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Declaring International Medically Free Day


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#1 miocean

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Posted 23 February 2012 - 11:40 PM

I am hereby unofficially declaring the next few days, or whenever you can, to join in and celebrate

:happy-day: MEDICALLY FREE DAY! :happy-day:

:emoticons-line-dance:





This means you will allow yourself to "pretend" you are not sick. You will not go to a doctor. You will not look at a medical bill or record. You will not obsessively search the internet reading medical sites.

You ARE allowed and encouraged to use the ISN site and forums. You are to treat yourself with kindness and do something special for yourself because YOU DESERVE IT! You will smile at other people and try to get them to smile back. You CAN (and must) take all you medications but "pretend" you are taking magic that will make everything absolutely wonderful.

(JudyT - this will be a hard one for you)

Please share what you will do to join in:

WARNING! THIS IS NOT AN EASY THING TO DO!

Day 1: I "tried" to start this today. No doctor appointments for the first day this week. Massage and nails done. I have rainbows on my fingers and toes! Each nail is painted a different color of the rainbow. I bought tulips to watch bloom.
Then a medical appointment had to be rescheduled next week. Medically related things came in the mail. My files are on a table in clear view, they are going out of sight tonight. A doctor's office called about a prescription.

Day 2: Tomorrow I am making Tiny Crustini with Parsley Pesto and Goat Cheese (with my husband's help because I burn the salad. :VeryHappy: ) It's supposed to rain so maybe we'll go to a Pinball Museum near here, pay a small fee and play all these great old machines that have the histories of them posted. (Did you know that pinball was originally gambling and illegal until th 70's in many places in the U.S.? It dates back to the French Revolution and the REALLY old machines are wooden boxes with nails in them.)

Speaking of gambling, who wants to bet that I can get through one day...?

I'll keep you posted.

:emoticons-group-hug:
miocean
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#2 miocean

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Posted 24 February 2012 - 08:18 PM

Day 2: FAIL
Woke up in total anxiety over things. A friend and neighbor called and I haven't talked with her in a month because I was away. She was a nurse and great friends with my GI doctor and he had told me to tell her 'hi' so he came up and then we discussed medical issues as she and her husband are both going through difficult health times as well. So by 9 a.m. I was over. The anxiety started building and I put in a call to my lawyer and left a message because I need help with the disability form. About 40 or more pages have come and some have more information on them than the reason for the visit and the date. Interestingly, the form doesn't ask for the doctor's name. I know I spend a lot of time at the doctors' but when I see it all at once, pages and pages some with the money it cost (thankfully I have Medicare for another year and a secondary) it is very upsetting.

Then my husband and I made the crustini. Good thing I waited for him because the recipe in the book was very dry and wouldn't roll into dough. I would have thought I was totally inept and a failure at cooking and never tried anything again. He added water to it as there was none in the recipe and it was fine. I wrote down the amount on the recipe. I also called for salt and cayenne but had no amounts. 1/2 cup? :D However I baked them beautifully (I AM a great cookie baker now as the past two years I have been baking them) and have these tiny, pretty, scalloped edged crackers. Tomorrow I (we) will make the parsley pasto and top the crustini with it and goat cheese. I am also rolling sliced pepperoni around cream cheese and making fruit skewers for a party tomorrow night at my sister-in-law's house where family and friends will be celebrating birthdays because almost all of us were born in January or February. Must have been those hot summer nights... :wub:

I will not give you a diary but will let you know the day I have
SUCCESS!

And I have started another thread.

:yes:

miocean
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#3 judyt

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Posted 28 February 2012 - 11:22 PM

You are doing well, even a few hours at a time without a worry in the world is a GOOD result, I came home on Monday and that was GREAT.

You are right, it is harder for me but I am getting better. Today I ate more than yesterday, I made an excursion downstairs to my sewing room and sewed a few blocks for a charity quilt, I am now contemplating whether to go across the road to the Pub and see our Wednesday evening buddies for the first time since 25 January. I won't be staying and I will have to be driven all of 100 yards up the wee hill!!!!!!!!! maybe I will be able to walk home though.

Today's major huccup was even solved, when we arrived back in the city from the beach the lifts were not working!!! and we live on the 8th floor - 21 flights of stairs UP. Lo and behold there was the service man who immediately offered to take us to our home PHEW!! I had visions of being driven to the front door then having to wait in the foyer until such time as the lifts were repaired. Everybody who came in the front door was sure to have asked me what was going on a nd this is after work time!!!!

Thanks for this thread Miocean, it doesn't hurt to be reminded to find the good things each day.

Warm hugs and best wishes for more good things tomorrow.

JudyT

#4 Amanda Thorpe

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Posted 29 February 2012 - 02:26 PM

Hello Miocean

Never think you're inept if a recipe fails especially if it's written wrong! When I met my husband I began cooking and one of the first things I did was make a hedgehog cake for my youngest stepson, first test cake was nearly a failure and I remember thinking this is the end of the world if it doesn't work! Whatever will I do if I can't cook!

Well I persevered and got good enough to make novelty cakes regularly and have very successful 3 course dinner dinner parties for up to 10 people. Thanks to sclerodactyly novelty cakes are impossible and thanks to scleroderma dinner parties are rare, small scale and whatever I serve has to be a recipe that can be made beforehand or left to cook on its own with minimal effort from me.

