Posted 06 March 2007 - 11:48 AM
I have heard that the UV can help Scleroderma. Does anyone do sunbeds or know anything about this?
Diagnosed 2006 - Diffuse Scleroderma
Skin and lung involvement
Posted 06 March 2007 - 03:37 PM
Posted 06 March 2007 - 04:27 PM
Here is a link from our Sclero A to Z web page that talks about research looking at PUVA/UVA-1 and Phototherapy.
I don't know if this is the same UV light used in sunbeds, but it will at least give you some information on UVA light and scleroderma.
Posted 06 March 2007 - 08:35 PM
My daughter's dermatologist has suggested that we look into UVA/light therapy when she is older (she's only six) to help with the discoloration. He recommends short daily spurts of sun exposure, but always with sunscreen.
Posted 08 March 2007 - 05:24 PM
Posted 09 March 2007 - 03:43 AM
I have been receiving PUVA treatments on my hands and feet for the past two to three years. I went twice a week at first, and now go once a week.
The PUVA treatments seem to have helped stop the puffiness and skin tightening, and then slowly improved them. It also seems to help with my Raynaud's.
The improvements were slow, but I noticed a difference within a few weeks of stopping treatments. I had to start again.
Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.