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Lung Nodules

lung nodules CT scans

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#61 miocean


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Posted 14 December 2011 - 09:51 PM

Dear Sweet,

There are several medications for PH. Right before my transplant I was diagnosed with it through right heart catherization and echo and applied to be started on Letaris ( the LEAP program) but the transplant prevented the introduction of any new drugs with the anti-rejection ones. I was very concerned about the drug when I researched it so was happy about that.

A right heart catherization, done by a person who KNOWS WHAT NUMBERS TO GET FOR SCLERODERMA, is the gold standard for diagnosis. My specialists said the two heart catherizations I had that were done by cardiologists locally did not give them the numbers they needed. If I need to have another one I will have it at my scleroderma center. And remember, if they do a heart catherization and they are only checking pressures and not looking for blockages they should NOT USE DYE. It can kill the kidneys.

Best wishes and keep us posted.

ISN Artist

#62 Sweet


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Posted 15 December 2011 - 11:44 AM

Thank you Miocean, useful information.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)