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possible operation on the cards can you advise please


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9 replies to this topic

#1 Lynnie

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Posted 13 November 2011 - 08:02 PM

Hello Everyone!

Due to bothersome menstrual bleeding ...8weeks on and off a total pain!... I am probably going to have surgery.

I am due to see the gynaecologist at the beginning of December. My ultra-sound scan showed I had fibroids that had arrived and due to this wacky disease and my body's response, my general doctor seems to think that I'm trying to eradicate them myself!.

I am nearly 54 and she has said in her referral that in her opinion they should be removed. As well she has said due to the scleroderma perhaps a hysterectomy should be done at the same time to avoid post menopausal issues later. She would rather I have the operation while my health is relatively good than wait till later. My mouth opening is shrinking and I cannot open as wide as I used to hence her concerns re. anaesthesia being performed at a later time.

Have any of you any tips or experiences to help me to get through this as safely as possible?

Hugs and thanks
Lynn

#2 judyt

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Posted 14 November 2011 - 02:10 AM

Hi Lynn,

Sorry to hear you are having problems, what a bother!!

As far as I know about things like this most abdominal surgery is done laparoscopically (keyhole) and actually it is much easier to recover from than in the past. I had quite major stomach surgery a few years ago and recovered quite quickly. Yes the mouth thing is a bit stressful, I have a very sensitive gag reflex but I make sure everybody knows and it always seems to be OK.

Best wishes to you, don't worry, it will be all right'
here are some balloons to lift your spirits :balloons:

Love JudyT

#3 Buttons

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Posted 14 November 2011 - 09:28 AM

Hi Lynn

I had a hysterectomy 20 years ago through having Endometriosis, mine was major abdominal surgery and took about 3 months recovery, basically six weeks doing not very much & then steadily increasing activity after that. A lot depends on how they do it because things have moved on so much so as laparoscopically & through the vagina. It is scary but I can honestly say I've never looked back!

It is scary thinking about it but you will be fine.

Buttons

#4 Joelf

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Posted 14 November 2011 - 12:12 PM

Hi Lynn,

I'm so sorry that you're having such problems with excessive bleeding and fibroids. It's very unpleasant; I speak from experience as I have five fibroids and actually had two others removed by laser treatment about 5-6 years ago. That particular treatment was not invasive and I was in and out of the hospital in a day.

I know how worrying these sorts of problems can be; I also have a slight prolapse which along with the fibroids has necessitated so many internal ultrasound scans I'm now on first name terms with the radiologist!! ;) :lol: I have a nasty, sneaking suspicion that I may possibly need to have a hysterectomy in the future, but more because of the prolapse rather than the fibroids; I'm trying to put it off as long as possible! ;)

I do hope you can get the problem resolved satisfactorily; obviously you don't want to have an operation if it's not absolutely neccessary but I can see the sense in doing it sooner rather than later if your health is stable at the moment.

:emoticons-group-hug:

My best wishes to you,

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#5 rubydoo

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Posted 14 November 2011 - 02:50 PM

Hi Lynnie

I had an operation last week to have my gall bladder removed and had also been told that there may be difficulties due my very small mouth opening. My mouth opening is one and half finger widths and the surgeon told me that I would have to be intubated whilst I was awake. However on the day of the operation the surgeon was very confident he could the intubation whilst I was asleep and he did this, much to my relief. Try not to worry too much, I am sure it will be fine
Good luck
Helen

#6 Amanda Thorpe

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Posted 14 November 2011 - 03:44 PM

Hello Lynnie

To the best of my knowledge there is no medical evidence to support hysterectomies in scleroderma just in case you might have problems, in other words there is nothing to suggest that you should have a hysterectomy just because you have scleroderma.

Whatever operation you have I hope it goes well and your problems end!

Take care.
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#7 techylady

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Posted 16 November 2011 - 12:17 PM

Hi Lynnie

Ask your surgeon if the anaesthetists run a clinic for patients with conditions that may make an anaesthetic more difficult. I'm secretary to an anaesthetist who runs such a clinic and he sees people with heart or breathing problems, anaesthetic phobias, and I know he has seen people with scleroderma. In our hospital the clinic is known as the "Anaesthetic Assessment Clinic". The anaesthetist I work for takes the patient's full medical history and makes recommendations about how to carry out the surgery and anaesthetic to best effect for the patient.

#8 Lynnie

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Posted 17 November 2011 - 06:30 PM

Hi there,

Many thanks indeed for the kind words and infomation you have given me; I will certainly ask the consultant about the special assessment clinic.

I have very much come to the conclusion that if I need the operation to be 'done with it' I'm more than happy to go for the key-hole or vaginal hysterectomy but abdominal is in my view far too radical and I'll avoid that if I can.

At 54 and 40+ years of periods in my view is more than enough haha, I think they should invent a pill to end it all after 50 if you wish it lol; after all they have a pill for everything else. I'll keep you posted what they decide on the 13th December ...wish me luck!

Hugs to all,
Lynn :emoticon-hug: :thank-you:

#9 Joelf

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Posted 18 November 2011 - 02:01 AM

Hi Lynn,

Good luck with your appointment!! :emoticons-group-hug:

Best wishes,

Jo Frowde
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#10 Sheryl

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Posted 28 November 2011 - 08:35 AM

Lynnie, keep us informed and updated on what you decide. I went for the hysterectomy. So happy to not have prolonged menstrual cycles anymore. Whoo Hoo! Happy dance.
Strength and Warmth,
Sheryl

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