Take care.

Hello Judy

Glad you're home and eating! Take it easy though!

Take care.
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#5 miocean

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Posted 04 March 2012 - 11:20 AM

:happy-day: SUCCESS! :happy-day:


It took some doing and easing in to but I was able to have a medically free day! I would start out a day only to blow it, a support group meeting, a friend in the hospital, rescheduling doctor appointments, blah, blah, blah, but yesterday I met with total success.

It really wasn't easy. It took a couple of days trying. Without even realizing it I would find myself engaging in discussing my health issues. I signed up for a painting class and was talking with the instructor, also a retired art teacher, and just said I haven't really painted for several years "because my life took a detour" and that I need to be in an environment that isn't full of sick people. Then I went to an art supply store and briefly discussed scleroderma and how my hands are affected and difficulty holding brushes but didn't go into all the details. I have always been very open about discussing scleroderma and organ donation but I am learning that if it upsets me to present as a sick person there are times when it doesn't need to be brought up.

But yesterday I caught myself reading a medical article on the internet, knowing my usual habit was to continue clicking on links and reading more but was able to limit myself to the one I was really interested in. I enjoyed the day doing things around the house, getting things ready for the painting class, and last night we went out to a club to watch the "young kids" party. We looked like chaperones, but that was ok. So I consider that a success! :emoticons-clap:

I know I won't be able to do that every day but I am going to try my best to do it most days. I am going for another "Medically Free Day" today but tomorrow I have to get back to dealing with it. One of my "new" tricks is not to bundle all of my doctor appointments in the same week. In the past I have just looked at the day the doctor wants to schedule and if it was open, put it on the calendar. Then, when the time arrived I would discover I have 4 appointments the same week. From now on I am going to look at the entire week and base the scheduling on that.

Little by little...

miocean
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#6 judyt

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Posted 04 March 2012 - 10:13 PM

Hi Amanda and Miocean,
I wonder if I can safely say I am home from hospital for good!!!!

The last time I posted I was raving on about all the good things that had happened that day - famous last words. Within 2 hours from then I was back in hospital and have just come home today. I don't believe it, it just goes on and on.

Last Wednesday I went across the road to have a bite of dinner with our friends, needed to go to the loo and then found that my wound was bleeding!!! As far as I knew the wound was healing nicely and my main problem was feeling a bit sick. OOPS!!

It turned out I had a Haematoma under the incision which had chosen that moment to start to leak - blood everywhere. Several more days on my back with more expensive dressings and at last they say the District Nurse can handle it and I have to go back in 2 weeks for a check.

In the meantime the second stage of my SNS implant has been put on hold until I recover enough. I have a surgery date of next Tuesday morning but I suspect that will be delayed again. I don't really fancy having a hole under my belly button as well as a new incision on my back - we shall see.

However today is a lovely day, I am still eating well and I am still in the land of the living so what could be better.

Warm Hugs to everybody

JudyT

#7 Joelf

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Posted 05 March 2012 - 01:36 AM

Hi Judy,

Goodness me, what a dreadful time you've been having! I'm so sorry; you must be thoroughly sick of hospitals by now! It sounds like a wise decision to put off the second stage of your SNS implant; you'll be resembling a colander otherwise!! :lol:

I really hope you soon see an end to it and can recover with no more problems.

Hi Miocean....... :emoticon-congratulations: on your successful medically free day!!

Best wishes to you both,

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#8 miocean

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Posted 05 March 2012 - 08:20 AM

Judy,

Wow, you've been through those revolving hospital doors too much lately. I hope everything goes smoothly from here on out. You didn't say how much you are still bleeding but said you can handle it. I found disposable underwear to be a blessing when my wound from the transplant was bleeding for weeks.

I hope you are now on the mend.

miocean
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#9 judyt

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Posted 05 March 2012 - 07:14 PM

Hi Girls,

Just to put the record right, I have actually stopped bleeding - thank goodness. I am capable of bleeding for days on end, but that is usually from a fairly superficial wound, This one goes right through the abdominal wall (well almost) and now that it is clean it doesn't bleed at all.

Judy

#10 KayTee

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Posted 07 March 2012 - 10:25 PM

I love this thread. Don't really think it's working yet :( but I'm trying.
Kay Tee

#11 miocean

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Posted 14 March 2012 - 07:40 AM

KayTee,
I know what you mean. I actually have a little break now: social security disability update forms are handed in which is a big load off my mind and relieves me of a lot of anxiety and I don't have a major doctor's appointment for a couple of weeks. I have two standing appointments weekly for therapy and chiropractic but those are no big deal. I have some minor things to deal (medical bills) with but I am choosing to ignore them. I should probably call my GI doctor because the medicine he gave me to counter the effects of the magnesium supplement I have to take to counter the effects of the anti-rejection meds aren't really doing anything :)

But NOT TODAY! It is a beautiful day and warm enough to go...to the beach! At least until I have to go to see my therapist.

I have come to the conclusion that a perfect, totally medically free will be a rarity but one I will continue to strive for.

miocean
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