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Vitamin D and autoimmunity.


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#1 Joelf

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Posted 14 March 2012 - 06:23 AM

Vitamin D and autoimmunity.

A review of the experimental, epidemiological and clinical studies illustrating the potential role of vitamin D in the development and perpetuation of autoimmune diseases. PubMed. Rev Med Interne. 2012 Feb;33(2):87-93. (Also see: Causes of Scleroderma: Vitamin D Deficiency)

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#2 miocean

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Posted 14 March 2012 - 07:29 AM

I am curious as to why scleroderma is rarely listed as a disease on these abstracts...


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#3 Shelley Ensz

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Posted 14 March 2012 - 02:23 PM

Hi Miocean,

Because we're just not as popular as the rest of the diseases. We're the kid that always gets picked last for teaming up.

If you were always among the first-picked, you wouldn't know what this is like.

But I thought for sure that I would absolutely, certainly, die a thousand deaths at our first school dance, the one where all the boys are on one side, and all the girls on the other, and neve the twain shall meet? Then all of the sudden, there is a rush for all the popular girls and I was blushing and wished I could fade right into the walls of the school gym.

At the very last second, I was rescued by Steve Tanamachi. I'm not sure I ever saw him very much, either before or since, but I have always remembered his kindness for picking me for the first seventh grade dance.

Children, what is the moral of this story?

a) Pick me first, I will always appreciate it, even 50 years later.
b) We still have a long way to go for raising awareness of scleroderma.
c) Steve Tanamachi is a pretty wonderful person and a great dancer, too.
d) Miocean always asks good questions, which is only 1 reason why we all love her.
e) All of the above.

(E rewsnA tcerroC)

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#4 Amanda Thorpe

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Posted 14 March 2012 - 05:21 PM

Hello Shelley

Here in the UK it's described as an orphan disease which is defined as a disease that affects a small percentage of the population and/or has not been adopted by the pharmaceutical industry. Yep we're total losers for sure! :lol: :lol:

I only ever went to one school dance, wen I was at an all girl's school ironically, we invited one of the all boy's schools over and I was one of the only girls to dance the entire time with a boy :wub: , I just can't remember his name! Sorry! I think I was about 12/13 and can't remember what grade I was in? What grade would I have been at that age?

Take care.
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#5 Climber

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Posted 14 March 2012 - 05:25 PM

And believe it or not MCTD is even less popular. It is mentioned even less and some years back even doctors argued whether it even existed and there are probably still some left who still don't. So MCTDers might be last among the last

I'm so glad your group was kind of me to let me join as there is very little in support groups for MCTD. There is also very little in research, clinical trials or even information on MCTD. Many consider it of the scleroderma spectrum so I'm happy to join and learn here.

The worst part of it is explaining it to anyone. I know there are many who have never heard of Scleroderma, it isn't as common as lets say lupus. But there was a movie about it and so I have found many who have heard of it but most know precious little about it. But try telling someone you have Mixed Connective Tissue Disease -- that is a mouthful. MCTD also gets a blank stare. Then try figuring out how to explain it -- do you go through the 3-5 diseases you could have symptoms of -- where each disease has their own long list of possible symptoms -- do they really want to hear it or have time to hear it, it could turn into a very long discussion. But ahh yes I know all of you do undersand for you each have your own flavor of this Scleroderma Spectrum and there are so many flavors and there are so many possible symptoms. How do you all decide how much to share with someone before their eyes glaze over.!!
Blessings -- Climber

#6 Amanda Thorpe

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Posted 15 March 2012 - 08:27 AM

Hello Climber

Yep, I'd rather be explaining scleroderma that MCTD for sure! Yes the eyes glaze over so you just give up and have to hope that your nearest and dearest understand and settle with that.

You are most welcome here, MCTD is still a connective tissue diseas as is scleroderma so you're one of us whatever they call you!

Take care.
Amanda Thorpe
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#7 Joelf

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Posted 15 March 2012 - 01:14 PM

As my husband said when I was diagnosed..."Trust you to have something different to everyone else!!" :lol:

I usually explain it to people by saying that it's a form of arthritis whereby my immune system has attacked various parts of my body; sometimes they understand or not, as the case may be.

I can't recall going to any dances at my school (it was an all girls school anyway ;)) but I do remember going to dances (in the very dim and distant past) where we did a "Paul Jones" ( that will date me!! ;)) This consisted of music playing something like "Here we go round the Mulberry Bush"; a circle of boys would be going around in one direction with an inside circle of girls going round in the other direction. When the music stopped you would turn and (supposedly!) dance with the person opposite you. You could wangle it so you ended up opposite the person you wanted to dance with, :emoticons-yes: but equally you could end up having to dance with someone you would really rather not!! :lol:




Miocean has started a great thread here about dancing on The Fun and Friendship forum. :)

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