Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Finding Pcps


  • Please log in to reply
6 replies to this topic

#1 Clementine

Clementine

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 07 March 2007 - 08:07 AM

I am so bummed. I have had good luck with finding good PCPs in the past but this one I went to today was awful. First, he looked like he'd been on a binder and had last night's clothes, slept in them and rolled into work and hadn't showered in a week. I decided to get past appearance (although I feel healthcare providers should be CLEAN).

I had a bad vibe but I let him do his drill. It was so unprofessional. HE did not know what sclero was and said he had to look it up. He wrote me out RXs and said he wanted to do complete blood work, which was fine, but about that time my gut was telling me to RUN....so before the nurse came in to do the labs I bolted.
I seriously was about to have an anxiety attack, it was that weird.

Just wanted to tell someone my story...I need to call them and tell the office something...and I do want to spare the dr. any bad feelings.

What next? I have his RX and I won't use them...
Jennifer

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 07 March 2007 - 09:08 AM

Hi Jennifer,

I'm sorry, but I had to laugh at your description of this. I have also bolted from several doctor's offices over the years...plus a few more I sure wish I had had the good sense to run away from.

Now my approach is to figure out which hospital system I want to be in (we have a variety, being in a large metro area), then I research the clinics that have privileges at that hospital.

I reduce that to a list closest to me, and call each of the clinics to see what doctors are still accepting patients. I research each of those doctors and set up a 10 minute get-to-know-you appointment, starting with the one I think is most likely to be a good fit, from what I know so far. (I make it clear that I am in the process of selecting a new doctor and that I am not to be automatically enrolled in their clinic.)

If there are several candidates in one clinic, I throw myself on the mercy of the receptionist and/or head nurse, and ask which internist would be best for someone with a rare, chronic autoimmune disease. If that generates more than one name, then I ask which one takes a more collaborative approach with patients, because I don't fare well with a stern authoritarian approach.

At the interview, I bring a list of my most important questions. I pay attention to everything, especially my gut, and I really keep it in mind that there are plenty of other doctors out there if this isn't a terrific fit all around.

It's a laborious approach (it takes a good day or two of concerted effort), but it really works. I feel extremely confident in my care, knowing that my doctor really knows his stuff and is well suited for me, and that my hospital is tops in the categories that are most important to me.

Last time I did this, I ended up with a terrific internist, on my first interview. I also bring my husband along, in case he picked up on anything I missed. It's easy to be too eager to get a new doctor, and not take the time to ask all the necessary questions.

In short, I no longer ever assume that any doctor is going to be a good fit. It's just too complicated with chronic illness, and too many clinics and doctors that are not well suited to providing good care for intricate cases.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Patty

Patty

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 306 posts
  • Location:N.W. Connecticut

Posted 07 March 2007 - 09:14 AM

Hey Jen,
I am so sorry that you had the Dr from the Adams family today! My only suggestion would be maybe find a support group and see who they suggest, or even call the hospital and see who the nurses suggest. I figure if they have to work with them then they should know who to go to. My grands pedi was found because of the nurses at my local hospital and I love her she really is great.
I wish you the best.
Hugs,
Patty
Hugs,
Patty

If Life hands you lemons, make lemonade.

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

#4 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 07 March 2007 - 02:03 PM

Hi Jennifer,
I am so sorry that you had such an awful experience, but thanks for the laugh! I needed it today. I would definately call around to see who others suggest. I lucked out with my primary care physician. We have been together for 16 years....three different locations....but I keep following him! He was the one who found my sclero before I had any real symptoms. I will be with him until he retires.

Good luck, but don't give up!

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#5 Clementine

Clementine

    Gold Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPip
  • 684 posts

Posted 07 March 2007 - 03:01 PM

I"m glad y'all got a laugh out of my story...
The doctor's office called me shortly after I beelined for my car and I did not answer my phone. I paid my copay but I will call back tomorrow and tell them I was not comfortable with the Dr.
I am certain I am not the first person that's done this with him.
JD :)
PS: My brother is officially home from Iraq as of today!!!!!!!!!!!!!!!!!!!!!!!

#6 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 08 March 2007 - 02:19 AM

Jennifer, let us know the ending of your saga. I am anxious to hear what the nurses reply to your comments and reasons for bolting.
Glad to hear your brother made it home safely. I hope you get to see him sometime soon. He will have a chance to get better aquainted with your husband. You are a stitch. Sheryl
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#7 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 08 March 2007 - 05:16 PM

Oh Jen,
I am so sorry. I'm glad you listened to your gut however. That takes "guts" - good for you!

I hope that you can find another provider that you have confidence in and have a good rapport with.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)