Update On My New Pcp
Posted 11 March 2007 - 05:50 PM
I have finally got moved to my little rent house next to my parents. It sure is lonely without my friend. I found a wonderful primary care physician doctor (he is familiar with Scleroderma!!!) and he already referred me to a GI specialist (1 week) and then to my rheumatologist the following week!!
He prescribed Reglan to me. I was just wondering if anyone has any experience with it? Is it something that takes a while to start working? Or should it take effect soon after taking it? I am still taking the Prilosec too.
I still can't seem to gain any weight. My appetite is ok I guess - but I really don't eat as much as I should. (it's kinda hard when all I think about is the acid reflux that follows) My new doctor told me to drink 2 of those over-the-counter liquid supplement drinks a day. I think it gives me gas though - I'm still trying to figure out what causes what....it's never ending.
Friday, I was shocked to receive a letter re: my SSI and Medicaid being discontinued. It states that I am only eligible for the Disability SINCE I was living with someone. So I have plans tomorrow to get that straightened out. I don't know why they changed it all of a sudden because I never once lied or led them to believe anything else other than what was going on....so they should have never given it to me in the first place if that was the case. But anyway - I am living ALONE now so I sure hope they will get this resolved. It has been weighing on my mind all weekend!!!! I NEED that money..... Medicaid only pays for 3 rx's a month too - which I just found out. And I have more than 3 rx's.....
I plan on applying for food stamps now too.......I need every penny I can get!! It's a different feeling living alone now....kinda scarey. But I have faith that everything will work out for the best. It usually does.
Posted 12 March 2007 - 06:51 AM
I am so glad you have found a doctor you like and is familiar with sclero. Yeah!
I am not on Reglan, but there are many here that are, so I'm sure someone will chime in about it. However, I do believe it works right away.
I hope you can get everything worked out with the SSI people. You don't need the worries!
Posted 12 March 2007 - 11:06 AM
That's great you have found a good doctor! I don't quite understand why that happened with disability. I know that can be trying. I am on disablility and still have health insurance from the school system. Medicare signed me up for part B even though I told them I did not want it. They now plan to take money out of my monthly check. YIKES!!! I have been on the phone a lot.
Reglan is what the rheumatologist at Johns Hopkins told me to go on. My GI put me on Zelnorm, because he said that Reglan can cause depression and the shakes. I just didn't want to risk that. Of course, it might not happen. I know that my rheumatologist at Hopkins said that that is what most of the scleroderma patients are on.. If Zelnorm doesn't start working better, I might have to change.
I know how you feel about the eating. I dread eating because I know what could happen next. BUMMER!
Posted 12 March 2007 - 11:13 AM
I take Reglan. I don't know the answer to how soon should it take effect, but I do know it is taken 30 minutes before meals...and if you tend to skip meals, still take the amount prescribed. For instance, I am supposed to take 3/day and I usually eat one meal, with several snacks throughout the day, so I just make sure I take 3 a day and only one is taken before an actual meal. Does that make sense?
Reglan has worked for me. I used to feel very bloated (stuffed) after a tiny amount of food and it was really uncomfortable. I"ve been on Reglan for about 6 months and am fine now. I have a question....I wonder if it heals..and I can quit taking it. I'll ask my rheumatologist when I see him soon because maybe it's one less pill to take.
Sorry about SSI...I did not really understand what happened....were you not eligible for SSI when you lived with someone and now that you are alone you qualify?
Posted 12 March 2007 - 03:31 PM
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)
Posted 12 March 2007 - 04:12 PM
I forgot to mention that I take Reglan with Nexium and Zantac.
And, I am so happy for you, getting to live near your parents!!! Lucky for you. I hope this was a good transition for you. It can be lonely living alone but that's when you go to the Internet and post us.
Posted 16 March 2007 - 08:45 AM
I was on Zelnorm for a few weeks and it didn't seem to help.......but then that was also at a time I was very sick (before I went to the hospital). So not sure if anything would have really helped at that time.
Last week I was also switched from Prilosec to Nexium........so now I'm not sure if/or which pill is doing what.....between the 'new' Nexium and the 'new' Reglan prescribed.
I have had a couple of bad nights - but at least that's better than every day!