Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

It's been awhile


  • Please log in to reply
14 replies to this topic

#1 Jaggers

Jaggers

    Bronze Member

  • Members
  • PipPip
  • 15 posts

Posted 23 December 2011 - 04:34 PM

Hi All,
It's been awhile so just let me reintroduce myself. I'm Jaggers and wishing everyone a Happy Holidays and a Happy New Year, I'm off to Melbourne for a few days with a mate leaving late afternoon on holiday day,
so cheers all
and see you all in the New Year
Jaggers

#2 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 23 December 2011 - 06:56 PM

Hi Jagger,

Welcome to our Forum. I hope you and your friend have a great time in Melbourne.

Look forward to hearing from you again.

#3 Jaggers

Jaggers

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 15 posts

Posted 24 December 2011 - 03:50 PM

Thanks Robyn,

First real holiday in years. When does the avarta change has put in an ace a sunset over Western Australia my home state.

#4 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 24 December 2011 - 08:24 PM

Beautiful photo Jaggers.

Enjoy

#5 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 27 December 2011 - 01:59 PM

Welcome to the forum Jaggers, look forward to getting to know you. I'm in the UK myself.

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#6 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 27 December 2011 - 03:04 PM

Hi Jaggers,

Welcome to these forums!

I'm looking forward to reading your posts.

Kind regards,

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#7 Jaggers

Jaggers

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 15 posts

Posted 08 January 2012 - 05:03 PM

Looking forward to getting to know everyone again; it's been 7 weeks now of having no problems with my breathing, I've had the odd cough but that's it, so have been pushing myself over the weekend. I haven't used my walker and done a bit of walking on level ground, for me I can cope with the pain it was the struggling to breathe and no breaks from the coughing. Just taking each break and not worrying about when it will come to an end. Just enjoying.

#8 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 08 January 2012 - 08:23 PM

Hi there,

How was your holiday?

#9 Jaggers

Jaggers

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 15 posts

Posted 15 January 2012 - 05:35 PM

Hi Robyn,
It was great though in the end we didn't stay in Melbourne. Went on up to Sydney, dropped in on mates, had a look at some miniature horses and went to a show where a couple of friends did really well.

#10 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 15 January 2012 - 05:44 PM

Glad you had a wonderful time.

#11 Jaggers

Jaggers

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 15 posts

Posted 15 January 2012 - 05:44 PM

Week 8 was a little breathless and wheezy and the odd coughing bout over the weekend but it seems to have settled again, The chemo treatment is double along with high doses of steriods before it starts has stopped any reaction from happening, Even the nursing staff made comments on how much better I looked and sounded they couldn't get over the change as they have known me for 3 years

#12 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 15 January 2012 - 05:53 PM

That's great news. Nice to have some positive feedback.

#13 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 16 January 2012 - 11:11 AM

Glad to hear things have improved Jaggers!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#14 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 16 January 2012 - 11:19 AM

So pleased that you do seem to be doing much better, Jaggers! :emoticons-yes:

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#15 Jaggers

Jaggers

    Bronze Member

  • Topic Starter
  • Members
  • PipPip
  • 15 posts

Posted 05 February 2012 - 02:41 PM

So pleased that you do seem to be doing much better, Jaggers! :emoticons-yes:

Thanks Joelf, but my break is over it lasted nearly 10 weeks and was great to feel nearly normal and to be able to walk again. It was what I missed the most; now looking forward to my next break.