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Pigment Loss


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7 replies to this topic

#1 ltulip

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Posted 04 March 2007 - 07:56 AM

I am an African american woman who has lots of pigment loss in my skin. This happened early on in the disease onset. Slowly it got worst on my face, neck, chest and some places on my arms. It has now gotten somewhat better on my chest. I have been to a well respected dermatologist at Howard University, took UV treatments and was given cover-up cosmetics but noting more permanent. My rhemy said in her past practice she never dealt with many Arican American patients so she doesn't have much experience. Any one else experiencing this. ltulip

#2 Elehos

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Posted 04 March 2007 - 09:28 AM

Hi ltulip,

I'm not African American, but have areas that are lightening or darkening, especially on my face. Several years ago it was spreading down my cheekbones, then onto the chin, and now my entire face is a few shades darker than my neck..except over my eyebrows and near the hairline. It looks like I shaved my hairline or had extremely thick eyebrows, then plucked off half of them after getting a good tan, leaving big white patches. Part of my forehead has been darkening again lately which makes it more noticeable.

At this point all I use are cosmetics, and I'd be afraid to have anything permanantly done since the dark and light patches can change, and it might leave me more mottled looking than I already am. There are people that specialize in tatooing to match your skin color, but you have to be careful because you can react to the dyes or inks used. I had a very small tattoo done years ago and it swelled up and itched for a couple of years, so I don't think I'd want that to happen to my face. With dark skin, a lot of the laser treatments can cause problems too, so you'd want to stick with someone very, very experienced! Maybe someone else will come along that has had some other treatment done and give you more info. Sorry that you're going through all this!

Best wishes,
Elehos

#3 Sweet

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Posted 04 March 2007 - 10:27 AM

Hi,

I have just the opposite problem. I have hyper pigmentation. I think with this disease it can go either way. My dermatologist says there isn't anything I can do about it other than using lightening creams. What I do that I think helps more is I use a self tanning spray that evens it out somewhat. I wonder if that would help you?

Let us know what you try.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 ltulip

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Posted 04 March 2007 - 10:42 AM

Thanks Elehos and Sweet for your input. It helps to know that I'm not completely alone with these symptoms. Your feedback is helpful. I am new on the forum network and I'm so grateful to have people who understand. Thanks again. Regards! ltulip

#5 debonair susie

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Posted 04 March 2007 - 11:15 AM

Hi, ltulip,

I have a friend (Caucasion), who has Vitiligo, so I'm taking a guess that this may be what you also have.

I hope you can find a doctor who can give you the diagnosis that you deserve... My best to you!

Hugs, Susie
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#6 Pam

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Posted 06 March 2007 - 04:38 AM

Hi! I am Cape Verdean and have been diagnosed with diffuse sclero for a year and have a lot of pigment loss. I have always been light skinned, my skin began darkening and many people started asking where I had been on vacation. I got darker on my face, chest, back, torso and thighs. I then began with the loss of pigment in those same areas about 8 months ago on my back. I have large areas of it now on my chest, upper arms and thighs. My doctor says the light areas will remain that way but the darker areas should get lighter in the next few years. I don't do anything to even it out, it would mean a fortune in makeup. I call myself a rainbow now! Take care, Pam

#7 scleroguy

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Posted 06 March 2007 - 01:13 PM

Hi ltulip,

I am an African American man. I also have lots of pigment loss in my skin in some areas, and hyper pigmentation in others.

Best wishes,
Ron

Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.

#8 janey

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Posted 07 March 2007 - 04:34 AM

ltulip,
A couple have mentioned Vitiligo which is another disease that affects the skin, primarily as pigment loss. Vitiligo is suspected as being an autoimmune disease. We do have a page here at ISN that you might want to review:

Vitiligo: Vitiligo is a skin condition of white patches resulting from loss of pigment. Any part of the body may be affected."

Big Hugs,
Janey Willis
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