Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Electromyography (EMG)

  • Please log in to reply
3 replies to this topic

#1 amberjolie


    Silver Member

  • Members
  • PipPipPipPip
  • 197 posts
  • Location:Ontario, Canada

Posted 01 March 2012 - 09:16 PM

Hi! I can't remember if I posted about this or not, but I had an EMG a couple of days ago because my blood work showed an elevated CK level, which can be a marker of polymyositis.

I found it quite unpleasant. The doctor put a needle in the front part of my calf muscle, and then the machine was sending shocks through it, I think. Then she asked me to flex my foot. I didn't even want to move! Then another needle in the inner part of my lower thigh.

The good news is that it's now over, and I don't have polymyositis.

#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,900 posts
  • Location:West Sussex

Posted 02 March 2012 - 01:53 AM

Hi Amberjolie,

I'm pleased to hear that the EMG was successful and that you don't have Polymyositis although it doesn't sound as if it was a very enjoyable procedure!

I have the positive antibody Anti-PM/Scl and slightly raised CK (creatinine kinase) and LDH (lactate dehydrogenase) levels which can also indicate Polymyositis, but thankfully so far I haven't developed the full blown disease (and hopefully I won't!! ;))

Kind regards,
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 02 March 2012 - 03:48 AM

Hello Amberjolie

Not having polymyositis is a good thing although the test didn't sound it! Some people find this test really painful and some people don't, weird eh?

Take care
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#4 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 02 March 2012 - 11:09 AM

Hi Amber, Jo and Amanda.

When I had an electromyography, I was being checked to see what stage my carpal tunnel was, which turned out to be the most advanced. The result stunned the doctor, as I (then) had great manual strength (for a woman). He thought I did very well during the test, as I moaned little; thankfully, he was unaware of how truly excruciating the pain of the test really WAS. The reason it was so painful for ME, is that (at that time), my nerve endings had terrific sensitivity. Also, down the road, I found out that my (undiagnosed) Scleroderma was the cause of the onset of carpal tunnel!

So, Amber...I can greatly empathize with your take of unpleasantness of the test, so I'm sending you lots of :emoticon-hug: s. (Sorry I didn't send them for you to use right AFTER the electromyography :( ). At any rate, I'm glad the results turned out as they did.

Hope you have a good weekend.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)