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Biomarker for Diffuse Scleroderma skin has been discovered!


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Amanda Thorpe's Newest Blog!


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#1 Joelf

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Posted 22 June 2012 - 06:10 AM

Great news, everyone! :balloons:

Amanda Thorpe has just written another fantastic new blog all about the weird 'n' wacky world of Scleroderma.

Do be sure to read it!! :emoticons-yes:

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#2 miocean

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Posted 22 June 2012 - 08:22 PM

Good one Amanda! You expressed it perfectly.

And when one thing seems to get better another seems to get worse.

I am sort of at the plateau after 8 years and a kidney transplant but my lungs have worsened. Some things have improved, I have better use of my hands and just slight curvature, I can walk slowly now for about a mile or so, my skin has softened from a 45-0, my GI track is all messed up but mostly from the medicines. I had been diagnosed with PH but after the transplant so far by Echo no. My testing is the end of this year...

We'll just have to see where it goes from here.

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#3 Amanda Thorpe

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Posted 23 June 2012 - 05:42 AM

Thank you Miocean. See 8 years for you not 5 or 3...oh wait 5 + 3 = 8!

Take care.
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