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Did you know that exercise increases inflammation in systemic sclerosis?


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Featuring: Northwestern Scleroderma Program in Chicago


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#1 Joelf

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Posted 26 January 2012 - 12:02 PM

Northwestern Scleroderma Program in Chicago.

This center serves adult scleroderma patients from throughout the Midwest. They are dedicated to providing exceptional care while pursuing research toward a cure for scleroderma. ISN. Posted 01/26/12.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.

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#2 sonk

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Posted 15 March 2012 - 07:36 AM

Does anyone know if there is an institute, research in the Arizona area? I just cannot find much as to the amount of research in progress. I am new to this but it seems like there is not much effort as with other diseases.

#3 Amanda Thorpe

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Posted 15 March 2012 - 08:24 AM

Hello Sonk

Welcome to the forums! The information we have for Arizona is:

Institution: Mayo Clinic Scottsdale
13400 E Shea Blvd
Scottsdale, AZ 85259
Coordinating Investigator: Leroy Griffing, MD
Lester Mertz, MD
Telephone: (480) 301-7105
Fax Number: (480) 301-7558

Here is our list of scleroderma experts for information.

Funny that you should say there's not that much effort with this disease, we have been discussing that very point in this topic. Unfortunately scleroderma does lack funding, research, publicity and understanding which just adds to the difficulty for those of us with it.

What type of scleroderma do you have and have you been diagnosed long?

Take care and keep posting.
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#4 Joelf

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Posted 15 March 2012 - 02:05 PM

Hi Sonk,

Welcome to these forums!

As Amanda has said, Scleroderma is an unusual and complex disease, which sadly many rheumatologists do not really understand. This is why we always recommend that our members consult a Scleroderma specialist, such as those on the list Amanda has given you.

Do post again and let us get to know you.

Kind regards,

Jo Frowde
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