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Michael Thorpe: ISN Sclero Forums Blogger


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#1 Joelf

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Posted 08 June 2012 - 12:32 PM

Michael Thorpe (Amanda's husband) has joined us as an ISN Sclero Forums Blogger. He has started a blog entitled, “Stop the Rollercoaster!” in which he will talk about his experience as a care giver, in the hope that it will encourage and support others. (Also see:How to Volunteer) Posted 06/06/12.

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.

Jo Frowde
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#2 Joelf

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Posted 08 June 2012 - 12:38 PM

Welcome to the ISN team, Michael!!! :emoticons-line-dance:

It's wonderful to have you on board, and I'm rushing off right this minute to read your blog!!! :you-rock:

Jo Frowde
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International Scleroderma Network (ISN)


#3 miocean

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Posted 08 June 2012 - 06:53 PM

Michael,
I read points in your blog to my husband, my caregiver for the past 8 years. He related to so many of them. I believe the caregiver quite often has the more difficult task...goes through similar life changes due to the illness, deals with various emotions that he/she is often afraid to express because it is not their illness, and is expected to be the strong one all the time.

Thank you for supporting your wife and all of the rest of us and our caregivers!

miocean
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#4 Michael

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Posted 09 June 2012 - 01:33 PM

Hello Miocean

Thank for for your kind sentiments. I am so pleased you have taken the time to share your husband's self management challenges. It is always helpful to empathize with others who understand you!

Kindest Regards

Michael

#5 Michael

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Posted 09 June 2012 - 01:35 PM

Dear Jo

Thank you for your encouraging post, I am so pleased to be a part of this organisation.

Kindest Regards

Michael

#6 Shelley Ensz

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Posted 18 June 2012 - 11:35 AM

Michael, thank you for becoming an ISN Blogger with Stop the Rollercoaster! I love your writing style and your perspective as a caregiver is a much-needed addition that will help both caregivers and patients, alike. :you-rock:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.