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Biomarker for Diffuse Scleroderma skin has been discovered!


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Finally a requisition!


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#1 amberjolie

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Posted 16 October 2011 - 02:39 PM

I got a call from the rheumatologist's secretary that they were going to mail me another requisition for more bloodwork, so I called to try to find out a bit of info.

All she told me (and I wasn't going to press the matter, since once the requisition comes I can see what they want to test for), was that a result came back "wacky", and he wanted more bloodwork. I asked if it was to repeat a test, and she said, no, it was a different test that would confirm or not whatever was being tested.

So now I'm sitting here trying to guess what it could be. I don't think it has to do with the ANA or ENA panel, because I only had the bloodwork done a week and a half ago, and those seem to take a long time to get back. I'm wondering if maybe it's the thyroid, because he only tested the thyroid-stimulating hormone (TSH), saying that because I was on thyroid meds he figured I'd be okay. Maybe that's out and he wants to test the triiodothyromine (T3) and thyroxine (T4) as well.

Or maybe it's the ferritin. He said it had to do with iron. So if that's out, maybe there are other tests to determine why or if it's a problem.

I don't know. I guess I'm just too impatient. :). I'll find out in a couple of days when I get the requisition.

#2 Joelf

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Posted 16 October 2011 - 03:10 PM

Hi Amberjolie,

Well, "wacky" is a medical term that could cover a multitude of sins! ;) :lol:

I hope that you won't have a problem and that you soon get the requisition and can find out the reason for more blood tests which hopefully will set your mind at rest.

Kind regards,

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#3 Amanda Thorpe

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Posted 17 October 2011 - 05:33 AM

Is that wacky as in the weird 'n' wacky world of scleroderma? If so you're alright! :lol:
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#4 amberjolie

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Posted 24 October 2011 - 08:17 PM

My requisition never came in the mail, so the doctor had to fax it to the lab.

He wanted to check cryoglobulin, anti-phospholipids (which I didn't do because it would cost me money), and Hepatitis A, B, and C. So I'm still curious about why he wanted these. I wonder if he's looking into autoimmune hepatitis or something but wants to rule out Hepatitis A, B, and C first (which I'm sure I wouldn't have). I guess I'll find out for sure in a week when I see him again.

#5 Amanda Thorpe

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Posted 25 October 2011 - 06:17 AM

Hello Amberjoile

I think we're just as curious here to know your results as you are so do let us know!

Take care.
Amanda Thorpe
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#6 Shelley Ensz

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Posted 25 October 2011 - 10:43 AM

Hi Amberjolie,

It will be interesting to see what they find out with this round of testing.

I think only people with autoimmune disease can understand the dubious joy of flunking a blood test. I mean, who in their right mind would be glad to flunk any medical test? But when you already know that something is very wrong, it becomes so welcomed to have the doctors finally identify the reason(s) why -- one which even they cannot dispute any longer with vague assurances that everything must be due to stress or menopause or whatever.

Here's hoping that whatever they find is something that is manageable.

:emoticons-group-hug:
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Shelley Ensz
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#7 Joelf

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Posted 25 October 2011 - 12:28 PM

Hi Amberjolie,

I'm equally intrigued to know the reasons for more blood tests and also to hear your results.

I've found a couple of interesting links to Cryoglobulin and Cryoglobulinemia which I'm hoping will give you some more information.

Do let us know how you get on next week when you see your rheumatologist.

Kind regards,

Jo Frowde
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#8 judyt

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Posted 25 October 2011 - 02:14 PM

Hi Amberjolie,

I see that your doctor wanted to check anti-phospholipids and you chose not to because of the cost. I just wonder if he was wanting to do that because anti-phospholipid is something which is confirmed by two tests which add up together to make one answer. I could very well be wrong because as my general practitioner keeps telling me SHE is the doctor NOT ME, and most times SHE is right and NOT ME!

I discovered I was positive for anti-phospholipid syndrome which is a clotting disorder, but then the cardiologist pointed out that if I had got to the ripe old age of 67 without a clot then I was pretty safe in spite of the blood test result. Perhaps it is something a doctor would like to know about just in case.

As Kate says, she is the doctor and I probably had better employ myself doing the laundry and other such important tasks and leave the thinking to her.

I really do hope you get to the bottom of all this investigation and can get on with living life the best you can.

Warm hugs and best wishes,

JudyT

#9 amberjolie

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Posted 25 October 2011 - 05:29 PM

Thanks for the replies.

Joelf, thanks for the links to the cryoglobulin and cryoglobulinemia. All this makes me more curious than ever! I want to know what he's found out (or trying to find out).