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Mini stroke


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#1 Jaggers

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Posted 08 July 2012 - 02:07 PM

Hi All,
It's been a long while since I've been here, for awhile I didn't have a computer as the old one died and couldn't remember the addie for here as it was saved on the other. But thanks to a friend she gave me her old laptop to use.

Two and a 1/2 months ago I had a massive chest infection and while battling that I had couple of mini strokes and was told that they think the scleroderma has gone to my brain. I had been sent for tests to see if there was any blockage but there was a mix up with myself and another person; she was an in patient and I was an out patient. The gentleman who was running the scan didn't want to listen; he kept trying to lay me down which started the coughing and would tell me that he would have to send me back up to the ward; he just wouldn't listen, in the end he cracked it. He didn't complete the scan and said he would do it when the coughing settled. I got wheeled back outside 5 minutes later, got told I was finished, told them it hadn't been finished and again was told it was fine. So when I went to my appointment with the specialist who was treating me for the mini strokes, he informed me that the scans were not completed only the right side was done and he had been interested in the left side as my speech was affected along with lost of strength on the right side. And said well doesn't matter you can't be operated on, just keep taking the aspirin daily. I left the hospital so angry by his attitude I will not be seeing him again. I promise I won't be a stranger here now that I have found you again

#2 Joelf

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Posted 08 July 2012 - 02:42 PM

Hi Jaggers,

How nice to hear from you again and I'm sorry to hear that you've been having such a rotten time of it. I do hope that you will soon improve and I've included a link for you on Scleroderma Brain Involvement which I hope you'll find interesting.

I hope that now you've got the use of another computer you'll be able to post more frequently.

Kind regards,

Jo Frowde
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International Scleroderma Network (ISN)


#3 Robyn Sims

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Posted 08 July 2012 - 08:21 PM

Hi Jaggers,

Oh what a terrible experience you had. Sounds like you could do with a second opinion there.

Your scleroderma specialist needs to know all this of course. Sounds as though you are really in the wars. Many of our members have had really bad chest infections so far this year. It does take such a long time to clear them up too.

I see that Jo has headed you in the right direction in regard to scleroderma and the brain.

Please let us know how things progress for you. And yes, it is good that you are back online again. We do miss our computers when they expire!!

Kind regards

#4 Amanda Thorpe

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Posted 12 July 2012 - 12:51 PM

Hello Jaggers

Welcome back and sorry you had such a bad experience in hospital! I hope you improve and don't be a stranger!

Take care.
Amanda Thorpe
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#5 Jaggers

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Posted 18 July 2012 - 06:09 PM

Thanks everyone,

I am going to look at that link and read up on it. I see my lung specialist on the 30th and skin and joint spec early August and was going to inform them. lol

I have a new problem and was wondering if anyone else has had this. I'm getting blisters on both hands and shoulders which is now peeling like sun burn. I wish I could blame the chest infections on the weather but its been a mild winter, haven't had to have the heater on much at all, even had windows open, that's how nice it's been, even laugh when my cousin in Bulli tells me they are freezing when its 17 degree loL. Down here that's when the t shirt and shorts come out.

I also got a early 50th birthday present, a Note Book and am getting use to a smaller screen.

Cheers Jagger

#6 Joelf

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Posted 19 July 2012 - 11:52 AM

Hi Jaggers,

Thankfully, I haven't suffered with blisters such as you describe but I've found a link to Interleukin-6 and Scleroderma - A blistering attack on skin diseases which I hope will be of help to you.

We also have a notebook, which is quite a natty little computer; I'm actually using it at the moment as my PC is showing a bit of an attitude and refusing to work properly with Mozilla Firefox!! ;) :lol:

Kind regards,

Jo Frowde
ISN Sclero Forums Manager
ISN News Manager

ISN Chat Host
International Scleroderma Network (ISN)