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#1 Clementine


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Posted 04 March 2007 - 01:21 PM

I am just wondering if anyone is on a special diet that they believe has helped control their scleroderma. I don't mean just avoiding things that aggravate GERD because I got that down.
Thanks. Just wanting to get really fit and healthy and wondering what others are doing.

#2 Heidi


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Posted 04 March 2007 - 02:01 PM

Hi Jennifer,

I think the most important thing is a well-balanced nutritious diet, unless the doctor advises otherwise. There is no specific dietary changes/supplements that have been shown to "cure" scleroderma. Nonetheless, you may find some interesting information on differrent diet influences on our alternative therapies page from the Sclero A to Z website.

Warm wishes,

#3 Claudia-DR


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Posted 05 March 2007 - 02:16 AM

Hi Jennifer! You are what you eat, so I guess that diet has something to say in how we feel.

I went to a rheumatologist who believes strongly in making diet changes to help with the sclero. This is what he told me:

1. Avoid dairy products.
2. Avoid meat and and meat products.
3. Go for foods with high content of Omega 3 oils.
4. Take it easy with citrus fruits and green tea.
5. Absolutely no canned food.

Another alternative doctor I know who treats many patients with sclero prescribes cucumber and pineapple juice in the mornings to relieve edema and that really helps.

I guess the important thing is to keep things balanced.

Good luck!


#4 peanut


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Posted 05 March 2007 - 04:36 AM

Hey Jenn,

I don't eat dairy - including icecream. Sad. I know.
Try to eat high fiber to help with digestive issues.

One of my doctors encouraged me to go all vegan, which is a understandable but a little hardcore and my red-meat eating hubby would never let me hear the end of it. I just try to be aware of what I eat and make good choices including limiting my sugar intake - I read somewhere it encourages inflammation.


You can deprive the body but the soul needs chocolate
my HMO makes me wear a helmet...



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Posted 08 August 2007 - 03:18 PM

I'm vegan, been vegan for many years, and I believe my health is the best it can be. My husband was vegan for a while, but slowly started eating some meat again. We've learned to eat different meals together.


#6 WestCoast1


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Posted 08 August 2007 - 07:37 PM

Hi jen,
I tried a gluten and wheat free diet for a while a year or so ago and I lost about 15 lbs. I started to feel a little better but I really enjoyed the weight loss. I realized that I couldn't do this diet for the long hall and that I really missed eating breads and all that yummy gluten so now I try to limit it and have since put on a few lbs. A happy medium.....husky.....is fine for me! :) :huh:

Everyone elses posts have really inspired me. There are so many wonderful and healthy eaters here. I wish I could be one, but its just not for me. The only thing that I just won't eat is red meat.

I think in the end, you have to be truley happy with your food choices or you just won't stick to the diet that you start.


#7 Elehos


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Posted 09 August 2007 - 05:13 AM

Hi Jennifer,

I'm also vegan, and it has made a world of difference. About 10 years ago I was knocked over after eating a bite of meat, and after eliminating meat and poultry completely from my diet, my joints became more flexible and hurt far less, the borderline anemia was cured, and my digestion improved drastically. For some reason my body couldn't process iron from meat or supplements, but all the veggie foods did the trick. It's interesting that Claudia was told to avoid canned food, and that's another thing that always threw my digestive tract into fits, especially since they tend to be extremely high in sodium and preservatives. Dairy was causing serious foot pain and swelling, finally giving me a nasty battle with gout, but of course it took me a while to realize that was the culprit. I would ask your doctor about any changes you might want to make so you can find suitable substitutes.

Best wishes to you,

#8 Kamlesh


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Posted 09 August 2007 - 07:35 AM

My routine normally includes:
I am vegetarian (dairy OK) and I have mouth thrush/sore mouth which prevents me taking any spicy food. I avoid restaurants and outside food. I try to avoid travel at work, but when I have to travel (about once a month), it becomes little difficult to maintain my routine. My diet has been different than my wife or my son, but I have to do it to manage my diseases.

Normally I wake up extremely drowsy, so I have to start my day with 2-3 cups of coffee, and get ready

Start morning with Oatmeal, Walnuts, raisin and milk.

Take my all medications which are either required in the morning or have slightest side effect of sleep order. These include Paxil 60 mg, Colchicine, Metformin (diabetes), Vytorin (Cholesterol), Foltex (Folic acid), Actos (diabetes), and Aciphex (GERD).
Drive around 45 minutes to work.

Two hours after breakfast take 3 Cellcept

Wait for one hour
Lunch is normally beans, tofu, and rice
Two hours after lunch take 1 more Cellcept
Wait for one hour
Afternoon I take couple of fruits.
Evening go home and do breathing exercises + Yoga for 30-40 minutes

Take Glipzide (diabetes), Metformin, Aspirin, and Vitamin tablets.

Take dinner either beans, tofu, and rice or couple of slices of bread, peanut butter and milk.
I go for a walk either after lunch or dinner depending on time availability as well as weather.

I can’t get early sleep, so I might take chips and one or two caffeine free diet soda at night while watching TV to keep myself entertained.

Take Temazepam (30 mg) around 11 pm and try to sleep (Which might be anywhere between midnight to 5AM) and wake up at 7:30AM for a busy day work.

One of the side effects of Cellcept is sleep disorder and I have worked with my rheumatologist to concentrate dosage of Cellcept during day time as early as possible. He said it is OK to take 3 at one time wait for six hours and take one more instead of taking 2+2 twelve hours apart.

With this routine, my diabetes (morning sugar below 100), GERD, and Scleroderma stay within control. My major issues right now are depression and sleep disorder.

There are energy calculators available on internet. Once I calculated, I need about 1500 calories minimum without any activities to maintain my body weight. I work full time and usually go for a walk, so that requires about 2000 calories. I try to stay within 2000 calorie diet. Have been able to maintain my weight at 140 lb (I am 5 feet 5 inches tall).
Kind regards,


#9 Sheryl


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Posted 10 August 2007 - 02:07 AM

Have you ever tried taking your temazepam 2 to 3 hours earlier in the evenings. Then, when you sit to watch tv you will start feeling tired before 11. I just take Xanax at night to relax me and it takes a good hour to relax me enough to start getting sleepy. Just a thought. It might help alot. Sheryl
Strength and Warmth,

Sheryl Doom
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International Scleroderma Network (ISN)