Hi, I am new and new to this disease as well.
Posted 01 June 2012 - 06:47 AM
I suppose things are going rather slowly though for me, so that could be part of the limited diagnosis. It all started with finger ulcers 2 1/2 years ago. Then I started getting some joint pain. The skin started getting blotchy about 2 years ago, on my wrists, and then it spread from there. I guess diffuse skin thickening occurs much more quickly.
Just yesterday I got an echocardiogram and an ECG (I originally thought they were the same thing, with ECG being an acronym for echocardiogram, but apparently they're different tests), and will do the pulmonary tests in a month. The rheumatologist wants to do these once a year to stay on top of any potential issues with my heart or lungs.
Posted 01 June 2012 - 08:45 PM
By the way, I grew up in Ontario.
Posted 03 June 2012 - 02:09 PM
And yes, since your skin changes seem to have occurred in a few months, that is faster than a couple of years like myself.
I understand that there are still many severities of the diffuse kind, so hopefully yours decides to move slowly when it comes to the kidneys and other organs.
I would imagine New Zealand is quite beautiful and the weather's probably a lot nicer than in Ontario (unless you're one of those people that actually liked the winter - I don't! )
Posted 03 June 2012 - 04:05 PM