Jump to content

Welcome to Sclero Forums!! How may we help you?


Good news/bad news?

  • Please log in to reply
1 reply to this topic

#1 inkedup


    Senior Bronze Member

  • Members
  • PipPipPip
  • 59 posts
  • Location:Hebden Bridge, West Yorks

Posted 22 May 2012 - 01:52 PM

After previous posts about not being happy with my care in Halifax, I have taken your advice and after quite a bit of robust persuasion (GP reluctant) I now have my appointment for Leeds! Thanks for all your advice to do so.

Worryingly however, my general practitioner tells me my chest CT scan has signs of ground glass appearance in my right lung? Not sure if this is anything to worry about?

#2 Joelf


    Star Ruby Member

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPipPip
  • 4,839 posts
  • Location:West Sussex

Posted 22 May 2012 - 02:17 PM

Hi Inkedup,

I'm pleased to hear that you've got your appointment in Leeds with a Scleroderma specialist.

I have ground glass on my lungs and in my case it indicated that there was inflammation within the lung tissue resulting in fibrosing alveoli caused by Scleroderma. However, I would emphasise that everyone presents different symptoms with such a complex disease as Scleroderma and so hopefully when you have your appointment with your specialist in Leeds, he'll be able to explain the results of your CT scan more fully to you.

Kind regards,
Jo Frowde
ISN Assistant Webmaster
SD World Webmaster
ISN Sclero Forums Manager
ISN News Manager
ISN Hotline Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)