Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

Improving the appearance of Calcinosis?

calcinosis home remedies

  • Please log in to reply
5 replies to this topic

#1 splaty

splaty

    Newbie

  • Members
  • Pip
  • 7 posts

Posted 06 March 2012 - 11:55 PM

Hi, I've posted before about my extensive calcinosis on most of my body and joints. As any of you with calcinosis know, it's not only extremely painful but also unsightly and ugly. I have a very ugly patch just above my tailbone, and on my hips. I was wondering if anyone has had success in reducing the redness of these areas and making them less unsightly?

Anything anyone has done or suggests is appreciated. Just to update, I'm being treated for juvenile dermatomyositis (had it since I was 9, I'm now 18). I'm currently on methotrexate, and for my calcinosis I'm on a newer drug called Revlimid (lenalidomide) similar to thalidomide. I haven't seen any promising results yet but have only been on it for 3 months.

#2 Robyn Sims

Robyn Sims

    Silver Member

  • Members
  • PipPipPipPip
  • 166 posts
  • Location:Melbourne Australia

Posted 07 March 2012 - 03:10 AM

Hi Splaty,

I hope there are others who can give some advice on the calcinosis redness. I will be keeping an eye on your post as I know a few people who would like some help with this problem.

I hope that your newer drug does kick in soon. It is test of patience when trying a new drug.

#3 Joelf

Joelf

    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,610 posts
  • Location:West Sussex

Posted 07 March 2012 - 06:41 AM

Hi Splaty,

The Calcinosis must be really painful and unsightly; thankfully I've never suffered with it and I'm so sorry to hear that you're experiencing problems with it.

I've found a useful thread here about Calcinosis and some treatments recommended by a few of our members. I do hope the new medication you're taking will give you some relief.

I expect some other members will be able to give you more helpful tips and first hand advice.

Kind regards,

Jo Frowde
ISN Assistant Webmaster

SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager

ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)


#4 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 07 March 2012 - 12:52 PM

Hello Splaty

I am sorry you are struggling with this, I must admit it was one of the things I never wanted to have and don't. I have yet to hear of anyone with a successful treatment for calcinosis but who knows the medication you are on may prove to be it in which case you can share it with everyone as well as enjoy the benefits of it yourself!

Take care.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#5 splaty

splaty

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 7 posts

Posted 17 March 2012 - 01:40 AM

I am starting IV/IG treatments on Friday in the hopes it will improve my calcinosis. Will keep you all updated on the results.

#6 miocean

miocean

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 925 posts
  • Location:NJ

Posted 17 March 2012 - 08:23 AM

Splaty,
I understand the discomfort you are experiencing with calcinosis as I have it extensively on my lower buttocks right where I sit. However, I sense your question is what to do to make it appear less unsightly. Any 18 year old wants to look their best so this must be very distressing to you. A pimple is enought to make a teenager go into a frenzy! You don't say where you live but if it is where the weather is getting warmer and summer clothes are coming into the picture your concern for your appearance is probably even greater.

I don't have an answer as to how to make it look better while you to wait to see if the medication does anything to improve it. I am not a fashionista but there are probably styles of clothing that can comfortably cover or draw attention away from these areas. I feel for you, it is bad enough to have a chronic illness as a child, let alone one that affects the way you look.

miocean
ISN Artist





Also tagged with one or more of these keywords: calcinosis, home remedies