Posted 22 October 2006 - 06:19 AM
My son has Arnold Chiari Malformation and on one of their sites they had a list of symptoms like that with the most complained about at the top and then down the list with the rarest at the bottom. It was so helpful to see that some of these little nuisances were also part of the symptoms that other people experienced. Is there some list like that for scleroderma patients? Just wondering!
Posted 22 October 2006 - 02:50 PM
Welcome. Since being diagnosed, I research daily trying to find out as much information about this disease that I can. I have many binders that I have put together over the past several years. Here are a list of websites you can research for various symptoms:
I hope all goes well for you. And if you ever need anyone to talk to, just hit me up. Email me anytime.
Take care of yourself and stay warm.
ISN Book P.R. Coordinator for the U.S.
International Scleroderma Network