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Did you know that exercise increases inflammation in systemic sclerosis?


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Fingers crossed for tomorrow!


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#1 Teatime

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Posted 11 April 2012 - 08:29 PM

I'm about 9 weeks post operation from my cardiac cryoablation and tomorrow I'm having my first EKG and a 24-hour heart monitor attached to see how my heart rhythm is doing! At my first followup appointment, my cardiologist said my heartbeat sounded much smoother and more regular. I hope the monitor shows very few, if any, episodes of atrial fibrillation.

Prior to the procedure, the monitor showed that I had 17 bad episodes in a 24-hour period! I was at a huge risk of stroke so they put me on blood thinners and sent me to Baylor's heart hospital in Dallas. (WONDERFUL place! My doctor there was awesome!) I'm hoping it's much improved and I can cease the blood thinners soon! My cardiologist here warned me that I may need to have the procedure done again but I'm just glad to be feeling better now. All of that arrhythmia was SCARY!

#2 Joelf

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Posted 12 April 2012 - 10:37 AM

Hi Julia,

I'm thinking of you today and hoping that the ECG and heart monitor will show a distinct improvement in your heart rhythm and that there won't be any episodes of artial fibrillation.

It's excellent news to hear that you're feeling better.

Kind regards,

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#3 Teatime

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Posted 12 April 2012 - 11:02 AM

Thank you, Jo! It will be interesting to get the results next month from my cardiologist.

When my internist initially put me on the heart monitor late last year when I had a bad episode, I didn't think it would show anything because I didn't feel any bad attacks. However, when she got the results, they were horrible and she called my cardiologist immediately. I was in atrial fibrillation all night long. No wonder I was waking up tired in the morning!

There have been studies showing that folks with Lupus and RA are much more likely to have atrial fibrillation. I wonder if that's the case with sclero, too?

#4 Joelf

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Posted 12 April 2012 - 01:26 PM

Hi Julia,

I understand that sometimes there are no noticable symptoms for some sufferers of atrial fibrillation.

There have been studies showing that folks with Lupus and RA are much more likely to have atrial fibrillation. I wonder if that's the case with sclero, too?


We have an informative section on Arrhythmias, Palpitations, and Conduction Disturbances which does relate to Complications with Systemic Scleroderma (SSc) Heart Involvement which I hope you'll find interesting.

Do please post and let us know the results when you receive them from your cardiologist.

Kind regards,

Jo Frowde
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#5 Amanda Thorpe

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Posted 12 April 2012 - 02:50 PM

Hello Julia

Have a look at our video about heart involvement in scleroderma by yours truly, did you know that cardiac manifestations are one of the first symptoms for people with scleroderma? I wish someone had told me that years ago for sure! I have myocardial fibrosis and sbsequent heart failure however thanks to implantation of a biventricular ICD I am alive and well, without it would have been dead by now.

Take care.
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#6 Teatime

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Posted 12 April 2012 - 08:20 PM

Great video, Amanda! Well done!

Interesting info. The atrial fib. started up out of the blue. I'd been dealing with premature ventricular contractions (a LOT of them) and episodes of bradycardia so I was being watched by a cardiologist already. But the atrial fib. came on all of a sudden and with a vengeance.

At Baylor heart and vascular hospital, they "mapped" my heart using probes to induce atrial fib. so they could discover which parts of my heart were causing the misfiring. And then they destroyed those parts with freezing cold. They hope the bits won't heal as they were or form new connections that will cause the arrhythmia again. But my doctors told me to expect that I may need to have the procedure done again, possibly several times. I hope not!