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ISN Video: Systemic Scleroderma by Amanda Thorpe

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#1 Joelf


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Posted 13 December 2011 - 09:18 AM

Amanda Thorpe has produced another video, entitled Systemic Scleroderma. Did you know that when scleroderma affects the skin, it can cause the skin—most commonly on the hands and/or face—to harden? Watch this video to find out more! (Also see: Amanda Thorpe and How to Volunteer) Posted 12-13-11.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.

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#2 miocean


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Posted 14 December 2011 - 10:02 PM

Once again, Amanda, I admire what you do so much! :you-rock: It took me a long while on the forum to realize how much you are affected by scleroderma and I know what it took you to do these videos. I am not even be able to get mascara on anymore between my hands and being blind as a bat without my glasses! I used to love wearing eye makeup, lots of pretty colors of course, but now it ends up all over the place so what you see is what you get.

"There is life after scleroderma." Amanda Thorpe

I lived by those words for so many years and they have been a lifeline to me. :thank-you:

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#3 Sweet


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Posted 15 December 2011 - 11:42 AM

Amanda, this is so great. I love your voice! What an asset you are!
Warm and gentle hugs,

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