can remain stable for long periods of time, so if your PAH is mild to moderate it could stay that way for ages! :yes:

Barefut's little ditty nearly made me cry, I read her blog about meeting you, clearly you left a great impression! :terrific:

Take care.
Amanda Thorpe
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#54 barefut

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Posted 18 November 2011 - 03:12 PM

Amanda - thanks for the PAH info! It is a scary thing and I don't know enough about it yet to ease my mind about Pam. I can only imagine how she feels but know she is educating herself and staying on top of her doctors and her care. She is an inspiration to us all regarding being our own advocates and an inspiration to me in so many other ways as well.

#55 Sweet

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Posted 19 November 2011 - 03:07 PM

You guys are the best. Amanda I too appreciate your words. I'm not overly worried about any of this, so I'm hoping that in itself, will be of benefit to my health and life.
Oh yes, Barefut is my buddy, we wub each other lol
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#56 Shelley Ensz

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Posted 21 November 2011 - 01:24 PM

Hi Pam,

I think I missed a beat or two in this thread. For the possible PAH, have they done a heart catheterization, yet? That is far more reliable than Echo. I also have some minor valve problem but luckily it has stayed minor for nearly forever. Luckily, I do think many of us can acquire a whole closet full of minor things that can be stable for a long time. It's just such a shock when they are first discovered, and such a worry trying to sort out whether they signify a threat to our very existence, or whether they are another thing to just live with.

At some point here, I'm hoping that a Sclero Happy Dance is called for. It doesn't feel quite right yet, though. Will you let us know if/when we reach that more settled point, Sweet?

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#57 Sweet

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Posted 13 December 2011 - 12:18 PM

Hi, Sorry I've been a bit out of the loop here. Having a hard time keeping up with life in general. :)

No heart cath scheduled, they didn't really feel it was necessary I guess. I think I'm mild enough they aren't overly worried about it, therefore I'm not! :)

We're talking meds right now. I have to research everything, just because that's my personality before I agree to take anything, but they are talking Tracleer?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#58 Joelf

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Posted 13 December 2011 - 02:59 PM

Hi Sweet,

That must be good news that they're not considering a heart catheterization and I hope everything settles down now for you.

Best wishes,


Jo Frowde
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#59 Sweet

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Posted 13 December 2011 - 07:00 PM

Thank you Jo!
Warm and gentle hugs,

Pamela
ISN Support Specialist
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#60 debonair susie

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Posted 13 December 2011 - 07:08 PM

All I can say is....Muah, Sweet! Just know we love ya and appreciate your letting us know "what's what" up to now :emoticon-hug:
Special Hugs,

Susie Kraft
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