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Chockers has been to the hospital for a colonoscopy.


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#1 chockers

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Posted 14 June 2012 - 03:09 AM

Hello folks,

Well, I had my colonoscopy yesterday.

I have been running to the loo and wonder if it's anything to do with my scleroderma, which if you read up on it, it sounds like me. But they found it's all normal and no follow up appointment needed.

So I wondered if there was a medication I could take to slow it down? As it is embarrassing and also feels weak and things have altered.

I wondered if I should look at diet and food intolerances; I have been found to have mild food intolerances through various other health people which, when they have put me on treatment, it's worked (I had been poorly.)

I think it's also little bit of IBS as body is so slow and if someone is behind me it makes it worse. At home on my own I am used to it and it is bad but not as bad if I am out with someone.
I also have mild Rheumatoid Arthritis and thyroid problems overlapped with scleroderma.

What do you think now? As I'll be back to square one and so have made a doctor's appointment.
I don't have a rheumatoid appointment as there are a lot of sick people and I don't need one urgently.

I wonder what I should say to the doctor? Should I ask about diet but my diet is fairly good unless I eat rubbish?



Christine

#2 Joelf

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Posted 14 June 2012 - 01:26 PM

Hi Christine,

Well, it is good news in a way that everything is normal, although it must be very frustrating to not be able to find a definate reason for your gut problems.

Certainly it's worth reviewing your diet; however, the most important thing to know about diet and scleroderma is that all systemic sclerosis patients should have their nutritional status assessed. Systemic scleroderma patients should always consult their doctor(s), especially their rheumatologist, before using any vitamin or herbal remedies or making any significant changes in their diet. I've included a link to our Diet and Systemic Scleroderma page to give you some more information and hopefully some ideas with which to tackle your doctor's appointment.

Kind regards,

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#3 Amanda Thorpe

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Posted 14 June 2012 - 02:45 PM

Hello Christine

It's good news that you don't have cancer or Crohn's or colitis, what I find odd is that didn't officially give you a diagnosis of irritable bowel syndrome (as a non medical layperson I would think that's what you have). When I had my first colonoscopy about 18 years ago I was told that a diagnosis of IBS is given to a collection of symptoms that are not anything else. For example you have symptoms but not Crohn's, cancer etc so you have IBS.

You need to work with your general practitioner closely now to eliminate foods that irritate you and to find what medications can help your symptoms because some can, I know having had IBS before and guessing that's what you have. It can be a long process but it's worth working with your doctor to find a way to ease your symptoms, whatever the cause, they can't necessarily be cured but they can be eased.

Take care.

PS I am having both a colonoscopy and gastroscopy at the same time later this month...can't wait!
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#4 chockers

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Posted 17 June 2012 - 09:04 AM

Amanda. Thanks you will find the little ops nothing as you will be sleeping and know nothing about it. The worst is the diet and the picolax; disgusting stuff. Try and take it at the time they say. I strained some soup and my belly went mad.
But you don't feel over hungry; it's copeable as the picolax takes it away and have help and don't go out and drink lots of water.

Another thing Amanda, don't worry about having the 2 at once; I did 3 years ago and there's nothing to it as you will be out of it. You will just remember the end when being wheeled though on ward and taking B.P and then you will sleep for a bit. Now they say enemas are thing of the past. At the last time it was not like this and I had a gown this time.

I'm going to doctors as they should have a letter but everything was normal, but today I'm having a bad day with running to the loo .

Christine

#5 Amanda Thorpe

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Posted 19 June 2012 - 12:42 PM

Thank you Christine. I hope you got on okay at the doctors and they came up with something useful for you.

Take care.
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#6 chockers

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Posted 20 June 2012 - 07:10 AM

Thank you Christine. I hope you got on okay at the doctors and they came up with something useful for you.

Take care.

It's Friday I go to the doctor. I wonder if they have something to slow it up? Won't know until I ask .....Christine

#7 chockers

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Posted 23 June 2012 - 02:02 PM

Could be food intolerance? Been told to look at diet and to give my belly a rest from fibre as I cram good food into me and it might be the cause, so general practitioner says to watch diet. So we have started.

Christine

#8 Amanda Thorpe

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Posted 25 June 2012 - 03:15 PM

Hello Christine

Many people with scleroderma have to avoid fibre so you may find it helps you. Maybe keep a food and outcome diary as well?

Take care.
Amanda Thorpe
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#9 chockers

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Posted 29 June 2012 - 04:48 AM

That is interesting as I think fibre is healthy so been sticking it down myself as its meant to be good for you.

I have just had a letter calling me back .Maybe to tell me there's nothing wrong. Arghh .I go in September.

This week been of coffee just had it when out 4 cups in a week and the cravings, oh me dear .Not craving it now

I had one bad day with tummy and ended up taking something as was going out . And I almost had to get out of a shop quick .Been quiet since eating porridge for breakfast, got some gluten free one and stayed off wheat for a day as well.

Christine